State-Funded Home and Community-Based Services Programs for Older Adults Robert L. Mollica Kristin Simms-Kastelein National Academy for State Health Policy Portland, Maine Enid Kassner AARP Public Policy Institute State-Funded Home and Community-Based Services Programs for Older Adults Robert L. Mollica Kristin Simms-Kastelein National Academy for State Health Policy Portland, Maine Enid Kassner AARP Public Policy Institute AARP’s Public Policy Institute informs and stimulates public debate on the issues we face as we age. Through research, analysis and dialogue with the nation’s leading experts, PPI promotes development of sound, creative policies to address our common need for economic security, health care, and quality of life. The views expressed herein are for information, debate, and discussion, and do not necessarily represent official policies of AARP. 2009-06 April 2009 © 2009, AARP Reprinting with permission only AARP Public Policy Institute 601 E Street, NW, Washington, DC 20049 http://www.aarp.org/ppi This page intentionally left blank ii TABLE OF CONTENTS EXECUTIVE SUMMARY ..................................................................................................V Introduction and Background ....................................................................................... v Findings......................................................................................................................... v Discussion ................................................................................................................... vii INTRODUCTION............................................................................................................... 1 BACKGROUND AND METHODOLOGY ......................................................................... 3 FINDINGS ......................................................................................................................... 4 Program Funding .......................................................................................................... 4 Number of programs ..................................................................................................... 6 Revenue sources............................................................................................................ 7 Locally Funded Programs ............................................................................................. 7 Eligibility Criteria—Populations Served ...................................................................... 7 Number of Participants Served ..................................................................................... 8 Financial Eligibility Criteria ......................................................................................... 8 Program Services .......................................................................................................... 9 Cost Management Strategies....................................................................................... 11 Populations Served in Relation to Medicaid............................................................... 12 Role of the Care Manager ........................................................................................... 13 Consumer Direction .................................................................................................... 14 Quality Measurement.................................................................................................. 14 DISCUSSION.................................................................................................................. 15 APPENDIX A: REPORTING CHANGES BETWEEN 2002 AND 2007.......................... 17 APPENDIX B: SURVEY OF STATE-FUNDED HOME AND COMMUNITY-BASED LONG-TERM CARE PROGRAMS FOR OLDER PEOPLE ........................................... 19 Definitions of Single-service and Multi-service HCBS Programs ............................. 19 Part I. Program Information........................................................................................ 20 Part II: Description of Multi-Service HCBS Programs .............................................. 22 APPENDIX C: COMPARATIVE STATE TABLES ......................................................... 27 iii This page intentionally left blank iv State-Funded Home and Community-Based Services Programs for Older Adults EXECUTIVE SUMMARY INTRODUCTION AND BACKGROUND Demand for home and community-based services (HCBS) continues to increase as the nation’s population ages and people with disabilities live longer due to improved medical care. Medicaid is an important source of long-term care (LTC) financing for low-income older adults, but many people with disabilities have too much income or too many assets to qualify for Medicaid. People with disabilities who cannot afford to pay privately for these services need help to maintain their independence. Even though they receive no federal “match” for these programs, nearly every state provides at least some of its own funds to address the service and support needs of people whose needs are not met by Medicaid. Yet the current economic crisis may jeopardize these vital state-funded programs. Despite increasing demand, many states are considering cuts to these services, in an attempt to balance their budgets. AARP issued two previous reports on HCBS programs funded by state revenues: in 1997 and 2004, based on data from fiscal year (FY) 1996 and FY 2002. This report updates those studies. States use their own revenues to support two types of programs: programs that offer a single service to eligible older adults and programs that cover multiple services. Expenditures for state-funded programs are not reported to any federal agency. The Centers for Medicare & Medicaid Services (CMS) contracts with Thomson Reuters to analyze and report annually on Medicaid expenditures, but the report does not include state-funded HCBS data. However, including these programs presents a more complete picture of each state’s progress toward balancing its LTC system. FINDINGS Program Funding  Overall, states have maintained funding for state-funded HCBS programs over the past decade. States spent $1.2 billion on HCBS programs in FY 2007, compared with $1.4 billion in FY 2002 and $1.2 billion in 1996. Spending for single-service programs rose to $136.1 million in FY 2007, a 36 percent increase compared with $98 million in FY 2002. Multiservice program spending was $1.1 billion in FY 2007 versus $1.3 billion in FY 2002.  Multiservice program funding increased more than13 percent in eight states: Arizona, Connecticut, Hawaii, Iowa, Kentucky, New York, North Carolina, and Rhode Island.  When spending on state-funded programs is added to each state’s Medicaid LTC spending for older people and adults with physical disabilities, the amount of public funds devoted to HCBS increases by 1.3 percentage points. While this overall increase is small, the impact is dramatic in some states. For example, Indiana’s CHOICE program nearly doubles the state’s HCBS effort, from 5.5 percent to 10.7 percent. v State-Funded Home and Community-Based Services Programs for Older Adults  The average program expenditure in FY 2007 ranged from less than $500 per participant in 14 single-service and 11 multiservice programs to more than $5,000 in 8 single-service and 8 multiservice programs.  Spending rose more than 13 percent in eight multiservice programs. Number of Programs  In 2007, 25 states reported operating a total of 53 single-service programs. By comparison, in 2003, 21 states reported 41 programs and, in 1996, 30 states listed 69 programs.1 Only 3 states—Alabama, Mississippi, and Montana—do not operate any state-funded HCBS programs.  Forty states and the District of Columbia reported spending for 63 multiservice programs2 in 2007, compared with 51 programs in 37 states in 2003 and 53 programs in 38 states in 1996. Revenue Sources  General revenues are the most common source of financing.  Nine states indicated that local funding, mostly from counties, is available for HCBS. Eligibility Criteria—Populations Served  State-funded programs frequently serve more than one population. However, 24 single-service programs serve persons age 60 and older exclusively and 19 cover all adults with physical disabilities. Nine single-service programs provide services to persons with Alzheimer’s disease or other dementia. Number of Participants Served  State-funded programs served 1.2 million people in FY 2007. More than 311,000 people were served by single-service programs, and 922,574 were served by multiservice programs. Financial Eligibility Criteria  The majority of programs do not use financial eligibility criteria to restrict program eligibility.  Only 10 single-service programs use an income limit.  Only 16 multiservice programs limit the amount of income needed to qualify for the program. 1 Information from the 1996 and 2003 surveys is from Laura L. Summer and Emily S. Ihara, State-Funded Home and Community- Based Service Programs for Older People, AARP Public Policy Institute, Washington, DC, 2004. 2 Information about program characteristics in the following section is based on data on 60 multiservice programs. Information was not reported for three programs. vi State-Funded Home and Community-Based Services Programs for Older Adults  Asset tests are used to target eligibility in only 8 single-service programs and 15 multiservice programs. Program Services  Personal care, care management, homemaker services, and respite care were the most frequently offered services in 2007; but these and many other services were offered by fewer programs compared with 2003 and 1996. The only service that has grown in availability is emergency response systems. Cost Management Strategies  Nearly two-thirds (63 percent) of state-funded HCBS programs ask participants to share in the cost of services received. Populations Served in Relation to Medicaid  State-funded programs typically are designed to supplement Medicaid programs or to serve persons who are not eligible for Medicaid LTC state plan or waiver services. Role of the Care Manager  Care management is an important component of most multiservice programs (75percent). Care managers typically use information gathered through an assessment to determine functional eligibility for a program or service; develop a care plan; authorize, coordinate, and monitor services; and complete reassessments. Consumer Direction  Only 19 multiservice programs reported offering participants the opportunity to direct their own care. Quality Measurement  Satisfaction surveys, monitoring by care managers, and provider monitoring activities were the most prevalent quality measurement strategies for multiservice programs. DISCUSSION State-funded programs function as an important part of the overall HCBS system in many states, even though spending for them is significantly less than spending for Medicaid waiver and state plan personal care. However, combining Medicaid and state-funded HCBS expenditures increased 2007 HCBS spending for older adults between 2.0 and 6.2 percentage points in 16 states. Although state programs fill some gaps in what Medicaid provides, these programs are far too small to make up for cuts in Medicaid HCBS programs. The percentage of programs covering specific services declined compared with the 2003 survey. Some state-funded HCBS programs contribute significantly to LTC delivery and serve a large number of beneficiaries, but most do not offer a comprehensive package of benefits. When resources do not keep pace with inflation and demand, states may offer fewer services to maximize the number of people served. vii State-Funded Home and Community-Based Services Programs for Older Adults Although many states are contending with reduced general revenues and competition from other program priorities, multiservice program funding increased more than 13 percent in eight