October 2018 Changing Public Charge Immigration Rules: The Potential Impact on Children Who Need Care T he Trump administration published on children with potentially life-threatening conditions October 10 a proposed rule change (PDF) such as asthma and cancer, and newborns who that would increase the chance of an immi- require immunizations, among others. grant being determined to be a public charge and therefore being denied legal permanent residency The analysis found that 4.8 million children in need or entry to the US. The proposed rule instructs immi- of medical attention lived in households with at least gration officials to take a broadened array of public one noncitizen adult and were insured by Medicaid benefits — including health and nutrition programs or CHIP. The authors estimate that 700,000 to 1.7 such as Medicaid and the Supplemental Nutrition million children in need of medical attention are likely Assistance Program (SNAP) — into consideration, to be disenrolled from Medicaid/CHIP if the rule is along with other factors, when making public changed. Once disenrolled, these children are likely charge determinations. The proposed changes are to become uninsured,2 and are thus at higher risk of expected to cause large numbers of immigrant par- going without care or experiencing delays in care.3 ents to disenroll themselves and their children from safety-net programs, in large part due to fear and Although not the primary focus of this analysis, confusion over the rule even among immigrant fam- there will likely be other negative health impacts ilies to whom the rule does not apply. There have from the proposed rule change for children in immi- been reports that this is already occurring.1 grant households, where a parent or adult caretaker disenrolls from any of the wide range of safety-net This issue brief discusses how this rule change could programs included in the proposed rule change, impact Medicaid and Children’s Health Insurance regardless of whether the children themselves are Program (CHIP) enrollment among a particularly vul- disenrolled from Medicaid/CHIP. A 60-day pub- nerable group: low- and moderate-income children lic comment period is underway, after which the “in need of medical attention,” defined as children Department of Homeland Security is required to with a current or recent medical diagnosis, disabil- review and respond to comments prior to finalizing ity, and/or need for specific therapy. This includes the rule. Issue Brief adult. The authors define “children in need of medi- RESEARCH FOCUS Introduction Potential Disenrollment from cal attention” as children with a current or recent medical diagnosis, disability, or need for specific care. Medicaid/CHIP Among Children in Children are at risk of disenrollment from Medicaid/ What Is Public Charge, and How Is Need of Medical Attention CHIP either because the rule directly applies to them It Changing? These changes may negatively impact the health of or due to the chilling effect. Two Medicaid/CHIP dis- Under federal immigration law, when an immigrant children who live in immigrant households (defined enrollment scenarios are presented to illustrate how applies for entry into the United States or for per- as having at least one noncitizen adult).* Some non- the changes could affect health coverage for children manent resident status (i.e., a green card), officials citizen children currently enrolled in Medicaid/CHIP in need of medical attention. (The authors include decide if the immigrant is likely to become a “public will be directly subject to this rule, meaning that they CHIP beneficiaries because many states use blended charge” (i.e., primarily dependent on the govern- could be denied the opportunity to become legal funding for Medicaid and CHIP, and Medicaid and ment for subsistence). Such people can be denied permanent residents due to their enrollment in pub- CHIP beneficiaries often do not know which program permission to enter or become permanent residents. licly supported health coverage. Many more children is funding their health coverage).* Under a longstanding policy, the term has applied will likely be impacted by the rule’s “chilling effect” only to immigrants who rely on cash benefits for on safety-net program enrollment. This means par- most of their income, or to those institutionalized in ents may disenroll themselves or their children from Key Findings a government-funded facility. services due to fear that using such services could Review of MEPS data showed that nationwide: affect the child’s or family member’s immigration sta- The Trump administration released a proposed rule tus, even though the child or family member is not AA 4.8 million children in need of medical attention change (PDF) that would greatly increase the chances directly subject to the rule.4 In fact, there are reports lived in households with at least one noncitizen of an applicant being determined to be a public that this is already happening.5 History has demon- adult and were insured by Medicaid or CHIP. This charge. The proposed rule instructs immigration offi- strated this type of chilling effect.6 includes (among others): cials to take a broadened array of public benefits into