June 2020 | No. 1 Medicare for All and Beyond CONFERENCE BRIEF SERIES SETTING STANDARDS FOR AFFORDABLE HEALTH CARE A review of concepts to guide policymakers EDITOR’S NOTE Before the COVID-19 pandemic, anxiety and insecurity about health care costs were driving demands for health care reform and making it a top election issue. In February 2020, Penn’s Leonard Davis Institute of Health Economics (LDI) held a conference, Medicare for All and Beyond: Expanding Coverage, Containing Costs, which included a panel discussion on affordability.1 COVID-19 and its aftermath have added new urgency to the need to make health care affordable, and reduce barriers to needed testing and treatment, such as out-of-network bills and out-of-pocket costs. In this critical time, making care affordable for all becomes a public health imperative. INTRODUCTION In the run-up to the presidential election, the affordability of health pocket costs. At Penn LDI’s Medicare for All and Beyond conference, care remains a top concern of the American voting public. But how a panel of researchers, policy experts, and consumer advocates do we know when health care is affordable? On a policy level, how discussed and debated affordability in theory and practice.1 What do we set a standard for affordability that can be implemented in emerged was a clearer understanding of the value judgments needed, a reformed system? Sometimes policy debates about affordability friction points encountered, and principles that policymakers should focus only on whether insurance premiums are affordable, although apply to ensure that health coverage is affordable. This issue brief consumers tend to be concerned about both premiums and out-of- summarizes the panel’s insights. LDI.UPENN.EDU | @PENNLDI | UNITEDSTATESOFCARE.ORG | @USOFCARE Medicare for All and Beyond CONFERENCE BRIEF SERIES WHAT’S DRIVING PUBLIC CONCERN The Affordable Care Act (ACA) set affordability standards for ABOUT AFFORDABILITY? employer-sponsored insurance and plans purchased on the individual marketplace. At its onset, it defined employer-sponsored insurance Although headlines often point to the unaffordability of medical as “affordable” if the employee contribution for individual coverage bills, the average amount that families are paying out of pocket for was no more than 9.5% of household income, and it limited out-of- health care, adjusted for inflation, has not changed dramatically in pocket costs to roughly $6,500 per individual and $13,000 per family the last decade.2 But that average obscures the great variability in for covered services. Although these thresholds were necessary for costs—and the root of our affordability problem lies in these cost program purposes, they do not measure the overall financial burden outliers. Affordability concerns relate to the potential to incur extreme to households when combining premiums and out-of-pocket costs, costs when health care needs arise. Care becomes unaffordable when nor do they consider whether these costs are affordable for families of people face a $40,000 bill for an out-of-network air ambulance, or different income levels. when a low-income family must cover a $6,000 deductible. These bills cause financial stress, and may overwhelm a household’s ability Experts disagree when asked to judge whether health coverage to meet other basic needs. In these cases, insurance fails in one of its is affordable in different situations. In one study, 18 experts could primary goals: financial risk protection. not reach consensus on how to factor in deductibles, children, debt, savings, and many other considerations into what is deemed However, affordability is not just a problem for people in poor health affordable.5 However, they agreed that lower income households or those facing high medical bills; it affects a much larger group of could spend a smaller share of their income on health care and higher people who hesitate to seek needed care because of out-of-pocket income households a larger share. The median affordability cutoff costs they might incur. The specter of surprise billing and the general for insurance, in these experts’ opinions, was slightly lower than ACA lack of cost transparency creates a sense that out-of-pocket costs standards. are not predictable. Survey data indicate widespread hesitation to seek care; about half of U.S. adults say they or a family member put A different answer emerges when the public is asked about off or skipped some sort of health care or dental care in the past affordability. In a study of 6,000 random people, respondents felt year because of the cost.3 This suggests that by failing to protect that households could afford to spend about 5% of income on health people from