The opportunity. Assembly Bill 133 (AB 133) requires the California Health and Human Services Agency (CalHHS) to develop a data exchange framework that includes a single statewide data sharing agreement and common set of policies and procedures to govern the exchange of health information among health care entities and government agencies beginning in June 2024. This framework will enable and require real-time access to and exchange of health information among providers and payers directly between each other and through qualified data exchange networks. The framework will be aligned with other state and federal data exchange standards and requirements. Currently, data exchange in California takes place under a patchwork of voluntary data sharing agreements established by state and national networks, as well as under a multitude of community and program-specific agreements. Many data exchange arrangements are missing key stakeholders--such as rural providers, health plans, community-based organizations, and behavioral health and state and county-based entities--and missing important types of data; for example, social determinants of health information. The opaque maze of federal and state health privacy laws and regulations persistently inhibits many kinds of information sharing including, for example, the sharing of mental health and substance use disorder information, as well as exchange by smaller and traditionally disconnected health and human service organizations and county health departments. AB 133 calls for the establishment of a single agreement that addresses these challenges, is inclusive and responsive to the needs of all participants, and scales robust data exchange across California.
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