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1531. How California Children’s Services Programs in the 21 Whole-Child Model counties engage with families

Author(s):
Henry, Holly, author
Gray, Allison, author
Schor, Edward, author
Publication:
Palo Alto, CA : Lucile Packard Foundation for Children's Health, March 2018
Subject(s):
Child Health Services
Family
Managed Care Programs
Medicaid
Parents
Patient Participation
Social Support
State Government
Humans
California
United States

1533. Threading the labyrinth: why children in California with special health care needs endure delays in securing the medical equipment and supplies they need

Author(s):
O'Sullivan, Maryann, author
Tompkins, Francis, author
Publication:
Palo Alto, CA : Lucile Packard Foundation for Children's Health, May 2018
Subject(s):
Child Health Services
Disabled Children
Durable Medical Equipment
Health Services Accessibility
Health Services Needs and Demand
Child
Health Care Surveys
Insurance, Health, Reimbursement
Managed Care Programs
Medicaid
Parents
State Government
Humans
California
United States

1534. A better way: team care for children with special health care needs

Author(s):
Schor, Edward L., author
Publication:
Palo Alto, CA : Lucile Packard Foundation for Children's Health, August 2018
Subject(s):
Child Health Services
Chronic Disease -- therapy
Health Services Needs and Demand
Patient Care Team
Child
Episode of Care
Insurance, Health, Reimbursement
Quality of Health Care
Reimbursement Mechanisms
Risk Adjustment
Humans
United States

1535. Achieving care integration for children with medical complexity: the human-centered design approach to care coordination

Author(s):
Kuo, Dennis Z., author
Ruud, Chuck, author
Tahara, Denise C., author
Publication:
Palo Alto, CA : Lucile Packard Foundation for Children's Health, November 2018
Subject(s):
Child Health Services
Delivery of Health Care, Integrated
Health Services Needs and Demand
Multiple Chronic Conditions -- therapy
Child
Patient Care Management
Patient-Centered Care
Humans
United States

1538. Voretigene neparvovec for biallelic RPE65-mediated retinal disease: effectiveness and value : final evidence report

Publication:
[Boston, Massachusetts] : Institute for Clinical and Economic Review, February 14, 2018
Subject(s):
Genetic Therapy
Leber Congenital Amaurosis -- genetics
Leber Congenital Amaurosis -- therapy
Retinal Diseases -- genetics
Retinal Diseases -- therapy
Retinal Pigment Epithelium -- abnormalities
Mutation
Randomized Controlled Trials as Topic
Treatment Outcome
Visual Acuity
Humans
United States

1539. Chimeric antigen receptor T-cell therapy for B-cell cancers: effectiveness and value : final evidence report

Publication:
[Boston, Massachusetts] : Institute for Clinical and Economic Review, March 23, 2018
Subject(s):
Immunotherapy, Adoptive
Leukemia, B-Cell -- drug therapy
Lymphoma, B-Cell -- drug therapy
Lymphoma, Non-Hodgkin -- drug therapy
Precursor Cell Lymphoblastic Leukemia-Lymphoma -- drug therapy
Adult
Child
Clinical Trials as Topic
Clofarabine -- therapeutic use
Cost-Benefit Analysis
Immunotherapy, Adoptive -- adverse effects
Immunotherapy, Adoptive -- economics
Receptors, Chimeric Antigen -- therapeutic use
Treatment Outcome
Humans
United States

1540. Emicizumab for hemophilia A with inhibitors: effectiveness and value : final evidence report

Publication:
[Boston, Massachusetts] : Institute for Clinical and Economic Review, April 16, 2018
Subject(s):
Antibodies, Bispecific -- therapeutic use
Antibodies, Monoclonal -- therapeutic use
Hemophilia A -- drug therapy
Antibodies, Bispecific -- adverse effects
Antibodies, Monoclonal -- adverse effects
Cost-Benefit Analysis
Treatment Outcome
Humans
United States