Advancing shared decision making among patients of color: lessons learned from Fair Health’s grant-funded initiative
- Collection:
- Health Policy and Services Research
- Series Title(s):
- Brief (FAIR Health, Inc.)
- Contributor(s):
- FAIR Health, Inc., issuing body.
- Publication:
- New York, NY : FAIR Health, Inc., November 29, 2022
- Language(s):
- English
- Format:
- Text
- Subject(s):
- Decision Making, Shared Minority Groups Racial Groups United States
- Genre(s):
- Technical Report
- Abstract:
- Although it shows promise for reducing unnecessary spending and healthcare costs, as well as improving patient-provider communication, shared decision making (SDM)--or the discussion between healthcare providers and patients and/or caregivers/care partners--has had limited adoption to date by healthcare providers. Tools such as decision aids are used to facilitate these discussions; however, healthcare costs are rarely included either in these tools or as part of SDM discussions. Although SDM discussions have been shown to improve the quality of decisions and trust in physicians among patients of color, patients of color may not have the SDM discussions with providers as often as their white counterparts. As part of its mission to advance transparency in healthcare costs and health insurance information, FAIR Health has undertaken consumer-focused, grant-funded initiatives to advance SDM among various patient populations. FAIR Health’s first SDM project, funded by The New York Community Trust, focused on palliative care and led to the development and launch of a dedicated SDM feature on FAIR Health Consumer and three decision aids that combined clinical and cost information for three care scenarios for seriously ill patients: dialysis, ventilator and nutrition options. Building upon this project, FAIR Health undertook an initiative, funded by The Fan Fox and Leslie R. Samuels Foundation, that involved the development and 2021 launch of a provider-oriented educational platform website, FAIR Health Provider (fairhealthprovider.org). In June 2021, NYHealth awarded FAIR Health--in collaboration with FAIR Health Academic Advisory Board member Chima Ndumele, PhD, Associate Professor of Public Health at Yale University--a grant to develop and launch decision aids to advance SDM among people of color in New York. With input from minority patients, providers and community health workers, as well as a comprehensive literature review, three conditions that disproportionately affect people of color were selected for the tools: uterine fibroids (separately, procedures and medications), slow-growing prostate cancer and type 2 diabetes. In May 2022, FAIR Health launched the four SDM tools, alongside educational content, resources and patient checklists on a dedicated SDM section of the FAIR Health Consumer website (fairhealthconsumer.org). To promote the tools, FAIR Health undertook a robust, culturally sensitive dissemination campaign, seeking to reach patients, healthcare providers, community healthcare workers and policy makers, among other stakeholders. In this brief, FAIR Health presents salient findings and lessons learned throughout the project, An Initiative to Advance Shared Decision Making for Patients of Color.
- Copyright:
- Reproduced with permission of the copyright holder. Further use of the material is subject to CC BY-NC-ND license. (More information)
- Extent:
- 1 online resource (1 PDF file (8 pages)).
- NLM Unique ID:
- 9918591679706676 (See catalog record)
- Permanent Link:
- http://resource.nlm.nih.gov/9918591679706676