AA 951,000 children with at least one potentially consideration for the first time, including nonemer- Research estimating the impact of the proposed life-threatening condition† gency Medicaid, Supplemental Nutrition Assistance rule change on children living with immigrant adults Program (SNAP), Medicare Part D low-income sub- exists.7 This paper’s research has a narrower focus, AA 814,000 children who were prescribed sidies, and housing assistance, such as Section 8 examining how this rule change might impact medications housing vouchers. The proposed rule invites com- Medicaid/CHIP enrollment among a particularly AA 681,000 newborns ments as to whether CHIP should be included in the vulnerable group: children “in need of medical atten- final rule, suggesting that its inclusion is still under tion.” The authors analyzed data from the Medical AA 354,000 children with musculoskeletal and consideration. Expenditure Panel Survey (MEPS) to assess the num- rheumatologic conditions like fractures and ber and health of children who live with a noncitizen joint disorders * or more on this methodological choice, see Methods on page 4. F Includes roughly 646,000 children with asthma, 279,000 children with influenza, 27,000 children with diabetes, 22,000 children with epilepsy, and 12,000 children with cancer. Numbers add up to † more than 951,000 since some children have more than one of these conditions. California Health Care Foundation 2 Drawing on the literature,8 the authors applied dis- Figure 1. Estimated Number of Children in Need of Medical Attention Who May Lose Health Coverage Due to Public Charge Rule Change enrollment rates from Medicaid/CHIP of 15% to 35%. (For more, see Methods and Figure 1.) Under this scenario, roughly: 4.8 million children in need of medical attention* are on Medicaid/CHIP and live with a noncitizen adult. Up to 1.7 million of these children could be disenrolled, including AA 700,000 to 1.7 million children in need of med- ical attention living with a noncitizen adult could (among others) approximately: be disenrolled from Medicaid/CHIP coverage. This includes (among others), approximately: AA 143,000 to 333,000 children with at least 143,000 to 333,000 children with at least one potentially one potentially life-threatening condition, life-threatening condition, including asthma, influenza, diabetes, including asthma, influenza, diabetes, epilepsy, or cancer epilepsy, or cancer AA 122,000 to 285,000 children on prescribed medications AA 102,000 to 238,000 newborns 122,000 to 285,000 children on prescribed medications AA 53,000 to 124,000 children with musculo- skeletal and rheumatologic conditions like fractures and joint disorders 102,000 to 238,000 newborns 53,000 to 124,000 children with musculoskeletal and rheumatologic conditions like fractures and joint disorders *Children with a current or recent medical diagnosis, disability, or need for specific care. Source: Author analysis based on data from the 2011 Medical Expenditure Panel Survey. Changing Public Charge Immigration Rules: The Potential Impact on Children Who Need Care 3 Discussion Broader Group of Children at Risk Methods for Negative Health Impacts from The authors examined 2011 MEPS data. To examine The Impact of Losing Coverage Losing Other Benefits immigration and citizenship files, researchers must An analysis of MEPS data also shows that, of the The coverage losses described above would link the MEPS data to the National Health Interview 12.1 million children living in a household with negatively affect children in need of medical Survey; 2011 is the last year for which these link- a noncitizen adult, 7.7 million were also in need attention and would likely contribute to future age files are publicly available without restriction. In of medical attention as the authors define it here. disability. Children who lose Medicaid/CHIP are their analysis, the authors included children who had Although not the primary focus of this analy- likely to become uninsured.9 Without cover- Medicaid or CHIP at any point in the prior year. sis, this broader population of children, including age, most families are unable to afford timely those not enrolled in CHIP/Medicaid, are at risk care, and children are likely to go without care or The authors considered children to have a current of other negative health impacts from losing experience delays in getting needed care.10 (or recent) medical diagnosis, disability, or need for access to vital benefits and services because Delayed or forgone care contributes to worsening specific care if they had the condition or received of this proposed rule change. For example, and more costly health conditions. For example, the care in the prior 12 months. Medical diagnoses parents choosing to disenroll from SNAP or delayed or forgone care for epilepsy results in poor included asthma, attention deficit disorder, influenza, housing assistance is likely to increase poverty outcomes11 like permanent brain injury. Epilepsy can respiratory conditions (excluding, in this category, and homelessness rates — two principal deter- lead to a need for costly care.12 Childhood deaths allergic rhinitis, viral upper respiratory infections, minants of health. In