states (Arizona, Connecticut, Hawaii, Iowa, Kentucky, New York, North Carolina, and Rhode Island). Two states (Maine and Minnesota) experienced large reductions in spending. Multiservice state-funded programs often use the same care managers in both state-funded and Medicaid-funded programs. This form of coordination streamlines access to programs and services for people with disabilities. However, the current economic slowdown may jeopardize state-funded HCBS programs, as states struggle to balance their budgets. According to the National Association of State Units on Aging, reductions to these programs may increase the rate of institutionalization, which could result in higher state and federal costs. viii State-Funded Home and Community-Based Services Programs for Older Adults INTRODUCTION Demand for home and community-based services (HCBS) continues to increase as the nation’s population ages and people with disabilities live longer due to improved medical care. Long-term care (LTC) spending totaled $177.6 billion in 2006; Medicaid accounted for the largest share of spending (40 percent), followed by Medicare and out-of-pocket (23 and 22 percent, respectively).3 The need for long-term services and supports (LTSS) is projected to increase with the aging of the population, despite declining disability rates. Using the Home and Community-Based Services Population Estimating Tool developed by the Lewin Group, 2.7 million Americans over age 65 who live in the community have an impairment in at least one activity of daily living (ADL), such as bathing, dressing, eating, toileting, or Figure 1 The number of Americans 65+ with ADL ambulation; and 6.1 million have an limitations will increase from 2005 to 2020 impairment in at least one instrumental 8.8 activity of daily living (IADL), such as 10 7.6 housekeeping, meal preparation, 8 Millions 6.1 6 laundry, using the telephone, or taking 3.4 3.9 medication, or an ADL.4 The number 4 2.7 2 of Americans age 65 and older with 0 one or more IADL impairments is Any impairment 1+ ADL projected to rise to 7.6 million by 2015 and to 8.8 million by 2020, while the 2005 2015 2020 number of people age 65 and older with one or more ADL impairments is projected to rise to 3.4 million by 2015 Figure 2 and 3.9 million by 2020 (see figure 1). The balancing of Medicaid long-term care spending varies by population In FY 2007, 32.5 percent of all 73% 80% Medicaid spending paid for LTC 58% 63% services. Of this Medicaid LTC 60% 42% spending, 42 percent paid for HCBS 40% 37% 27% and 58 percent for institutional care. However, 63 percent of spending for 20% persons with mental retardation/ 0% developmental disabilities (MR/DD) Institutions Community paid for services in the community, compared with 27 percent for older All groups Elderly & Disabled MR/DD adults and people with physical disabilities (see figure 2).5 As reported 3 Kaiser Commission on Medicaid and the Uninsured, Medicaid and Long-Term Care Services and Supports, February 2009. Available at http://www.kff.org/medicaid/upload/2186_06.pdf . These data do not include services financed primarily through Medicaid HCBS waivers. 4 The HCBS Population Estimating Tool can be accessed at http://lewingroup.liquidweb.com/cgi-bin/woodwork.pl/. 5 Brian Burwell, Kate Sredl, and Steve Eiken, Medicaid Long-Term Care Expenditures in FY 2007, Thomson Reuters, September 2008. 1 State-Funded Home and Community-Based Services Programs for Older Adults by Burwell et al (2008), HCBS data for FY 2007 include personal care state plan services, HCBS §1915 (c) waiver programs for older adults and people with physical disabilities, some §1115 demonstration services, and HCBS provided under §1929. Data in figure 2 do not include Medicaid home health services, as these services are predominantly postacute care, not LTC. A recent AARP report6 highlighted the progress states have made in improving the balance between institutional and community spending. HCBS spending for older people and adults with physical disabilities increased from 12 percent in 1995 to 25 percent in 2006. The number of Medicaid beneficiaries in these population groups served in the community rose 43 percent between 1999 and 2004, compared with a 6 percent increase in beneficiaries served in nursing homes. Despite this progress, wide variations exist among states. The percentage of Medicaid spending on HCBS for older people and adults with physical disabilities ranged from more than 50 percent in Alaska, California, Oregon, New Mexico, and Washington to less than 15 percent in 11 states (Alabama, Delaware, Indiana, Mississippi, New Hampshire, North Dakota, Pennsylvania, Rhode Island, South Dakota, Tennessee and Utah (Medicaid spending data on HCBS do not include services, such as adult day care, that are covered in 12 states under the Medicaid state plan or some state programs that operate under §1115 demonstration waiver programs, such as those in Arizona and Vermont).7 Medicaid spending for all LTC services (excluding home health, which provides predominantly postacute services) rose from $51.8 billion in FY 1996 to $97.3 billion in FY 2007—an 86 percent increase. Spending for HCBS waiver programs for all populations increased from $6.2 billion to $27.5 billion (343 percent) in the same period, and state plan personal care spending increased from $2.9 billion to $10.4 billion, or 255 percent.8 Figure 3 compares Medicaid Figure 3 spending for personal care and HCBS Medicaid HCBS spending has increased but waivers (HCBS) with spending for remains behind institutional spending nursing facilities (NF) and $50 $47.0 intermediate care facilities (ICF). $40 $31.0 While the substantial increase in $27.5 Medicaid spending on HCBS Billions $30 represents meaningful progress in $20 $12.0 helping people with disabilities $9.7 $10.4 $10 $6.2 receive services in the setting of their $2.9 choice, many people with disabilities $0 either are not eligible for Medicaid or 1996 2007 have needs that are not fully met by Personal care HCBS NF ICF Medicaid. To fill some of these service gaps, states operate an array of programs with state revenues. 6 Enid Kassner, Susan Reinhard, Wendy Fox-Grage, Ari Houser, Jean Accius, Barbara Coleman, and Dann Milne, A Balancing Act: State Long-Term Care Reform, AARP, Washington, DC, July 2008. 7 Eiken and Burwell, Ibid. 8 Ibid. 2 State-Funded Home and Community-Based Services Programs for Older Adults Indeed, state-funded HCBS programs preceded Medicaid’s expansion into HCBS, which occurred when the §1915 (c) waiver programs were implemented in 1981. Programs in Connecticut, Illinois, Massachusetts, Pennsylvania, and other states began as early as the mid-1970s. State-funded programs have some advantages over Medicaid; primarily, they allow states the flexibility to design their own service package and eligibility criteria.9 Yet the current economic crisis may jeopardize state-funded programs. A recent survey of its members by the National Association of State Units on Aging (NASUA) reported that 67 percent of states had budget shortfalls.10 It noted that, “The demand for state services in an economic slowdown increases just at a time when state budgets are tightening.”11 And while NASUA reported that states are experiencing increased requests for services, it also indicated that many states intend to cut aging programs that are solely state-funded,12 such as those described here. BACKGROUND AND METHODOLOGY AARP issued two previous reports on HCBS programs funded by state revenues (1997 and 2004) based on data from FY 1996 and FY 2002. This report updates those studies. States use their own revenues to support two types of programs: programs that offer a single service to eligible older adults and programs that offer multiple services based on the person’s needs. The definition of single- and multiservice programs is the same in all three reports:  State-funded single-service HCBS programs provide a single service to older people, such as homemaker services, home-delivered meals, attendant care, or respite care.  State-funded multiservice HCBS programs primarily target older people with LTC needs (programs that serve other populations in addition to older people are included in the survey) and provide two or more services, not counting case management. The 2008 survey requested data on both types of programs. The survey instrument (see Appendix B) included minor revisions to the instrument used for the 2003 study. The survey was sent electronically to all directors of State Units on Aging in April 2008. Follow-up phone interviews and e-mails were used to clarify survey responses. Expenditure data and updated program information were received from all 50 states and the District of Columbia.13 The survey requested information about the FY 2007 state appropriation, the number of persons served, the source of funding, eligibility criteria, cost containment strategies, services available, case management tasks, the opportunity 9 Diane Justice, Lynn Etheredge, John Luehrs, and Brian Burwell. State Long-Term Care Reform: Development of Community Care Systems in Six States, National Governors’ Association, Washington, DC, April 1988. 10 National Association of State Units on Aging. The Economic Crisis and Its Impact on State Aging Programs: Results of All-State Survey, NASUA, Washington, DC, December 2008. 11 Ibid. 12 Ibid. 13 Expenditure data for Wisconsin’s Community Options Program is from a report for 2006 to the state legislature. 3 State-Funded Home and Community-Based Services Programs for Older Adults for consumer direction, and quality assurance strategies. Appendix C presents survey data for each state program in a series of tables. This report supports AARP’s continuing interest in understanding trends in the provision of HCBS that support the preference of older adults to live independently in the community. FINDINGS PROGRAM FUNDING Finding: Overall, states have maintained funding for state-funded HCBS programs over the past decade. States spent $1.2 billion on state-funded HCBS programs in FY 2007, compared with $1.4 billion in FY 2002 and $1.2 billion in 1996. Spending for single-service programs rose to $136.1 million in FY 2007, compared with $98 million in FY 2002, a 36 percent increase. Multiservice program spending was $1.1 billion in FY 2007 versus $1.3 billion in FY 2002. Even though they receive no federal “match” for these programs, nearly every state provides at least some of its own funds to address the service and support needs of people whose needs are not met by Medicaid. Despite an apparent drop in funding for multiservice programs, spending in FY 2007 is comparable to what was reported in FY 2002. In FY 2002, the largest state-funded program was California’s Residual In-Home Supportive Services (IHSS) program, which accounted for 24 percent of all state spending on multiservice programs in that year. Almost all of this $320 million program was converted from state and county revenues to a Medicaid §1115 demonstration waiver program and thus is not included the current survey.14 Adjusting for this change and several differences in the way spending was reported, overall spending is similar to what was reported for FY 2002. Changes in the way spending was reported between FY 2002 and FY 2007 are explained in appendix A. Expenditures for state-funded programs are not reported to any federal agency. The Centers for Medicare & Medicaid Services (CMS) contracts with Thomson Reuters to analyze and report annually on Medicaid expenditures, but the report does not include state-funded HCBS data. However, including these programs presents a more complete picture of each state’s progress toward balancing its LTC system. Finding: When spending on state-funded programs is added to each state’s Medicaid LTC spending for older people and adults with physical disabilities, the amount of public funds devoted to HCBS in 2007 increases by 1.3 percentage points. While this overall increase is small, the impact is dramatic in some states. For example, the funds spent on HCBS increase by 2.0 or more percentage points in 16 states and the District of Columbia. Indiana’s state-funded CHOICE (Community and Home Options to 14 State officials estimated that approximately 2,000 participants remain in the IHSS residual program. Expenditures for this group could not be reported. 