Consent-to-share: California’s opportunity to modernize cross-sector data sharing
- Collection:
- Health Policy and Services Research
- Author(s):
- Franceschini, Robby, author Leslie, Timi, author Stein, Daniel, (Of California HealthCare Foundation), author McCoy, Kristine, author Pertman, Adam, (Of California HealthCare Foundation), author
- Contributor(s):
- California HealthCare Foundation, issuing body.
- Publication:
- [Oakland, CA] : California Health Care Foundation, October 2023
- Language(s):
- English
- Format:
- Text
- Subject(s):
- Access to Information Confidentiality Government Programs Health Policy Information Dissemination Informed Consent Intersectoral Collaboration Medicaid Quality Assurance, Health Care State Health Plans California
- Genre(s):
- Technical Report
- Abstract:
- California is leading the way in dismantling barriers to health care and social services delivery by promoting essential cross-sector collaboration to maximize health and wellbeing. Whether a professional is looking to support physical or mental health, educational achievement, housing stability, or crime and recidivism reduction, they need to see the full picture of a person to provide the best care. Having access to data enables the delivery of individualized and coordinated whole-person care. Today, most of the vital information needed to provide individuals with coordinated services exists but is physically and legally sequestered. That means professionals are often unable to work with a comprehensive understanding of a person’s health and social history. Several state-supported initiatives providing health, nutrition, education, safety, and housing recognize that formal bridges must be made to coordinate the delivery of services. As a result, California has a unique opportunity to bring the necessary financial, technical, and operational resources to develop a more streamlined and systematic statewide approach to data sharing across health and social services. To take advantage of this opportunity, California should develop a state-led strategy to establish the legal, technical, and policy frameworks that permit health and social services organizations to routinely and securely share actionable information. This paper examines the essential policy, legal, and technical components that must be reconciled to scale consent management services from promising county-level pilots to a state-wide information exchange. The basis for this strategy is rooted in informed consent and its ability to facilitate appropriate data sharing, enabling the state to enhance service delivery and improve health outcomes. The comprehensive recommendations included in this paper are essential to realizing California’s potential to attain efficient, ethical, and holistic care for its residents.
- Copyright:
- Reproduced with permission of the copyright holder. Further use of the material is subject to CC BY-NC-ND license. (More information)
- Extent:
- 1 online resource (1 PDF file (34 pages))
- Illustrations:
- Illustrations
- NLM Unique ID:
- 9918734180306676 (See catalog record)
- Permanent Link:
- http://resource.nlm.nih.gov/9918734180306676