exposure to high medical bills, our current health system insurance, regardless of income.6 They thought that young people of health coverage is also failing in another goal: to reduce financial could afford to spend more than older people, and people in debt barriers to needed care. could afford to spend less. Respondents also did not pay any attention to deductibles: there was no difference in the amount they thought The pervasiveness of high-deductible plans, even in the employer- people could afford to pay based on the plan with a more or less sponsored market, has contributed to these failures. While these plan generous deductible. People in more conservative-leaning states designs reduce premiums, they do so by increasing out-of-pocket gave the same answers as those in progressive-leaning states. Higher costs, which can expose people to greater financial risk when they income people generally thought everyone could pay more for health need care. And while people in high-deductible plans reduce overall care than lower income people did. health care consumption, we have good evidence that they reduce their use of both cost-effective and cost-ineffective care.4 IN THE END, AFFORDABILITY IS A VALUE JUDGMENT EXPERTS AND THE PUBLIC HAVE DIFFERENT OPINIONS ON WHAT’S AFFORDABLE Although we often think of affordability as an economic or financial question, it is really a question of values. Any measure of affordability When trying to define affordability for health care, can we look to involves a value judgment, whether affordability is defined based other sectors for guidance in how to build affordability into policy? on an arbitrary threshold or the relative value of spending on National standards for affordability exist in two other facets of other important goods and services. For example, one economic American life: a general federal poverty level (FPL) and a Housing perspective suggests that a household can “afford” to pay for health and Urban Development (HUD) standard for affordable housing. insurance if it would be left with enough income to meet its other The FPL is based on a bundle of foods that the average household socially-defined minimum needs. But defining “needs” entails a value needs to buy; a family is poor if its income is less than three times judgment. A different approach to measuring affordability relies on the cost of that food bundle. In terms of affordable housing, HUD what people already purchase: if most people at a certain income level says that families should not have to pay more than 30% of their buy insurance, they consider it affordable. Even this simple measure income for subsidized housing. But defining a standard for health care involves a value judgment about the percentage: if 51% of people affordability is much harder than food or housing, because levels of purchase coverage (or 75% or even 95%), does it mean that coverage “need” for health care are so variable and open to interpretation, and is affordable for everyone at that income level, regardless of other because the nature of health care changes so rapidly over time. circumstances? Medicare for All and Beyond CONFERENCE BRIEF SERIES Value judgments bring up key considerations of equity. An important TOWARD A STANDARD: and early question to ask is “affordable to whom and for whom?” This Some Principles and Guideposts starting point acknowledges that the existing system has longstanding inequities in access to care, particularly for racial and ethnic minorities.7 Given the complexity and nuance of developing a health care A significant point of friction in developing a standard is how to bring affordability standard, how might policymakers begin to build in the perspectives of people who have not been able to access care affordability into health reform proposals? The panel provided some and achieve the health outcomes that they have wanted from the principles to apply, and guideposts to look for in current proposals: beginning. • Universal coverage. Without insurance, nearly everyone is at risk for catastrophic and unaffordable health care, given the extremely high costs of that care. Thus, an affordable health care TOWARD A STANDARD: system presupposes that all residents have coverage. What Connecticut is Doing • quitable costs and equitable subsidies. A core principle E In the absence of a national standard for affordability, a number (and goal) of an affordability standard is to ensure that similarly of states have begun to look at ways to develop one themselves. situated people are expected to pay costs that are similar. Connecticut’s ongoing initiative provides a good example. Through a Our current system has built-in inequities in how coverage is consensus process, the