4 State-Funded Home and Community-Based Services Programs for Older Adults Institutional Care for Elderly and Disabled) program nearly doubles the state’s HCBS effort, from 5.5 percent to 10.7 percent. The funds spent on HCBS programs increase by 6.2 percentage points in Illinois and 5.7 percentage points in Massachusetts when state- funded programs are included. Other notable increases were found in the District of Columbia and South Dakota (4 percentage points), North Dakota (3.7 percentage points), Pennsylvania (3.6 percentage points), Wyoming (3.3 percentage points), and Kentucky (3.2 percentage points). Single-Service Programs The largest single-service, state-funded program operates in New Jersey; it spent $5.4 million in FY 2007 on respite care services to 4,200 participants. Single-service programs in California, Kentucky, and Vermont each spent more than $4 million in FY 2007. A home-delivered meals program in Illinois reported spending $8.5 million in general revenues to supplement federal Older Americans Act spending. Finding: The average single-service program expenditure in FY 2007 ranged from less than $500 per participant in 14 programs to more than $5,000 in 8 programs. Multiservice Programs Finding: Spending rose more than 13 percent in eight multiservice programs. Spending more than doubled in New York’s Expanded In-Home Services for the Elderly program and increased substantially in seven other multiservice programs: Arizona (38 percent), Connecticut (42 percent), Hawaii (31 percent), Iowa (50 percent), Kentucky (13 percent), North Carolina (22 percent), and Rhode Island (21 percent). Spending declined more than 50 percent in Maine and by 44 percent in Minnesota. Total program spending ranged from a Figure 4 low of $36,216 for a caregiver resource Most state-funded multiservice programs spent less than $10 million center in Georgia to $162 million in Pennsylvania. Figure 4 shows the 50% 44% 45% percentage of state multiservice 40% programs by overall expenditure level. 35% Most are relatively small—44 percent 30% 25% 26% of programs allocate less than $5 20% 14% million in state funds—but 14 percent 15% 12% of programs spent over $40 million. 10% 5% 2% 2% Pennsylvania’s OPTIONS program 0% spent $162 million to serve 51,288 Under $5-10 $10-20 $20-30 $30-40 Over participants.15 The Illinois Community $5 $40 Care Program, which serves Medicaid Spending in Millions 15 Note: The OPTIONS program is part of the Aging Services Block Grant, and the number of participants reported is based on participants who receive case management and other OPTIONS services. 5 State-Funded Home and Community-Based Services Programs for Older Adults HCBS waiver and non-waiver participants, spent $147 million on 21,760 non-waiver participants. The Massachusetts Home Care Program also serves waiver and non-waiver participants, and spent $132 million on non-waiver participants. Massachusetts also operates an Enhanced Community Options Program with expenditures totaling $40 million for 7,166 participants. New York spent $53 million through its Expanded In- Home Services for the Elderly Program and another $19 million for Community Services for the Elderly. Finding: Average spending per beneficiary varied widely in multiservice programs. It ranged from less than $500 per person in 11 programs to more than $5,000 in 8 programs. NUMBER OF PROGRAMS Finding: In 2007, 25 states reported operating a total of 53 single-service programs. By comparison, in 2003, 21 states reported 41 programs, and in 1996, 30 states listed 69 programs.16 Several states operate multiple single-service programs: California, Connecticut, Idaho, Kentucky, Maine, and Washington each offer three separate single-service options. Two single-service programs previously reported in Alaska were consolidated and reported as a multiservice program in 2008. On the other hand, South Dakota reorganized a multiservice program into three single-service programs. The most common single- service program is adult day care, which is available in 11 states. Eight states cover respite services and home-delivered meals or other nutrition services. Only three states— Alabama, Mississippi, and Montana—do not operate any state-funded HCBS programs. Finding: Forty states and the District of Columbia reported spending for 63 multiservice programs17 in 2007, compared with 51 programs in 37 states in 2003 and 53 programs in 38 states in 1996. Eight states reported additional programs in 2007: California, Colorado, Connecticut, Idaho, Kentucky, Massachusetts, New York, and Tennessee. Programs in Missouri and North Dakota were not reported in the 2003 survey. A program previously reported as a state-funded multiservice program in Idaho was dropped from this report because it provides only the state match for Older Americans Act services, and no additional state funds were reported. New Mexico and Texas were listed as providing “multiservice group” programs in 2003. In this report, they are listed as Area Agencies on Aging (AAA) Services programs, since the funds are allocated to AAAs to supplement Older Americans Act services beyond what is required in state matching funds. The survey sought information on programs that were funded solely by state revenues. However, some states operate programs that combine funding from two or more sources. Ohio allocates federal (i.e., Older Americans Act Title III B, C, and E) and state funds (e.g., State General Revenue Funded Senior Community Services and Alzheimer’s Respite funds) to 12 Area Agencies on Aging. In some areas, these funds are supplemented by 16 Information from the 1996 and 2003 surveys is from Summer and Ihara, 2004. 17 Information about program characteristics in this section is based on data on 60 multiservice programs. Information was not reported for three programs. 6 State-Funded Home and Community-Based Services Programs for Older Adults local funds generated through senior services property tax levies. These programs provide individual services (e.g., home-delivered meals, transportation, respite care, caregiver education) and organize case-managed care coordination programs to provide in-home services for frail persons and respite for their caregivers. Table 1 Number of States Reporting Expenditures for State-Funded Programs 1996 2003 2007 Program States Programs States Programs States Programs Single service 30 69 21 41 25 53 Multiservice 38 53 37 51 41 63 REVENUE SOURCES Finding: General revenues are the most common source of financing. Most states use general revenues to fund HCBS. A few states use casino revenue, lottery revenue, or local funds. New Jersey dedicated more than $10 million from casino revenue to three programs, and West Virginia relied on lottery revenue to fund an in-home respite program and a multiservice program. South Carolina used bingo revenue to support its program. Iowa created a Senior Living Trust Fund that used investment income to support services. Pennsylvania committed $173.4 million from lottery revenue to its OPTIONS program and Over 60 Attendant Care Program. LOCALLY FUNDED PROGRAMS Finding: Nine states indicated that local funding, mostly from counties, is available for HCBS. Fifty-six of Ohio’s 88 counties support senior services programs through county levies, which generate approximately $100 million. One county in Utah received increased tax revenues from an expansion of a shopping center. The county developed a program similar to the state’s home and community-based alternatives program for residents whose incomes were slightly higher than the financial eligibility standard used by the state program. Forty-three of the 115 counties in Missouri have local senior tax levy funds that may pay for HCBS or other services. The funds are governed by local senior tax levy boards that have full discretion on how the funds are allocated and targeted to specific programs or services. Not all senior tax levy boards provide HCBS services. The survey did not request detailed information about the amount of funding, the services offered, and other aspects of locally funded programs. ELIGIBILITY CRITERIA—POPULATIONS SERVED Finding: State-funded programs frequently serve more than one population. However, 24 single-service programs serve persons age 60 and older exclusively, and 19 cover all adults with physical disabilities. Nine single- service programs provide services to persons with Alzheimer’s disease or other dementia. 7 State-Funded Home and Community-Based Services Programs for Older Adults Figure 5 Kentucky’s personal care attendant State-funded programs may serve more program serves people who meet than one long-term care population the criteria for admission to a 2 nursing facility. Maryland’s Senior Other 1 Assisted Living Group Home Alzheimer's 4 9 Subsidy serves adults age 62 and Adults/elders 13 older. Programs in Nebraska, New 19 Hampshire, New Jersey, Ohio, 65+ 0 6 South Dakota, and Washington are 60+ 36 available to persons who have 24 caregivers. Thirty-six multiservice 0 10 20 30 40 programs serve adults age 60 and older; 6 programs are limited to Single-service Multiservice persons age 65 and older. Thirteen programs cover older people and adults with physical disabilities, while four serve people with dementia (see figure 5). NUMBER OF PARTICIPANTS SERVED Finding: State-funded programs served 1.2 million people in FY 2007. More than 311,000 people were served by single-service programs and 922,574 were served by multiservice programs. Significant differences were noted between FY 2002 and FY 2007 data. The vast majority of the 70,000 people served by California’s In-Home Supportive Services Residual Program in FY 2002 received personal care services 2007 under the Medicaid §1115 waiver demonstration program in FY 2007. An estimated 2,000 people continue to receive personal care services through the IHSS residual program. Illinois reported the number of people served by state revenues and Medicaid waiver programs in FY 2002, but the 2007 data included only participants served through state revenues. Pennsylvania reported the total number of persons served by the Aging Services Block Grant in FY 2002, which combines funding from several sources. The state reported that 51,288 people served in FY 2007 received care management and other services from the OPTIONS component of the block grant. Participants in Georgia’s Community-Based Services Program represent a duplicated count of persons who received any of the services covered by the program. FINANCIAL ELIGIBILITY CRITERIA Finding: The majority of programs do not use financial eligibility criteria to restrict program eligibility. Only 10 single-service programs use an income limit. Six programs use a specific amount of income, while others use a percentage of the federal poverty level (FPL) or state median income. Sixteen multiservice programs limit the amount of income needed to qualify for the program. Five programs set eligibility in relation to FPL ($10,210 a year in 2007); three programs use the Supplemental Security Income (SSI) payment standard; and three programs set eligibility in relation to state median income. Five programs set income 8 State-Funded Home and Community-Based Services Programs for Older Adults limits that are not related to a recognized income standard. Financial eligibility is related to Medicaid standards in two programs. Asset tests are used to target eligibility in only 8 single-service programs and 15 multiservice programs. Higher levels were