addition, SNAP improves from asthma, which are largely preventable with and influenza), gastrointestinal conditions, ear infec- health throughout a person’s life, reduces health appropriate care, cost society $265 million in lifetime tions, diabetes, musculoskeletal and rheumatologic care costs, and increases self-sufficiency in earnings losses annually.13 In fact, treatment for many conditions, epilepsy, mental health conditions, ear/ adulthood.16 While harmful to all children, the of these conditions is cost-effective and some (such nose/throat/mouth and sensory conditions, can- loss of such supports for families could take as vaccination for newborns) prevent future health cer, congenital abnormalities or developmental a particularly hard toll on children in need of care costs.14 disorders, and/or circulatory disorders. Potentially medical attention. life-threatening illnesses included asthma, influenza, Moreover, prevention and treatment of childhood diabetes, epilepsy, and cancer. Disability included In contrast, providing health care and benefits conditions prevents children from missing school, functional limitation, walking with assistive device or that helps children stay healthy, learn better, thus supporting their educational attainment. disability due to mental health condition (Columbia and minimize adult disability is likely to pay Treatment also allows parents to be more productive Impairment Scale >= 15). Children who needed dividends to the US economy and society over the (rather than staying home to care for children), off- specific care included children who were newborns long term. setting the cost of providing care. For example, loss (who require immunizations and screenings), were of parental productivity from asthma-related school prescribed medications, received therapy (physical, A 60-day public comment period is underway, after absence days was $719.1 million in 1996 alone.15 occupational, speech) or counseling, were pregnant, which the Department of Homeland Security is saw a specialist, had any illness/injury or condition required to review and respond to comments prior that required care right away, and/or received any to finalizing the rule. care, test, or treatment. California Health Care Foundation 4 The authors grouped children into two mutually About the Authors exclusive categories: (1) children living with at least Leah Zallman, MD, MPH, is director of research one noncitizen adult in the home and (2) children and Karen Finnegan, PhD, is an epidemiologist living with adults who were all citizens. All children, at the Institute for Community Health in Malden, citizen and noncitizen, were part of the analysis, and Massachusetts. Zallman is a physician at Cambridge the authors made no restriction on the relationship Health Alliance in Cambridge, Massachusetts and between the child and adults in the household. assistant professor of medicine at Harvard Medical Estimates of children at risk are higher than other School. David Himmelstein, MD, and Steffie published research on the potential impact of the Woolhandler, MD, MPH, are professors of public draft proposed public charge rules on citizen chil- health and health policy at the City University of dren’s coverage17 for two reasons: The authors focus New York School of Public Health at Hunter College. on all children (not citizen children alone), and they Himmelstein and Woolhandler are also lecturers in include children living with noncitizen adults who are medicine at Harvard Medical School. not parents, reflecting that many children live with nonparental adult caregivers (similar to estimates of Acknowledgments other impacts on children that consider children liv- The authors would like thank Samantha Artiga at the ing with any noncitizen to be at risk18). Kaiser Family Foundation and Jennifer Laird, PhD, at City University of New York for their review of earlier For estimates of potential changes in coverage due drafts of this document. to public charge policies, as others have done,19 the authors considered several scenarios using dif- About the Foundation ferent disenrollment rates for Medicaid and CHIP. The California Health Care Foundation is dedicated Drawing on previous research on the chilling effect to advancing meaningful, measurable improvements welfare reform had on enrollment among immigrant in the way the health care delivery system provides families,20 these scenarios illustrate the potential care to the people of California, particularly those impact if the draft proposed regulation were to take with low incomes and those whose needs are not effect. The authors began with a 25% disenrollment well served by the status quo. We work to ensure among children of immigrants, based on a study after that people have access to the care they need, when welfare reform that focused on children and included they need it, at a price they can afford. children who remained eligible for benefits after the welfare reform changes. Given the uncertainty about CHCF informs policymakers and industry leaders, the actual impact, we examined the impact if the dis- invests in ideas and innovations, and connects with enrollment rate was lower (15%) or higher (35%). changemakers to create