In its initial response to the "Baby Doe" controversy triggered by the withholding of medical treatment from a severely disabled newborn in an Indiana hospital, and his resulting death, the Department of Health and Human Services warned that it would use existing legislation, namely the Rehabilitation Act of 1973, to prevent further deaths of this kind. Section 504 of the act prohibited as discriminatory the withholding of services, including medical services, from any person with a disability in facilities that received federal funding, among them hospitals. However, officials at the department, most of whom regarded themselves as allies of hospitals and of the medical profession, were deeply divided over the issue of intervening in the professional autonomy of physicians in making treatment decisions. As a result of such internal political and ethical conflicts, the department failed to bring any legal actions under the Rehabilitation Act against physicians who counseled parents to allow their disabled children to die, and new legislation had to be drafted to address the issue. In October 1984, federal child abuse was expanded to explicitly prohibit the withholding of fluids, nutrition, and medically indicated treatment from infants with severe birth defects.
Copyright:
The National Library of Medicine believes this item to be in the public domain. (More information)