State data for conducting patient-centered outcomes research to improve maternal health: stakeholder discussions : summary report : final report
- Collection:
- Health Policy and Services Research
- Author(s):
- Kennedy, Susan, (Of AcademyHealth), author Schiff, Jeff, (Of AcademyHealth), author Krishnan, Sunita, author Moiduddin, Adil, author Bellows, Denise, author Bodas, Mandar, author Grigorescu, Volanda, author DeCosta, Danielle, author Bernhard, Tess, author Otter, Caitlin, author
- Contributor(s):
- AcademyHealth, issuing body. United States. Department of Health and Human Services. Office of the Assistant Secretary for Planning and Evaluation, issuing body. United States. Department of Health and Human Services. Office of the Assistant Secretary for Planning and Evaluation. Patient-Centered Outcomes Research Trust Fund, issuing body. National Opinion Research Center, issuing body.
- Publication:
- Washington, D.C. : Office of the Assistant Secretary for Planning and Evaluation, Office of Health Policy December 2020
- Language(s):
- English
- Format:
- Text
- Subject(s):
- Health Information Exchange Health Information Interoperability Maternal Health Patient Outcome Assessment United States
- Genre(s):
- Technical Report
- Abstract:
- This report presents a summary of discussions with stakeholders conducted to identify key components of successful state-based maternal health data linkage initiatives, to recognize the gaps in implementing such initiatives including data use for research and finally to understand the current status of existing linkages of state-level data with other data sources and with electronic health records. Discussants were selected from each of the following stakeholder groups: 1) Researchers working at the state-level to identify quality improvement opportunities, including academic and non-academic institutions, individuals that use data from a particular state or group of states, and networks of Medicaid researchers; 2) State Medicaid Medical Directors; 3) Data stewards, such as individuals or organizations that are involved in collecting, processing and transmitting diverse state-level data to data repositories or to researchers or research networks; 4) State Maternal Mortality Review Committee (MMRC) members; and 5) Perinatal Quality Collaborative (PQC) members. The stakeholder discussions highlighted several advanced state data infrastructure characteristics such as having the capacity to blend multiple data resources, iterative development of data processes, ability to overcome technical challenges and the facility to explore the use of health information exchanges (HIEs) to access clinical records on women’s pre-pregnancy health. Stakeholders also provided information on funding mechanisms of state data initiatives on MM/SMM. Furthermore, the discussions revealed several data-related challenges faced by state initiatives such as concerns about the quality of data on race/ethnicity, challenges in formulating data use agreements (DUAs) for data linkages and having limited ability to link data on mothers with their babies. Stakeholders provided insight on future goals of their state’s initiatives on MM/SMM. Finally, stakeholders mentioned several considerations on future actions that may contribute to improving the health and well-being of women nationwide.
- Copyright:
- The National Library of Medicine believes this item to be in the public domain. (More information)
- Extent:
- 1 online resource (1 PDF file (ii, 16 pages))
- Illustrations:
- Illustrations
- NLM Unique ID:
- 9918539087706676 (See catalog record)
- Permanent Link:
- http://resource.nlm.nih.gov/9918539087706676