established for programs that serve family caregivers. Thresholds varied widely. Among single-service programs, asset limits ranged from $2,000 in North Carolina to $80,000 in Connecticut’s Alzheimer’s Respite Program. Asset limits for multiservice programs ranged from $2,000 per person/$3,000 per couple in North Dakota to $500,000 for an individual in Indiana. Minnesota is unique in using a combined income and asset level that equals the cost of 135 days in a nursing facility. PROGRAM SERVICES Finding: Personal care, care management, homemaker services, and respite care were the most frequently offered services in 2007, but these and many other services were offered by fewer programs compared with 2003 and 1996. The only service that has grown in availability is emergency response systems. The 1996 and 2003 surveys listed 12 services that could be provided by multiservice programs: skilled nursing, home health aide, personal care, homemaker, chore services, respite care, case management, home-delivered meals, transportation, adult day care, emergency response systems, and home repairs/modifications. The 2003 survey added four response options: home health care, habilitation, special medical equipment and supplies, and needs assessment services. The 2007 survey added assisted living and adult foster care, for a total of 18 services (see appendix C, tables 13a and 13b). Four programs covered adult foster care; none of the programs covered services in assisted living settings. In the 2003 survey, three states reported covering all 16 services listed that year: Minnesota’s Alternative Care Program, Pennsylvania’s OPTIONS program, and Wisconsin’s Community Options Program (COP). In the 2008 survey, Minnesota continued to cover the 16 services and Indiana’s CHOICE program expanded to cover all 16 services, but Pennsylvania did not include skilled nursing services and Wisconsin did not report on COP. The number of services covered in 2007 and 2003 is shown in figure 6. Ten states covered one or two of the listed services; however, they may cover additional services that were not listed but included under “other services.” Figure 6 Programs vary in the number of services covered All 16 2 3 12 to 15 11 13 7 to 11 21 21 3 to 6 14 14 2007 2003 1 or 2 1 10 0 5 10 15 20 25 9 State-Funded Home and Community-Based Services Programs for Older Adults Coverage shifted significantly between 1996 and 2007. Personal care and homemaker were the most commonly provided services in 1996: covered by 96 percent of the programs. In 2007, personal care and care management were covered by 75 percent of programs; homemaker services were covered by 73 percent. Coverage of home health aide services fell significantly, from 72 percent in 1996 to 37 percent in 2007. Coverage of skilled nursing services also fell, from 43 percent to 13 percent. Emergency response system coverage rose from 42 percent to 48 percent (see table 2). Table 2 Percentage of Multiservice Programs Covering Each Service 1996 2003 2007 Programs (n = 53) (n = 51) (n = 60*) Skilled nursing 43 22 13 Home health aide 72 37 37 Home health care NA 24 18 Personal care 96 76 75 Homemaker 96 86 73 Chore services 91 61 53 Respite care 85 82 73 Care management 80 75 75 Home-delivered meals 61 67 55 Transportation 66 73 57 Adult day care 76 80 68 Habilitation NA 8 10 Emergency response systems 42 47 48 Specialized medical equipment/supplies NA 53 35 Assessment services NA 53 43 Home repair/modifications 50 63 58 Assisted living NA NA 0 Adult family care NA NA 7 * Note: Percentages are based on data submitted for 60 multiservice programs. Program information for three programs was not provided. States were asked to report additional services that were not included in the list, and 27 states did so. Colorado covers health promotion, including art therapy, music therapy, dental, hearing, immunizations, medication management screening and education, insurance counseling, physical fitness, and vision. Mental health counseling is available in Connecticut and Iowa. Florida covers memory disorder clinics, caregiver training, and support groups under the Alzheimer’s Disease Initiative. In addition to adult foster care, North Dakota covers family home care for providers who are related to the beneficiary. Emergency shelter, companion, home-based wandering devices, medication-dispensing systems, and transitional assistance are covered in Massachusetts. Grocery shopping and laundry, which are covered as part of a homemaker service, are also covered as discrete and separate services in Massachusetts. 10 State-Funded Home and Community-Based Services Programs for Older Adults COST MANAGEMENT STRATEGIES Finding: Nearly two-thirds (63 percent) of state-funded HCBS programs ask participants to share in the cost of services received. State programs are often designed to manage costs. The survey sought information about three strategies used by multiservice programs: service limits, cost caps, and participant cost sharing. Twenty-seven percent of the programs reported placing limits on the services that may be authorized and capping the cost of the care plan, while 63 percent use cost-sharing strategies. The percentage of state-funded programs that use spending caps declined from 58 percent to 27 percent between FY 2002 and FY 2007. The application of cost sharing requirements also declined, while the use of service limits increased slightly (see figure 7). Service limits are usually set in terms of hours/weeks or a dollar value per day or per month for a specific service. Forty percent of single-service programs have a cost-sharing component to their service. Twenty-one percent charge a sliding fee that is typically scaled to the FPL, and 8 percent charge participants 20 percent of the cost of the service. Figure 7 Most multiservice programs utilize one or more cost containment strategies 63% Cost sharing 59% 75% 27% Service limits 25% 23% 27% Caps on spending 25% 58% 0% 10% 20% 30% 40% 50% 60% 70% 80% 1996 2003 2007 Service limits are also included in 16 multiservice programs. For example,  Alaska limits respite services to 40 hours a month and chore services to 10 hours a month in the Senior In-Home Services program.  Maine allows two weeks of institutional respite care.  Nevada has a two-week limit on respite services.  North Dakota and Texas place a dollar limit on respite services.  Nevada limits adult day care to one day a week.  West Virginia sets hourly limits for personal care and other services. 11 State-Funded Home and Community-Based Services Programs for Older Adults States using cost caps reported a variety of strategies. Services are capped at a specified amount per month in 16 programs. Three programs set their caps in relation to the cost of care in a nursing home.  Connecticut limits the cost to 25 percent of the cost of care in a nursing facility for people who are at risk and 50 percent for people who meet the nursing facility level of care.  Indiana bases its limit on the cost of three months of care in a nursing facility.  Maine varies its cap on the basis of levels of care and assessment information.  Kansas, Missouri, Nebraska, Nevada, North Dakota, Pennsylvania, Utah, and West Virginia use flat dollar caps. Pennsylvania designed an exceptions process for participants whose service needs exceed the $714.60 monthly cap. The quality and compliance specialist at the state Office of Long-Term Living reviews and approves requests based on documentation submitted by the Area Agency on Aging case manager. Cost sharing was reported by 63 percent of the multiservice programs, and half use a sliding fee scale. Participants are charged a fee when the income reaches a set percentage of the FPL; for example,  100 percent in Minnesota and Pennsylvania  125 percent in Georgia  130 percent in Kentucky  150 percent in Hawaii and Indiana Nebraska and Nevada dropped their cost sharing requirement in 2008. Nevada found that only a few participants were required to pay a fee, and it was not cost-effective to administer the fee. POPULATIONS SERVED IN RELATION TO MEDICAID Finding: State-funded programs typically are designed to supplement Medicaid programs or to serve persons who are not eligible for Medicaid long-term care state plan or waiver services. The survey collected data on five variables related to Medicaid eligibility. States reported that 83 percent of the multiservice programs (50 programs) serve persons who are not financially eligible for Medicaid. Of these 50 programs, only 4 programs were limited to this group. Others serve both persons who are not financially eligible for Medicaid and those who are financially eligible. Sixty-five percent (39 programs) serve persons who are financially eligible for Medicaid but do not meet the waiver program’s criteria for functional level of care; 63 percent (38 programs) enroll applicants who are on a waiting list for HCBS; 50 percent (30 programs) serve people who also receive waiver services; and 45 percent (27 programs) serve people who are waiting to enter a nursing facility (see figures 8 and 9). 12 State-Funded Home and Community-Based Services Programs for Older Adults Figure 8 Populations served by state-funded programs in relation to Medicaid eligibility and status Waiting admission to NF 27 Receiving HCBS 30 HCBS wait list 38 Functionally ineligible 39 Financially ineligible 50 0 20 40 60 Number of programs Figure 9 Percentage of state-funded programs serving each long-term care population in relation to Medicaid eligibility and status Waiting admission to a NF Receiving HCBS HCBS wait list Functionally ineligible Financially ineligible 0% 20% 40% 60% 80% 100% 1996 2003 2007 ROLE OF THE CARE MANAGER Finding: Care management is an important component of most multiservice programs (68 percent). Care managers typically use information gathered through an assessment to determine functional eligibility for a program or service; develop a care plan; authorize, coordinate, and monitor services; and complete reassessments. Care managers in 55 percent of the programs determine financial eligibility; however, several programs do not have income limits, so this function is not necessary. In some programs, the care manager determines the amount of the cost sharing obligation. 13 State-Funded Home and Community-Based Services Programs for Older Adults The primary tasks performed by care managers are coordinating services and developing a care plan (95 percent) and monitoring services (93 percent). Care managers complete assessments and reassessments in 90 percent and 86 percent of the programs, respectively. Care managers authorize services in 83 percent of the programs. Care managers in 62 percent of the programs also provide care management for Medicaid HCBS waiver programs, which streamlines access to services for applicants who may be eligible for services from either or both programs (see figure 10). Questions in the 2008 survey were changed and data were not comparable with the 2004 survey for authorization of services, reassessment, and provision of waiver care management. Figure 10 Role of Care Manager Provide waiver care management 62% Approve changes in care plan 81% 88% Complete reassessments 86% Coordinate delivery 95% 97% Monitor service delivery 93% 94% Authorize services 83% Develop care plan 95% 91% Determine functional eligibility 74% 82% Complete assessments 90% 91% Determine financial eligibility 55% 65% 0% 20% 40% 60% 80% 100% 2003 2007 CONSUMER DIRECTION Finding: Few multiservice programs (19) reported offering participants the opportunity to direct their own care. Self-direction was available in some programs that serve older people and those that serve adults with physical disabilities. While participation was very limited in most programs (1–5 percent), all participants in Nebraska’s Disabled Persons and Family Support program direct their own care. Maryland’s Congregate Housing Services Program offers participants a choice of service packages, but they do not appear to be able to hire and fire, train, or supervise care providers (see appendix C, table 14). QUALITY MEASUREMENT Finding: Satisfaction surveys, monitoring by care managers, and provider monitoring activities were the most prevalent quality measurement strategies for multiservice programs. 