a more responsive, patient- centered health care system. For more information, visit www.chcf.org. Changing Public Charge Immigration Rules: The Potential Impact on Children Who Need Care 5 Endnotes 1.Helena Bottemiller Evich, “Immigrants, Fearing Trump 7.Artiga, Damico, and Garfield, Potential Effects; 15.Wang, Zhong, and Wheeler, “Direct and Indirect Crackdown, Drop Out of Nutrition Programs,” Politico, Batalova, Fix, and Greenberg, Chilling Effects; “Only Costs.” September 3, 2018, www.politico.com; Jonathon Wealthy Immigrants Need Apply”: How a Trump Rule’s 16.Hilary W. Hoynes, Diane Whitmore Schanzenbach, Blizter, “Trump’s Public-Charge Rule Is a One-Two Punch Chilling Effect Will Harm the U.S., Fiscal Policy Institute, and Douglas Almond, “Long-Run Impacts of Childhood Against Immigrants and Public Assistance,” New Yorker, October 10, 2018, fiscalpolicy.org (PDF); and Jennifer Access to the Safety Net,” American Economic Review September 28, 2018, www.newyorker.com; and Yesenia Laird et al., Forgoing Food Assistance out of Fear: 106, no. 4 (April 2016): 903 – 34, doi:10.1257/ Amaro and Barbara Anderson, “‘We Don’t Know What to Changes to “Public Charge” Rule May Put 500,000 More aer.20130375; Steven Carlson and Brynne Keith- Do’ Proposed Trump Rule Strikes New Fear in Immigrant U.S. Citizen Children at Risk of Moving into Poverty, Jennings, “SNAP Is Linked with Improved Nutritional Communities,” Fresno Bee, October 9, 2018, Center on Poverty and Social Policy, April 5, 2018, Outcomes and Lower Health Care Costs,” Center www.fresnobee.com. static1.squarespace.com (PDF). on Budget and Policy Priorities, January 17, 2018, 2.Samantha Artiga, Anthony Damico, and Rachel Garfield, 8.Kaushal and Kaestner, “Welfare Reform”; Fix and Passel, www.cbpp.org; and “About WIC – How WIC Helps,” Potential Effects of Public Charge Changes on Health Trends; Kandula et al., “Unintended Impact”; Gold, United States Department of Agriculture Food and Coverage for Citizen Children, Kaiser Family Foundation, “Immigrants and Medicaid”; and Artiga, Damico, and Nutrition Service, last modified November 18, 2013, May 2018, kff.org (PDF). Garfield, Potential Effects. www.fns.usda.gov. 3.Lauren E. Wisk and Whitney P. Witt, “Predictors of 9.Artiga, Damico, and Garfield, Potential Effects. 17.Artiga, Damico, and Garfield, Potential Effects. Delayed or Forgone Needed Health Care for Families 10.Wisk and Witt, “Predictors.” 18.Fiscal Policy Institute,“Only Wealthy Immigrants;” with Children,” Pediatrics 130, no. 6 (December 2012): Batalova, Fix, and Greenberg, Chilling Effects; Samantha 1027– 37, doi:10.1542/peds.2012-0668. 11.Jonas Hillman et al., “Clinical Significance of Artiga, Rachel Garfield, and Anthony Damico, Estimated Treatment Delay in Status Epilepticus,” Intl. Journal 4.Jeanne Batalova, Michael Fix, and Mark Greenberg, Impacts of the Proposed Public Charge Rule on of Emergency Medicine 6, no. 6 (February 27, 2013), Chilling Effects: The Expected Public Charge Rule and Immigrants and Medicaid, Kaiser Family Foundation, doi:10.1186/1865-1380-6-6. Its Impact on Legal Immigrant Families’ Public Benefits October 11, 2018, www.kff.org. Use, Migration Policy Institute, June 2018, 12.Lena-Marie Kortland et al., “Cost of Status 19.Artiga, Damico, and Garfield, Potential Effects; www.migrationpolicy.org. Epilepticus: A Systematic Review,” Seizure 24 (January Fiscal Policy Institute, “Only Wealthy Immigrants.” 2015): 17– 20, doi:10.1016/j.seizure.2014.11.003. 5.Evich, “Immigrants”; Blizter, “Trump’s Public Charge 20.Kaushal and Kaestner, “Welfare Reform.” Rule”; and Amaro and Anderson, “‘We Don’t Know What 13.Li Yan Wang, Yuna Zhong, and Lani Wheeler, to Do.’” “Direct and Indirect Costs of Asthma in School- Age Children,” Preventing Chronic Disease 2, no. 1 6.Neeraj Kaushal and Robert Kaestner, “Welfare Reform (January 2005): 1–10, www.cdc.gov. and Health Insurance of Immigrants,” Health Services Research 40, no. 3 (June 2005): 697– 722, doi:10.1111/ 14.Cynthia G. Whitney et al., “Benefits from j.1475-6773.2005.00381.x; Michael E. Fix and Jeffrey Immunization During the Vaccines for Children Program S. Passel, Trends in Noncitizens’ and Citizens’ Use of Era — United States, 1994 – 2013,” Morbidity and Public Benefits Following Welfare Reform: 1994 – 97, Mortality Weekly Report 63, no. 16 (April 25, 2014): The Urban Institute, March 1, 1999, www.urban.org; 352 – 55, www.cdc.gov; Kristian Bolin and Lars Forsgren, Namratha R. Kandula et al., “The Unintended Impact “The Cost-Effectiveness of Newer Epilepsy Treatments: of Welfare Reform on the Medicaid Enrollment of A Review of the Literature on Partial-Onset Seizures,” Eligible Immigrants,” Health Services Research 39, Pharmacoeconomics 30, no. 10 (October 1, 2012): 903– no. 5 (October 2004): 1509– 26, doi:10.1111/j.1475- 23, doi:10.2165/11597110-000000000-00000; and Sean 6773.2004.00301.x; and Rachel Benson Gold, Sullivan et al., “The Cost-Effectiveness of an Inner-City “Immigrants and Medicaid After Welfare Reform,” Asthma Intervention for Children,” Journal of Allergy and Guttmacher Institute, May 1, 2003, www.guttmacher.org. Clinical Immunology 110, no. 4 (October 2002): 576 – 81, www.ncbi.nlm.nih.gov. California Health Care Foundation 6