state developed this definition of affordability: subsidized. For example, in the employer-sponsored market, the regressive nature of the tax break means that the largest “Health care is affordable in Connecticut if a family can subsidies go to the wealthiest employees. On the individual reliably secure it to maintain good health and treat illnesses marketplaces, subsidy “cliffs” mean that a few dollars of and injuries when they occur without sacrificing the ability additional income can result in large differences in the amounts to meet all other basic needs including housing, food, people are expected to pay. Affordability standards can begin to transportation, childcare, taxes and personal expenses, or harmonize how we subsidize health coverage across the board. without sinking into debilitating debt.”8 • Adequate access to care. At its core, an affordability standard With foundation and state-level funding, a coalition of state officials is a threshold for ascertaining whether people face financial and stakeholders set out to develop a standard for affordable barriers to needed care. Thus, a standard must take into account health care, premised on an updated self-sufficiency standard for premiums and cost-sharing—for both covered services and cost- Connecticut.9 The self-sufficiency standard is based on detailed effective services that might be excluded from benefits, such as information on the resources needed to meet basic needs for more dental and vision care. It must consider the timing, structure, and than 700 types of families in different locations across the state, level of cost-sharing to ensure that the cost of care—at the time making it much more finely-grained than the federal poverty level. of need—does not create a barrier to access. This update demonstrated a great mismatch between the growth of the economy in Connecticut and where people reside. It highlighted • Predictable and transparent cost-sharing. Out-of-pocket geographic differences in retail and service industry employment, payments are more affordable when they are clear, predictable, characterized by low-wage jobs, and growth of high-tech and biotech and spread out over time so that large spikes in spending do not jobs with generally higher wages. overwhelm household budgets. Cost-sharing can be made more consumer-friendly, while still being used to lower premiums The coalition has updated and expanded the health care component and incentivize use of cost-effective care. Consumers prefer of the self-sufficiency standard’s household budget. This work flat-fee copayments rather than percentage coinsurance and has involved integrating detailed data on race, ethnicity, income, set deductibles.10 Coinsurance can threaten affordability when premiums, and cost-sharing to provide a more accurate picture of the underlying price of a service skyrockets (as with prescription household needs and expenses. As a next step, these data will be used drugs). Deductibles can threaten affordability when they require to develop a modeling tool that can help policymakers and advocates people to pay thousands of dollars before coverage kicks in, estimate the effects of different policy options for different types of which most people do not have at the point of care.11 And by families in Connecticut. By implementing the affordability standard definition, surprise billing lacks transparency and predictability, as a modeling tool, it will allow policymakers to consider differences leaving people unable to plan for these costs in their budgets. by geography, race and ethnicity, and disease states. It acknowledges that what is affordable to someone with multiple chronic conditions is different from what is affordable to someone who is generally healthy at any given time. Medicare for All and Beyond CONFERENCE BRIEF SERIES MEETING AFFORDABILITY STANDARDS MEANS LEONARD DAVIS CONTROLLING COSTS INSTITUTE OF HEALTH Affordability standards can help identify who falls above and below a threshold, but ECONOMICS policy actions will be needed to achieve and maintain these standards. Controlling the Since 1967, the University of Pennsylvania’s underlying costs of care is inextricably linked to making sure that care is affordable; even Leonard Davis Institute of Health Economics with universal coverage and fairly designed subsidies and cost-sharing, ever-rising costs (Penn LDI) has been the leading university will erode wages and crowd out spending on other important goods and services. In a institute dedicated to data-driven, policy- concluding exercise, the panelists suggested one policy or strategy that could improve focused research that improves our nation’s the affordability of care by addressing these underlying costs. The