14 State-Funded Home and Community-Based Services Programs for Older Adults Satisfaction surveys are conducted in 28 programs, while 14 programs monitor service providers, and 11 programs include quality oversight as part of the role of the care manager. Most programs use more than one strategy. Other strategies included outcomes- based contracting and care planning, and consumer interviews. Two programs carry out a comprehensive quality management program (see appendix C, table 16). DISCUSSION State-funded programs function as an important part of the overall HCBS system in many states, even though spending for them is significantly less than spending for Medicaid waiver and state plan personal care. However, combining Medicaid and state-funded HCBS expenditures increased 2007 HCBS spending for older adults between 2.0 and 6.2 percentage points in 16 states. Although state programs fill some gaps in what Medicaid provides, these programs are far too small to make up for cuts in Medicaid HCBS programs. State-funded programs allow people who may not meet Medicaid’s income or functional eligibility criteria to access services that support their independence. Adjusting for program changes, spending in FY 2007 was comparable to spending in FY 2002. The number of people served by single-service programs increased in FY 2007. Adjusting for the shift to Medicaid coverage in California, the number of people served by multiservice programs was comparable to the number in FY 2002. However, the percentage of programs covering specific services declined compared with the 2003 survey. Some state-funded HCBS programs contribute significantly to LTC delivery and serve a large number of beneficiaries, but most do not offer a comprehensive package of benefits. When resources do not keep pace with inflation and demand, states may offer fewer services to maximize the number of people served. Although many states are contending with reduced general revenues and competition from other program priorities, multiservice program funding increased more than 13 percent in eight states (Arizona, Connecticut, Hawaii, Iowa, Kentucky, New York, North Carolina, and Rhode Island). Two states (Maine and Minnesota) experienced large reductions in spending. Multiservice state-funded programs often use the same care managers in both state-funded and Medicaid-funded programs. Sixty percent of the programs that provide care management services use care managers who also serve Medicaid waiver participants. This form of coordination streamlines access to programs and services for people with disabilities. However, the current economic slowdown may jeopardize state-funded HCBS programs, as states struggle to balance their budgets. According to NASUA, “An unintended consequence of such reductions could be an increase in the rate of institutionalization, which would be more costly to the states and federal government.”18 18 NASUA op. cit. 15 State-Funded Home and Community-Based Services Programs for Older Adults This page intentionally left blank 16 State-Funded Home and Community-Based Services Programs for Older Adults APPENDIX A: REPORTING CHANGES BETWEEN 2002 AND 2007  State-funded programs in Vermont are now included in the state’s Choices for Care §1115 Medicaid Demonstration program and, therefore, were not reported as state spending in FY 2007.  South Dakota converted a multiservice program into three single-service programs.  FY 2002 spending for multiservice programs in Illinois and Massachusetts included a mix of state revenue and Medicaid waiver activity. The 2007 spending includes only the state general revenue portion.  Programs in Idaho and Texas reported the state matching that is required for Older Americans Act (OAA) services in FY 2002. Because Idaho’s Senior Services Act represented the state’s share of OAA services in 2002, this expenditure is not included in the 2007 report.  In Texas, the OAA appropriation for state matching funds exceeds the required match. Texas reported spending $4.8 million in FY 2007, of which $3.2 million met the OAA matching requirements and $1.6 million supplemented funding. Thus, only the “excess” $1.6 million is included in the 2007 report.  Pennsylvania’s OPTIONS program is part of an Aging Block Grant to Area Agencies on Aging that also includes funds for senior centers, meal programs, information and referral, and other activities. Of the $250 million allocated in FY 2007, the OPTIONS program accounted for $162 million. The data reported for FY 2002 included all Aging Block Grant programs. 17 State-Funded Home and Community-Based Services Programs for Older Adults This page intentionally left blank 18 State-Funded Home and Community-Based Services Programs for Older Adults APPENDIX B: SURVEY OF STATE-FUNDED HOME AND COMMUNITY- BASED LONG-TERM CARE PROGRAMS FOR OLDER PEOPLE Conducted for: AARP Public Policy Institute by: National Academy for State Health Policy State Email address Name Phone number Title Fax number Many states fund programs with general revenues or other state funds that address the long-term care needs of older adults. These programs offer valuable supports to individuals who may not be eligible for Medicaid or, if eligible, do not qualify for home and community based waiver programs. NASHP is conducting a national survey under contract to AARP’s Public Policy Institute to examine the various state-funded home and community-based service (HCBS) programs that provide long-term care services for older people. This survey asks about programs funded through a distinct state appropriation. Federally funded programs— Older Americans Act, Medicaid state plan services or waiver programs, or programs for people with disabilities that do not serve older people—are not included in this project. We would greatly appreciate your help to provide details of these important state resources. A similar survey was conducted by AARP in 2003. Part I of the survey asks for basic information about two types of programs:  Any single HCBS program  Multi-service HCBS programs ► All respondents are asked to complete Part I. Part II asks more detailed questions about state-funded multi-service HCBS programs. If your state has a state-funded multi-service HCBS program or programs, please complete Part II of the survey. If there is more than one multi-service HCBS program in your state, please provide a separate Part II response for each of the programs. To complete the survey, you may tab between fields and enter your response. Enter “x” in the boxes and text in the fields. DEFINITIONS OF SINGLE-SERVICE AND MULTI-SERVICE HCBS PROGRAMS State-funded single-service HCBS programs provide a single service to older people. Examples include homemaker services, home-delivered meals, attendant care, respite care, etc. 19 State-Funded Home and Community-Based Services Programs for Older Adults State-funded multi-service HCBS programs are:  State-funded, administered according to state rules, and operate statewide;  Primarily target older people with long-term care needs (programs serving other populations in addition to older people are included in the survey); and  Provide two or more services (not counting case management). PART I. PROGRAM INFORMATION 1. Does your state have any single-service HCBS programs for older persons? Yes No If yes, please complete the following chart for FY 2007. Area Program 1 Program 2 Program 3 Program 4 Name of Single-Service HCBS Program Source of State Funding (e.g., state general revenue, dedicated taxes, lottery funds, tobacco funds, etc.) State Appropriation For FY 2007 Number enrolled in FY 2007 Who is served (age 60 and older, age 65 and older, elders and individuals with physical disabilities) What is the income limit for a single individual (per month/year) Does this program have asset limits? If yes, what is the limit? Are people in this program charged copayments? 2. Does your state have any multi-service HCBS programs for older persons? Yes No If yes, please complete the following chart for FY 2007. 20 State-Funded Home and Community-Based Services Programs for Older Adults Name of Multi-Service Source of State Funding FY 2007 state Number enrolled in HCBS Program (e.g., state general appropriation FY 2007 revenue, dedicated taxes, (exclude OAA and (exclude OAA and lottery funds, tobacco Medicaid HCBS Medicaid HCBS funds, etc.) programs) programs) 3. Are there any locally-funded multi-service HCBS programs serving older persons in your state? Yes No If yes, please describe: If there are any state-funded multi-service HCBS programs in your state, please complete Part II of the survey. ► (Please provide a separate Part II response for each program, if there is more than one multi-service HCBS program). If your state does not have any multi-service HCBS programs, you are finished with this survey. Thank you for your assistance. Please return the survey to Bob Mollica at rmollica@nashp.org. 21 State-Funded Home and Community-Based Services Programs for Older Adults PART II: DESCRIPTION OF MULTI-SERVICE HCBS PROGRAMS Please complete a separate Part II response for each state-funded multi-service HCBS program in your state. Name of program: If the regulations or policy manual for this program are available on a web site, please insert the web address. A. Characteristics of the population served 1. What population does this program serve? Persons age 60 and older Persons age 65 and older Older persons and other adults with physical disabilities Other (please specify) 2. Does this program serve individuals who are (check all that apply): Financially ineligible for Medicaid Ineligible for Medicaid waiver services based on health/functional criteria Awaiting enrollment in the state’s Medicaid HCBS waiver program Receiving Medicaid home and community-based waiver services Awaiting admission to a nursing home Other (please specify) B. Financial Eligibility Criteria 4. What is the income limit for a single individual to participate in this program? $ per (month/year). 5. Is this amount tied to a common income standard (e.g., a percentage of SSI or a percentage of the poverty level)? Yes (please describe) No NA 6. Does the program disregard certain types or amounts of income and/or deduct certain expenses when determining eligibility? Yes (please describe) No N/A 7. Does this program use asset limits when determining eligibility? Yes No N/A If yes, please specify the maximum amount of assets allowed: What assets are considered? 22 State-Funded Home and Community-Based Services Programs for Older Adults 8. Does the program disregard certain types or amounts of assets when determining eligibility? Yes (please describe below) No N/A 9. Is eligibility based on individual or household income? Individual income Household/Married couple income N/A C. Cost containment strategies 10. Does this program limit the amount or quantity of any covered service? Yes No If yes, please describe the limit and how it is defined in the table below (for example, respite care is limited to $350 per month or homemaker services are limited to 20 hours per week). Number/ Type of limit (e.g., Duration of limit Service type/name Amount of limit hours/visits/dollars) (e.g., week/month/year 11. Does this program set an upper limit on the total cost of services provided to an individual (care plan cost cap)? Yes, and the dollar limit is per (Month/year) No If yes, is this care plan cost cap tied to a related factor (i.e., a percentage of average nursing home costs)? Yes (please describe) No 12. Do the participants in this program share in the cost of services? Yes No If yes, please describe the methodology for determining the amount of the cost sharing. 