Across California, approximately 180,000 children under age 21 are enrolled in the California Children’s Services (CCS) program, which provides diagnostic and treatment services, medical case management, and physical and occupational therapy services to children with CCS-qualifying conditions. Historically, for CCS-eligible children enrolled in Medi-Cal, the child’s Medi-Cal health plan covers all non-CCS services, while CCS specialty services are carved out of the health plan’s responsibility and managed by the county. In 2016, California Senate Bill (SB) 586 created the CCS Whole Child Model (WCM) for CCS-eligible children enrolled in Medi-Cal in 21 counties served by five County Organized Health Systems (COHS): CalOptima, CenCal Health, Central California Alliance for Health (CCAH), Health Plan of San Mateo (HPSM), and Partnership HealthPlan of California (PHC). Under the WCM, these health plans provide integrated Medi-Cal and CCS services to children enrolled in both programs. In keeping with the whole child focus of SB 586, the statute required the participating health plans to create a family advisory committee (FAC). The purpose of the FACs is to ensure that the health plans engage with CCS families and caregivers to bring their voices into the design, implementation, and ongoing management of the WCM, as well as the care provided to CCS enrollees. This report captures the lessons learned in the process of establishing and managing the FACs during the early phases of WCM implementation. Individual, structured interviews were conducted with staff from each of the five WCM health plans, FAC family representatives, and other stakeholders, including CCS county staff and community advocates. In addition, respondents were asked twice to provide information via e-mail on any changes made to the FACs over the 6-12 months following the interviews.
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