Most aging adults and people with disabilities will require assistance to remain living in their homes and communities at some point over their lifetime. For Medi-Cal enrollees, access to these types of supportive services, collectively known as "Home and Community-Based Services (HCBS)," varies across the state. But the limitations of public data impede the understanding of who is receiving which services and where, and what inequities may exist by race, age, geography, type of disability, and other factors. This paper aims to support state staff, policymakers, and other HCBS stakeholders in ensuring the robust collection and reporting of HCBS data as the state undertakes various efforts to improve these services. It includes a summary of the complexities and challenges of the current HCBS infrastructure for data collection including an overview of the existing gaps in HCBS data, recommendations to address those challenges and gaps, and strategies for moving the recommendations forward. This paper focuses specifically on Medi-Cal HCBS and Medi-Cal-funded long-term care.
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