23 State-Funded Home and Community-Based Services Programs for Older Adults D. Services 13. What services are provided in this program? (Please check all that apply). If your state provides the service but calls it a different name, please provide that name in the last column. Check all Service name services used in the Common name Service description provided program Skilled nursing Nursing services that are provided by a registered nurse (RN) or licensed practical or vocational nurse (LPN/LVN) Home health aide Assistance with household chores, bathing, personal care, and other daily living needs Home health care Assistance with a wide range of health-related services, such as assistance with medications, wound care, intravenous (IV) therapy Personal care Assistance with activities of daily living (ADLs)—eating, bathing, dressing, toileting, transferring as well as with self-administration of medications and may also include IADLs assistance. Homemaker Assistance with IADLs which are general household activities such as meal preparation, shopping, light housekeeping, money management, personal hygiene and grooming and laundry Chore services Assistance with heavy housekeeping and other tasks, such as snow removal and yard work. Respite care Short-term temporary assistance provided in the home during the absence of the primary caregiver or to relieve the caregiver; other caregiver support Care management Services which assist individuals in gaining access to needed medical, social, educational and other social services Home delivered Hot or frozen meal delivered to the individual’s home (or apartment) meals Transportation Provides transportation to services, activities and resources. May use bus, taxi, volunteer drivers or van services that can accommodate wheelchairs and persons with other needs Adult day services A daytime community-based program that provides a variety of health, social and related support services in a protective setting Habilitation Services designed to assist individuals with socialization and adaptive skills necessary to reside successfully in home and community-based settings Emergency An electronic device which enables individuals at high risk of response systems institutionalization to secure help in an emergency Specialized Equipment and supplies which enable individuals to increase their abilities medical to perform ADLs or to maneuver the environment in which they live equipment/ supplies Home repair/ Assistance with minor home repairs or modifications necessary to allow the modifications individual to live in the home safely Assessment May involve standardized assessment of functioning, ADLs, IADLs, and services other criteria necessary to determine individual’s ability to remain at home Assisted living Personal care and related services provided in licensed residential settings Adult family care Personal care and related services provided in small family or home-like residential settings Other 24 State-Funded Home and Community-Based Services Programs for Older Adults E. Other Program Information 14. What is the role of the case or care manager? (please check all that apply) Determines financial eligibility for the program Completes an assessment Determines functional eligibility Develops a care plan Authorizes services in the care plan Monitors service delivery Coordinates the provision of services Completes periodic reassessments Approves changes in the care plan Other (please specify) 15. Is there an option for consumer direction in this program? Yes No 16. If yes, what percentage of the participants chose consumer direction? 17. Describe the scope of consumer direction—e.g. ability to manage an individual budget, ability to hire family members, limited to specific services. 18. How is quality measured in this program? 19. Do care managers in this program also provide care management for Medicaid home and community based waiver services? Yes No 20. Have there been any recent revenue/budget limitations on the program? If so, please describe: Thank you for your assistance. Please return the survey to Bob Mollica at rmollica@nashp.org. 25 State-Funded Home and Community-Based Services Programs for Older Adults This page intentionally left blank 26 State-Funded Home and Community-Based Services Programs for Older Adults APPENDIX C: COMPARATIVE STATE TABLES 27 Table 1. Medicaid Long-Term Care and State-Funded HCBS Expenditures for Older People and Adults with Physical Disabilities* Medicaid LTC Percent HCBS TOTAL Medicaid State-funded Including State- Percentage STATE LTC Expenditures HCBS Funded Point Increase Nursing Home HCBS Percent HCBS Programs Alabama $871,067,242 $81,856,366 8.6% $952,923,608 $0 8.6% 0.0% Alaska $126,076,479 $128,643,619 50.5% $254,720,098 $4,620,056 51.4% 0.9% Arizona1 $13,038,851 $22,409,738 63.2% $35,448,589 $16,217,498 NA NA Arkansas $541,166,283 $141,693,137 20.7% $682,859,420 $7,667,664 21.6% 0.9% California3 $3,656,631,647 $3,820,135,868 51.1% $7,476,767,515 $13,273,000 51.2% 0.1% Colorado $516,675,875 $144,093,080 21.8% $660,768,955 $7,000,000 22.6% 0.8% Connecticut $1,232,775,829 $122,335,121 9.0% $1,355,110,950 $42,939,627 11.8% 2.8% Delaware $162,657,368 $17,576,762 9.8% $180,234,130 $1,488,951 10.5% 0.7% DC $173,010,834 $87,578,939 33.6% $260,589,773 $16,784,032 37.6% 4.0% Florida2 $2,393,318,097 $349,258,385 12.7% $2,742,576,482 $67,240,223 14.8% 2.1% Georgia $820,820,874 $182,517,464 18.2% $1,003,338,338 $16,002,568 19.5% 1.3% Hawaii $214,954,168 $45,587,588 17.5% $260,541,756 $7,000,000 19.7% 2.2% Idaho $145,765,488 $91,445,860 38.6% $237,211,348 $1,296,807 38.9% 0.3% Illinois $1,355,165,623 $401,990,619 22.9% $1,757,156,242 $155,197,767 29.1% 6.2% Indiana $794,441,002 $45,993,883 5.5% $840,434,885 $48,765,643 10.7% 5.3% Iowa $447,532,660 $75,476,448 14.4% $523,009,108 $12,652,350 16.5% 2.1% Kansas $349,072,968 $176,517,475 33.6% $525,590,443 $6,783,690 34.4% 0.8% Kentucky $758,738,405 $66,214,249 8.0% $824,952,654 $29,780,401 11.2% 3.2% Louisiana $509,309,466 $160,389,165 23.9% $669,698,631 $5,950,966 24.6% 0.7% Maine $239,924,656 $82,160,947 25.5% $322,085,603 $9,521,598 27.6% 2.1% Maryland $954,738,411 $122,718,066 11.4% $1,077,456,477 $4,889,497 11.8% 0.4% 2 Massachusetts $1,612,684,186 $503,864,216 23.8% $2,116,548,402 $171,460,789 29.5% 5.7% Michigan $1,482,976,417 $324,192,904 17.9% $1,807,169,321 $31,140,077 19.3% 1.4% Minnesota2 $835,028,759 $649,572,386 43.8% $1,484,601,145 $48,172,461 45.5% 1.7% Mississippi5 $694,932,380 $4,876,823 0.7% $699,809,203 $0 0.7% 0.0% Missouri $760,018,026 $338,357,223 30.8% $1,098,375,249 $12,187,935 31.6% 0.8% Montana $148,657,897 $51,609,895 25.8% $200,267,792 $0 25.8% 0.0% Nebraska $328,400,530 $72,494,224 18.1% $400,894,754 $3,598,915 18.8% 0.7% Nevada $155,014,807 $80,677,792 34.2% $235,692,599 $1,941,798 34.8% 0.6% New Hampshire $317,870,200 $46,178,843 12.7% $364,049,043 $350,000 12.8% 0.1% New Jersey $1,780,135,441 $445,464,711 20.0% $2,225,600,152 $20,796,127 20.8% 0.8% Table 1. Medicaid Long-Term Care and State-Funded HCBS Expenditures for Older People and Adults with Physical Disabilities* Medicaid LTC Percent HCBS TOTAL Medicaid State-funded Including State- Percentage STATE LTC Expenditures HCBS Funded Point Increase Nursing Home HCBS Percent HCBS Programs New Mexico $173,587,539 $267,545,445 60.6% $441,132,984 $24,018,278 62.7% 2.1% New York2 $6,750,416,830 $2,729,111,915 28.8% $9,479,528,745 $95,301,184 29.5% 0.7% North Carolina $1,125,575,224 $713,482,771 38.8% $1,839,057,995 $34,230,937 39.9% 1.1% North Dakota $168,472,951 $9,767,592 5.5% $178,240,543 $7,328,250 9.2% 3.7% Ohio $2,643,027,882 $544,704,226 17.1% $3,187,732,108 $14,716,876 17.5% 0.4% Oklahoma $505,731,258 $22,739,633 4.3% $528,470,891 $3,342,624 4.9% 0.6% Oregon $292,315,922 $378,716,012 56.4% $671,031,934 $6,000,000 56.8% 0.4% Pennsylvania $3,868,257,381 $453,841,934 10.5% $4,322,099,315 $182,163,071 14.1% 3.6% Rhode Island $299,904,871 $42,803,481 12.5% $342,708,352 $3,816,776 13.5% 1.0% South Carolina $489,665,170 $136,307,631 21.8% $625,972,801 $1,248,208 21.9% 0.0% South Dakota $135,544,832 $10,658,155 7.3% $146,202,987 $6,669,960 11.3% 4.0% Tennessee $1,182,654,826 $16,031,823 1.3% $1,198,686,649 $5,149,000 1.8% 0.5% Texas2 $1,886,966,718 $1,273,083,678 40.3% $3,160,050,396 $4,767,229 40.4% 0.1% Utah $163,123,796 $9,058,512 5.3% $172,182,308 $3,977,295 7.4% 2.1% 4 Vermont $110,317,219 $42,609,513 27.9% $152,926,732 $4,989,546 30.1% 2.2% Virginia $720,094,995 $258,483,941 26.4% $978,578,936 $10,586,464 27.2% 0.8% Washington $594,863,214 $717,016,716 54.7% $1,311,879,930 $14,386,000 55.1% 0.5% West Virginia $420,724,229 $100,504,288 19.3% $521,228,517 $1,795,000 19.6% 0.3% Wisconsin 2 $988,641,608 $384,601,050 28.0% $1,373,242,658 $0 28.0% 0.0% Wyoming $67,851,205 $11,133,093 14.1% $78,984,298 $3,151,144 17.4% 3.3% Total $46,980,338,539 $17,006,083,205 26.6% $63,986,421,744 $1,192,358,282 27.9% 1.3% * Source: Steve Eiken and Brian Burwell. Medicaid Long Term Care Expenditures FY 2007 . Thomson Reuters, 2008. Home health spending was excluded from Medicaid community based service and state-funded expenditures were added. 1 Arizona's Medicaid LTC program is almost entirely provided through managed care contractors, and the state's total Medicaid LTC spending is much higher than indicated in the table (which includes only fee-for-service spending). 2. Data for Florida, Massachusetts, Minnesota, New York, Texas, and Wisconsin do not include managed LTC expednitures. 3 California's reported Medicaid expenditures will likely increase as the state submits prior period adjustments. For FY 2002 through FY 2005, adjustments increased community services expenditures by $500 to $800 million. 4 Vermont's data do not include a program that covers both long-term and acute care because long-term care spending data are not available. 5 Mississippi Aged/Disabled waiver data are not available because the state did not report target population information for HCBS waivers. Table 2. State-Funded HCBS Programs for Older People State Appropriation State Appropriation Total State Single-Service HCBS Programs Multiservice HCBS Programs FY 2007 FY 2002 FY 2007 FY 2002 FY 2007 FY 2002 AL None None Adult Day $1,413,071 $1,413,100 Senior In-Home Services $2,131,985 NR Care Coordination* See note $962,900 AK Respite* See note $491,600 $4,620,056 $2,867,600 Senior Residential Services $815,000 NR Mini Grants $260,000 NR Independent Living Services* $16,217,498 $9,982,800 AZ None $16,217,498 $10,482,800 Tobacco Tax Program $500,000 State Aging Services $4,667,664 $4,686,551 AR None $7,667,664 $7,686,551 Cigarette Tax $3,000,000 $3,000,000 Alzheimer's Day Care Resource $4,173,000 $4,200,000 IHSS Residual Program* NR $320,000,000 Center Program CA $13,273,000 $332,500,000 Respite $333,000 NA Linkages $8,433,000 $8,300,000 Senior Companion $334,000 NA CO None State Funding for Senior Services $7,000,000 $2,740,000 $7,000,000 $2,740,000 Alzheimer's Respite Program $1,288,040 $1,120,200 CT Home Care Program for Elders: State $39,328,092 $23,000,000 Funded CT* Day Care for Alzheimer's Victims NR $183,397 Personal Care Assistance Pilot $1,915,319 NA $42,939,627 $24,303,597 Project Home Share $99,273 NR Elderly Health Screening $308,903 NR Statewide Respite Services $110,000 $124,557 None Emergency Response System $51,451 $49,288 DE $1,488,951 $626,065 Alzheimer's Day Treatment $469,498 $452,220 Personal Attendant Program $858,002 NR DC None Senior Services Network $16,784,032 $14,727,000 $16,784,032 $14,727,000 Alzheimer's Disease Initiative $13,833,105 $12,155,902 FL None Community Care for the Elderly $43,877,657 $42,364,370 $67,240,223 $64,049,733 Home Care for the Elderly $9,529,461 $9,529,461 Community-Based Services Program $11,298,410 $11,298,871 State-funded Alzheimer's Program $2,380,208 $2,873,690 Alzheimer's Community-Based