wide range of their health and health care. Penn LDI works answers drives home the challenges of finding a solution to providing affordable care: on issues concerning care for vulnerable populations; coverage and access to health • Control excessive prices paid for drugs and hospital services. For drugs, consider care; improving care for older adults; and pricing by cost-effectiveness or reference pricing; for hospitals, consider the opioid epidemic. Penn LDI connects regulating prices in non-competitive local markets. all twelve of Penn’s schools, the University • Tie prices to quality. Expand value-based payment strategies that tie of Pennsylvania Health System, and the reimbursement levels to achieving outcomes and lessening disparities. Children’s Hospital of Philadelphia through its more than 300 Senior Fellows. • Pass legislation to control prices or out-of-pocket costs for prescription drugs that are absolutely necessary, such as insulin. LDI.UPENN.EDU @PENNLDI • Eliminate the tax exclusion for employer-sponsored coverage, which is an inequitable way to provide subsidies and distorts both labor and health insurance markets. • As part of the infrastructure needed for sustainable universal coverage, establish UNITED STATES OF CARE an all-payer claims database (including self-insured employers) that can help states understand their cost and utilization trends. United States of Care is a non-partisan non- profit organization mobilizing stakeholders to achieve long-lasting solutions that make health care better for all. United States of Care aims to ensure every American REFERENCES has access to an affordable regular source 1. Penn LDI. (2020). Medicare for All and Beyond: Expanding Coverage, Containing Costs. Philadelphia, PA: of health care; protection from financial University of Pennsylvania. Retrieved from https://ldi.upenn.edu/hcreform2020 devastation due to illness or injury; and to 2. Glied, S.A. & Zhu, B. (2020). Catastrophic Out-of-Pocket Health Care Costs: A Problem Mainly for Middle- accomplish this in an economically and Income Americans with Employer Coverage. The Commonwealth Fund. Retrieved from politically sustainable fashion. https://www.commonwealthfund.org/publications/issue-briefs/2020/apr/catastrophic-out-of-pocket-costs- problem-middle-income UNITEDSTATESOFCARE.ORG 3. Kirzinger, A., Muñana, C., Wu, B., & Brodie, M. (2019). Data Note: Americans’ Challenges with Health Care @USOFCARE Costs. Kaiser Family Foundation. Retrieved from https://www.kff.org/health-costs/issue-brief/data-note- americans-challenges-health-care-costs/ 4. Brot-Goldberg, Z.C., Chandra, A., Handel, B.R., & Kolstad, J.T. (2017). What Does a Deductible Do? The Impact of Cost-Sharing on Health Care Prices, Quantities, and Spending Dynamics. The Quarterly Journal of Economics, 132(3), 1261–1318. AUTHOR 5. Muennig, P., Sampat, B., Tilipman, N., Brown, L.D., & Glied, S.A. (2011). We All Want It, But We Don’t Janet Weiner, PhD, MPH Know What It Is: Toward a Standard of Affordability for Health Insurance Premiums. Journal of Health Co-Director for Health Policy Politics, Policy and Law, 36(5), 829-53. Leonard Davis Institute of Health Economics 6. Glied, S.A. & Muennig, P. (2018). Reforming Reform: Public Assessments of the Affordability of Health University of Pennsylvania Insurance Policies. SocArXiv Papers. Retrieved from https://osf.io/preprints/socarxiv/8g4n6/ 7. Buchmueller, T.C. & Levy, H.G. (2020). The ACA’s Impact on Racial and Ethnic Disparities in Health Insurance Coverage and Access to Care. Health Affairs, 39(3), 395–402. 8. Connecticut State Office of Health Strategy and Office of the State Comptroller (2020). Healthcare Affordability Standard. Retrieved from https://portal.ct.gov/-/media/OHS/Affordability-Standard- THANK YOU Advisory/Self-Sufficiency-Standard/Healthcare-Affordability-Standard-Overview.pdf?la=en We thank our conference speakers for their 9. Connecticut State Office of Health Strategy (2020). Healthcare Affordability Standard – Self-Sufficiency valuable insights and contributions to the Standard. Retrieved from https://portal.ct.gov/OHS/Pages/Healthcare-Affordability-Standard/Self- panel: Sherry Glied, PhD (moderator); Sufficiency-Standard Tekisha Dwan Everette, PhD; Ezekiel 10. Ditre, J. (2017). Consumer-Centric Healthcare: Rhetoric vs. Reality. Healthcare Value Hub, Research Brief Emanuel, MD, PhD; Frances Padilla, MPA; No. 18. Retrieved from https://www.healthcarevaluehub.org/advocate-resources/publications/consumer- Mark Pauly, PhD; and Lynn Quincy, MA. centric-healthcare-rhetoric-vs-reality/ 11. Dixon, A. (2020). Survey: Nearly 4 in 10 Americans Would Borrow Money to Cover a $1K Emergency. Bankrate. 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