Services $530,516 NA GA None Caregiver Kinship Care $571,582 NA $16,002,568 $14,286,868 Health & Wellness $1,075,822 NA GA Caregiver Resource Center $36,216 NA Income Tax Check-off Fund $109,814 $114,307 HI None Kupuna Care $7,000,000 $4,854,305 $7,000,000 $4,854,305 Congregate Meals $62,200 NA Idaho Seniors Services Act See note $864,020 ID Transportation $166,097 NA $1,296,807 $864,020 Case Management $1,068,510 NA IL Home-Delivered Meals* $8,504,007 $6,600,000 Community Care Program* $146,693,760 $212,800,000 $155,197,767 $219,400,000 CHOICE (Community and Home Options to IN None Institutional Care for Elderly and Disabled) $48,765,643 $46,000,000 $48,765,643 $46,000,000 Table 2. State-Funded HCBC Programs for Older People State Appropriation State Appropriation Total State Single-Service HCBC Programs Multi-Service HCBC Programs FY 2007 FY 2002 FY 2007 FY 2002 FY 2007 FY 2002 Senior Living Program $8,324,044 $4,177,291 IA None $12,652,350 $7,301,048 Elder Services $4,328,306 $3,123,757 KS None Senior Care Act $6,783,690 $7,865,402 $6,783,690 $7,865,402 Adult Day/Alzheimer's Respite $1,859,875 $2,773,800 Home Care $17,586,230 $15,301,500 Program KY $29,780,401 $18,075,300 Personal Care Attendant Program $4,334,296 Hart Supported Living $6,000,000 Nutrition/Meals $4,817,470 $5,100,000 None LA Transportation $621,784 $600,000 $5,950,966 $6,200,000 Homemaker $511,712 $500,000 Homemaker Services $2,273,317 $2,000,000 Home-Based Care for Elders & Disabled $6,337,531 $13,000,000 Adults ME $9,521,598 $16,276,000 Adult Day Services $321,426 $400,000 Alzheimer's Respite $589,324 $876,000 Senior Assisted Living Group Home $3,285,240 NR Congregate housing services program $1,604,257 NR $4,889,497 MD Subsidy NR None Home Care Program $131,319,422 $150,000,000 MA $171,460,789 $150,000,000 Enhanced Community Options Program* $40,141,367 NA Home-Delivered Meals $10,461,717 NR Access Services $898,400 Personal Care* See note $2,664,208 Community Services $6,437,618 Homemaker* See note $3,305,245 In-Home Services $6,516,842 MI $31,140,077 $19,251,095 Adult Day Care* See note $2,135,372 In-Home Respite* See note $3,277,041 Care Management* $6,825,500 $7,869,229 Senior Nutrition $2,329,000 $2,740,000 Alternative Care $44,983,000 $65,000,000 MN $48,172,461 $68,193,000 Caregiver Support $860,461 $453,000 MS None None Non-Medicaid Consumer-Directed MO $1,163,366 NR State Funded In-Home Services $11,024,569 NR $12,187,935 NR Care MT None None Respite - Life Span $810,000 $810,000 Disabled Persons and Family Support $910,000 $910,000 NE $3,598,915 $3,436,558 Care Management $1,878,915 $1,716,558 Community Service Option Program for the NV None $1,941,798 $998,070 $1,941,798 $998,070 Elderly Alzheimer's Disease & Related $350,000 NA None $350,000 NH Disorders Respite Care Alzheimer's Adult Day Services $2,802,300 $2,668,908 Jersey Assistance for Community Caregiving Program (JACC) $10,000,000 $10,000,000 NJ $20,796,127 $24,382,740 Home-Delivered Meals NR $1,870,832 Congregate housing services program $2,634,827 $3,093,000 Statewide Respite Care Program $5,359,000 $6,750,000 Table 2. State-Funded HCBC Programs for Older People State Appropriation State Appropriation Total State Single-Service HCBC Programs Multi-Service HCBC Programs FY 2007 FY 2002 FY 2007 FY 2002 FY 2007 FY 2002 GAP Program $169,000 NR Area Agency on Aging Services* $20,197,810 $10,905,536 NM None $24,018,278 $13,577,530 Indian Area Agency on Aging* $1,437,251 $1,665,352 Navajo Area Agency on Aging* $2,214,217 $1,006,642 NY Supplemental Nutrition Program $22,936,000 $17,209,000 Expanded In-Home Services for the Elderly $52,512,184 $25,500,030 $95,301,184 $42,709,030 Program Community Services for the Elderly $19,853,000 NR NC Special Assistance in Home $4,299,124 NR Home and Community Care Block Grant $29,931,813 $23,449,112 $34,230,937 $23,449,112 Service Payments for the Elderly and $6,874,804 NR Disabled (SPED) ND None $7,328,250 NA Expanded Service Payments for the Elderly $453,446 NR and Disabled (ESPED) OH Alzheimer's Respite $4,085,888 NR Senior Community Services Block Grant $10,630,988 NR $14,716,876 NR OK Adult Day Care $3,342,624 $2,997,670 None $3,342,624 $2,997,670 OR None Oregon Project Independence $6,000,000 $5,106,951 $6,000,000 $5,106,951 Risk Reduction through Assistive NR $1,000,000 OPTIONS Program $162,257,000 $206,617,706 Technology Program PA $182,163,071 $218,791,705 Family Caregiver Support Program $8,761,000 $11,173,999 Over 60 attendant care $11,145,071 NA RI Respite Care NR $424,000 CoPay Program $3,816,776 $3,029,000 $3,816,776 $3,453,000 SC None Alternative Care for the Elderly $1,248,208 $755,389 $1,248,208 $755,389 Homemaker $4,768,400 NR Long-Term Care Alternatives Program See note $2,807,363 $6,669,960 $2,807,363 SD Nursing $1,209,160 NR Respite Care $692,400 NR TN None Options for Community Living $5,149,000 NA $5,149,000 NA TX None Area Agency on Aging Services* $4,767,229 $5,306,470 $4,767,229 $5,306,470 Home & Community-Based Alternatives UT None $3,977,295 $3,644,828 $3,977,295 $3,644,828 Program Attendant Services Program $4,889,546 $201,368 Housing and Support Services See note $750,110 VCIL Home modification $100,000 NR VT Homemaker Program See note $3,448,203 $4,989,546 $5,438,467 Adult Day Services See note $1,038,786 Housing and Support Services $350,103 See note Home-Delivered Meals $3,797,304 $3,406,545 Community-Based Services Program $5,357,554 $6,283,166 VA $10,586,464 $10,599,810 Transportation $1,431,606 $910,099 Respite & Family Caregivers Support* $3,633,000 $2,719,119 Family Caregiver Support Program NR $622,810 WA $14,386,000 $3,341,929 Senior Drug Education $163,000 NA Senior Services Citizens Act $8,786,000 NR Volunteer Chore $1,804,000 NA Family Alzheimer's In-Home Respite $795,000 NA Non-Medicaid Personal Care (Lighthouse) $1,000,000 NA WV $1,795,000 $700,000 Community Care Program NA $700,000 WI Elderly Nutrition NR NR Community Options Program* $12,011,649 NR NR NR WY None Community-Based In-Home Services $3,151,144 $1,901,155 $3,151,144 $1,901,155 TOTAL $136,065,910 $98,162,245 $1,068,654,124 $1,313,785,916 $1,192,358,282 $1,411,948,161 Notes: NR = not reported. NA = Not applicable. * Programs in italics are not included in later tables. * Alaska: Care coordination and respite programs were combined into the Senior In-Home Services program in 2004. * Arizona's program was formerly named Non-Medical Home and Community Based Services. * California: A major portion of the residual IHSS program converted to a §1115 Medicaid Demonstration program. About 2,000 participants who are not eligible for federal reimbursement continue in the program. * Connecticut: The Home Care Program for Elders figures are for FY 2006. * Florida: Information was taken from "2007 Florida Programs and Services," available at http://elderaffairs.state.fl.us/english/GLR/sops2007/First%20page_2007SOPS.html * Idaho: This program was reported as an Older Americans Act activity and was not included in the 2008 report. * Illinois: 2007 spending is for the non-Medicaid portion of the CCP program. 2002 spending may include both Medicaid-and state-funded clients. * Massachusetts: Additional information about the Enhanced Community Options Program was not reported. * Michigan: Care management is used to help consumers access multiservice programs. Personal care, homemaker, respite and day care are included in the multi-service programs. * Minnesota: Single-service programs reported in 2002 are now covered by the Alternative Care program. * New Jersey: The congregate housing services program was reported as a multiservice program in 2002 and a single-service program in 2007. * NewMexico: These programs provide additional state funds for Older Americans Act services. * Pennsylvania: Figures for FY 2002 include programs and services funded through an Aging Services Block grant that includes federal funds. The FY 2007 figures report the OPTIONS component of the block grant and the number of people served who receive care management and other HCBS services. * South Dakota: The Long-Term Care Alternatives program was reorgnized into single-service programs. * Texas: This program provides additional state funds for Older Americans Act services beyond the required match. * Vermont: Services for this program were shifted to the Choices for Care §1115 demonstration program. The remaining funds support assessment and coordination. * Wisconsin: The Community Option Program is merging with the Family Care Program (a managed care model) and could not be reported separately. Expenditures for FY 2006 are from Table 16, Report to the Legislature, Calendar Year 2006. * Washington: Formerly Respite Services Program. * West Virginia: Reported funding a community care program in FY 2002 that was not reported in 2007. Table 3. Single-Service HCBS Programs: Funding and Enrollment Name of Single-Service HCBS State Appropriation Number Enrolled Funding per State Source of State Funding Whom does the program serve? Program Enrollee FY 2007 FY 2002 FY 2007 FY 2002 Adult Day Care General Revenue $1,413,071 $1,413,100 462 482 60+, individuals with disabilities and individuals $3,059 with Alzheimer's disease or related disorders Care Coordination* General Revenue See note $962,900 See note 1,157 60+, individuals with disabilities and individuals AK with Alzheimer's disease or related disorders Respite* General Revenue See note $491,600 See note 215 Alzheimer's disease or related disorders Senior Residential Services General Revenue $815,000 NR 116 NR 60+ $7,026 Mini Grants Mental Health Trust $260,000 NR 237 NR 60+ w/Alzheimers and related dementia $1,097 Alzheimer's Day Care Resource General Revenue $4,173,000 $4,200,000 3,320 2,945 Individuals with Alzheimer's disease or dementia $1,257 Center Program CA Senior Companion General Revenue $334,000 NR NR NA 60+ Respite General Revenue $333,000 NR 698 NA 60+ $477 Statewide Respite Care Program General Revenue $1,288,040 $1,120,200 656 491 Individuals with Alzheimer's or related dementias $1,963 CT Day Care for Alzheimer's victims General Revenue NR $183,397 100 60+ Project Home Share General Revenue $99,273 NR 111 NR 60+ $894 Elderly Health Screening General Revenue $308,903 NR 721 NR 60+ $428 Statewide Respite Services General Revenue $110,000 $124,557 35 67 60+ $3,143 Emergency Response System General Revenue $51,451 $49,288 197 120 65+, individuals with physical disabilities $261 Alzheimer's Day Treatment General Revenue $469,498 $452,220 52 37 Individuals with Alzheimer's or related dementias, $9,029 DE who cannot be left alone during day Personal Attendant Program General Revenue/ $858,002 NR 80 NR 65+, adults with physical disabilities $10,725 Tobacco Funds Congregate Meals General Revenue $62,200 NA 644 NA 60+ $97 ID Transportation General Revenue $166,097 NA 6,706 NA 60+ $25 Case Management General Revenue $1,068,510 NA 6,275 NA 60+ $170 IL Home-Delivered Meals* General Revenue $8,504,007 $6,600,000 23,386 21,539 60+, frail, homebound, disabled, isolated $364 Personal care attendant program State General Funds $4,334,296 NA 380 NA 18+ meeting nursing home level of care $11,406 Hart-Supported Living State General Funds $6,000,000 NA 505 NA $11,881 KY Adult Day/Alzheimer's Respite General Revenue $1,859,875 $2,773,800 822 NR Any person with a diagnosis of Alzheimer's $2,263 Program disease LA Nutrition/Meals General Revenue $4,817,470 $5,100,000 See notes NR 60+ Transportation General Revenue $621,784 $600,000 See notes NR 60+ Homemaker General Revenue $511,712 $500,000 5,345 NR 60+ $96 Table 3. Single-Service HCBS Programs: Funding and Enrollment Name of Single-Service HCBS State Appropriation Number Enrolled Funding per State Source of State Funding Whom does the program serve? Program Enrollee FY 2007 FY 2002 FY 2007 FY 2002 ME Homemaker Services General Revenue $2,273,317 $2,000,000 1482 1,764 18+ $1,534 Adult Day Services General Revenue $321,426 $400,000 71 155 18+ $4,527 Alzheimer's Respite General Revenue $589,324 $876,000 680 472 18+ $867 MD Senior Assisted Living Group Home General Revenue $3,285,240 NR 661 NR 62+ $4,970 Subsidy MA None Home delivered meals General Revenue $10,461,717 NR 49,717 2,967 60+ $210 Personal Care* General Revenue See note $2,664,208 NR 2,967 60+ Homemaker* General Revenue See note $3,305,245 NR 6,275 60+ Adult Day Care* Revenue from unclaimed See note $2,135,372 NR 128 60+, Adults with disabilities property, tobacco MI settlement In-Home Respite* Revenue from unclaimed See note $3,277,041 NR 846 60+, Adults with disabilities property, tobacco settlement Care Management General Revenue $6,825,500 $7,869,229 3,812 12,509 60+ $1,791 Senior Nutrition General Revenue $2,329,000 $2,740,000 78,000 88,000 60+ $30 MN Caregiver Support General Revenue $860,461 $453,000 4,713 7,000 60+ $183 MS None Non-Medicaid Consumer Directed General Revenue $1,163,366 NR 81 NR 60+, Adults with disabilities $14,363 MO Care Respite - Life Span Tobacco funds $810,000 $810,000 201 415 Individuals who have an in-home caregiver $4,030 NE needing respite Care Management General Revenue $1,878,915 $1,716,558 5,470 8,975 60+ with service needs $343 NV None NH ADRD Respite Care General Revenue $350,000 NA 230 NA Individuals with irreversible dementing illness who $1,522 live with family caregivers Adult Day Services Program for Casino Revenue $2,802,300 $2,668,908 848 884 Individuals with Alzheimer's or related disorders $3,305 Persons with Alzheimer's Disease or Related Disorders NJ Home-Delivered Meals Casino Revenue and NR $1,870,832 NR 8,094 60+, minorities, individuals who are impoverished, General Revenue frail, and/or vulnerable Statewide Respite Care Program Casino Revenue $5,359,000 $6,750,000 4,200 3,060 Age 18 or older and recipient must have a $1,276 caregiver NM None NY Supplemental Nutrition Program General Revenue $22,936,000 $17,209,000 75,183 30,944 60+ $305 NC Special Assistance In-Home 50% General Revenue $4,299,124 NA 1,503 NA Aged 65+; disabled 18-65 $2,860 OH Alzheimer's Respite Program* General Revenue $4,085,888 NR 24,654 NR Age 60+ and caregivers $166 Table 3. Single-Service HCBS Programs: Funding and Enrollment Name of Single-Service HCBS State Appropriation Number Enrolled Funding per State Source of State Funding Whom does the program serve? Program Enrollee FY 2007 FY 2002 FY 2007 FY 2002 OK Adult Day Care General Revenue $3,342,624 $2,997,670 618 851 60+, Individuals with physical disabilities $5,409 OR None Risk Reduction through Assistive PA Tobacco funds NR $1,000,000 NR 345 60+ Technology Program 60+, Individuals with Alzheimer's or related RI Respite Care General Revenue NR $424,000 NR 1,500 disorders Homemaker General Revenue* $4,768,400 NR 3878 NR 18 and older with physical disability $1,230 SD Nursing General Revenue* $1,209,160 NR 1441 NR 18 and older with physical disability $839 Respite Care General Revenue $692,400 NR 304 NR 18 and older with a caregiver $2,278 Attendant Services Program General Revenue $4,889,546 $201,368 384 845 18+ with disabilities $12,733 VCIL Home Modification General Revenue $100,000 NR 59 NR Individuals with disabiltiies $1,695 VT* Homemaker Program General Revenue See note $3,448,203 NA 324 60+/disabled NA Adult Day Services General Revenue See note $1,038,786 NA 978 60+/disabled NA Housing and Support Services General Revenue $350,103 See note NA 978 60+/disabled NA VA Home-Delivered Meals General Revenue $3,797,304 $3,406,545 NR NR 60+ Transportation General Revenue $1,431,606 $910,099 NR NR 60+ Respite & Family Caregivers Caregivers of adults with functional disabilities General Revenue $3,633,000 $2,719,119 2,475 1,951 $1,468 Support* and seniors WA Senior Drug Education General Revenue $163,000 NA NR NA 60+ Volunteer Chore General Revenue $1,804,000 NA NR NA Adults with functional disabilities and seniors Family Alheimer's In-Home Respite State Lottery $795,000 $700,000 289 491 Caregivers of individuals with Alzheimer's or WV related dementia $2,751 WI Elderly Nutrition General Revenue NR NR NR NR 60+ WY None TOTAL $136,065,910 $98,162,245 311,702 210,871 Notes: NR = not reported. * Alaska: Care coordination and respite programs were combined into the Senior In-Home Services program in 2004. * Illinois: This program supplements the Older Americans Act nutrition program beyond what is required. * Louisiana: Reported providing meals to 4,394,367 people and transportation services to 722,067 people. The numbers include duplicated counts of the people served. * Michigan: Personal care, homemaker, respite, and day care are included in the multiservice programs. * Missouri: Includes block grant funds. * Ohio: State respite funds are pooled by local AAAs with funds from other sources to support participants and caregivers. * South Dakota: Social Services Block Grant funds are also used. * Vermont: These services were included in the Medicaid Choices for Care § 1115 demonstration program. Housing and Supportive Services (HASS) now offers service coordination. * Washington: Formerly respite services. Table 4. Single-Service HCBS Programs: Income and Asset Limits and Copayments State Name of Single-Service HCBS Program What is the income limit for a What are the asset/resource limits used Are people in this program charged single individual to qualify for to determine eligibility? copayments? this program? Adult day care None None Yes, sliding fee scalle AK Senior Residential Services None None None Mini Grants None None None Alzheimer's Day Care Resource Center Program None None Yes, sliding fee scale CA Senior Companion None None None Respite None None None Alzheimer's Respite Program $2,500/mo $80,000/individual Yes, 20% of cost of service CT Elderly Health Screening None None None Project Home Share None None Processing fee of $10 to $25 Statewide Respite Services None None Yes, sliding fee scale Emergency Response System None None Donation DE Alzheimer's Day Treatment None None Donation Personal Attendant Program None None Yes, sliding fee scale Congregate Meals None None Donation ID Transportation None None Donation Case management None None None IL Home-Delivered Meals None None None Personal Care Attendant Program None None Yes depending on income KY Hart-Supported Living None None None Adult Day/Alzheimer's Respite Program None None None Nutrition/Meals None None None LA Transportation None None None Homemaker None None None Homemaker Services None $50,000/individual; $75,000/couple Yes, 20% of cost of service ME Adult Day Services None $50,000/individual; $75,000/couple Yes, 20% of cost of service Alzheimer's Respite None $50,000/individual; $75,000/couple Yes, 20% of cost of service Program supplements participant income MD Senior Assisted Living Group Home Subsidy $2,440 $11,000/individual; $14,000/couple up to $650 a month Home-Delivered Meals None None None MI Care Management None None None Senior Nutrition None None None MN Caregiver Support None None None MO Non-Medicaid Consumer Directed Services 300% FPL $250,000 None Respite - Life Span 312% of Poverty None None NE Care Management None None Yes, sliding fee scale NH ADRD Respite Care None None None Table 4. Single-Service HCBS Programs: Income and Asset Limits and Copayments State Name of Single-Service HCBS Program What is the income limit for a What are the asset/resource limits used Are people in this program charged single individual to qualify for to determine eligibility? copayments? this program? Alzheimer's Adult Day Services Program $45,666/year individual $40,000/individual; $60,000/couple Yes, sliding fee scale above 100% poverty NJ $53,277/year couple Statewide Respite Care Program $1,635/mo $40,000/individual; $60,000/couple Yes, sliding fee scale NY Supplemental Nutrition Program None None None NC Special Assistance In-Home 100% FPL $200 None OH Alzheimer's Respite Program None None Voluntary cost share OK Adult Day Care $851/mo None Yes RI Respite Care None None Yes, sliding fee scale Homemaker None $40,000/individual; $45,000 couple Yes SD Nursing None $40,000/individual; $45,000 couple Yes Respite Care None $40,000/individual; $45,000 couple Yes Attendant Services Program None None None VT VCIL Home Modifications 80% of area median income None Home-Delivered Meals None None Yes, sliding fee scale VA Transportation None None Yes, sliding fee scale Respite & Family Caregivers Support* $3,140/mo None Yes, sliding fee scale Senior Drug Education None None None WA Volunteer Chore Individuals who cannot pay None None privately Notes: NR = not reported. Table 5. Multiservice HCBS Programs: Funding and Enrollment Funding per Appropriation Number Enrolled State Name of Multiservice HCBS Program Source of State Funding Enrollee FY 2007 FY 2002 FY 2007 FY 2002 AK Senior In-Home Services* General Revenue $2,131,985 NR 570 NR $3,740 Independent Living Supports* General Revenue $16,217,498 $9,982,800 16,864 16,448 $962 AZ Tobacco Tax Program Tobacco Tax NR $500,000 798 State Aging Services General Revenue $4,667,664 $4,686,551 NR NR NR AR Cigarette Tax Tobacco Tax $3,000,000 $3,000,000 NR NR NR IHSS Residual Program* General Revenue See note $320,000,000 See note 70,000 NA CA Linkages General Revenue $8,433,000 $8,300,000 6,507 5,517 $1,296 Older Coloradoans Fund* General Revenue See note $2,000,000 See note NR CO State Funding for Senior Services General Revenue $7,000,000 $740,000 14,543 NR $481 CT Home Care Program for Elders: State-Funded General Revenue $39,328,092 $23,000,000 4,933 3,439 $7,972 CT Personal Care Assistance Pilot General Revenue $1,915,319 NA 150 NA $12,769 DC Senior Services Network* General Revenue $16,784,032 $14,727,000 17,931 25,000 $936 Alzheimer's Disease Initiative General Revenue $13,833,105 $12,155,902 6,779 8,880 $2,041 FL Community Care for the Elderly General Revenue $43,877,657 $42,364,370 33,369 35,720 $1,315 Home Care for the Elderly General Revenue $9,529,461 $9,529,461 6,840 7,278 $1,393 Community-Based Services Program* General Revenue $11,298,410 $11,298,871 33,428 13,788 $338 State-Funded Alzheimer's Program General Revenue $2,380,208 $2,873,690 950 732 $2,505 Alzheimer's Community Based Services General Revenue $530,516 NA 233 NA $2,277 GA Caregiver Kinship Care General Revenue $571,582 NA 550 NA $1,039 Health & Wellness General Revenue $1,075,822 NA 26,543 NA $41 GA Caregiver Resource Center General Revenue $36,216 NA 173 NA $209 Income Tax Check-off Fund Dedicated Income Taxes $109,814 $114,307 528 673 $208 HI Kupuna Care General Revenue $7,000,000 $4,854,305 10,281 6,648 $681 ID Idaho Senior Services Act General Revenue See note $864,020 See note 2,555 See note IL Community Care Program* General Revenue $146,693,760 $212,800,000 21,760 39,354 $6,741 IN CHOICE General Revenue $48,765,643 $46,000,000 16,782 11,000 $2,906 Senior Living Program Senior Living Trust Fund $8,324,044 $4,177,291 15,705 9,548 $530 IA Elder Services General Revenue $4,328,306 $3,123,757 4,404 10,407 $983 KS Senior Care Act General Revenue $6,783,690 $7,865,402 6,113 4,248 $1,110 KY Homecare General Revenue $17,586,230 $15,301,500 8,263 NR $2,128 LA None ME Home-Based Care for Elders & Disabled Adults General Revenue $6,337,531 $13,000,000 1,501 3,873 $4,222 MD Congregate Housing Services Program $1,604,257 NR NR Table 5. Multiservice HCBS Programs: Funding and Enrollment Funding per Appropriation Number Enrolled State Name of Multiservice HCBS Program Source of State Funding Enrollee FY 2007 FY 2002 FY 2007 FY 2002 Home Care Program General Revenue $131,319,422 $150,000,000 46,153 39,000 $2,845 MA Enhanced Community Options Program General Revenue $40,141,367 7,166 $5,602 Access Services General Revenue $898,400 NA NR NR MI Community Services General Revenue $6,437,618 NA NR NR In-Home Services General Revenue $6,516,842 NA NR NR MN Alternative Care General Revenue $44,983,000 $65,000,000 5,078 12,193 $8,858 Block Grant and General $11,024,569 NR 4,413 NR $2,498 MO State-Funded In-Home Services Revenue NE Disabled Persons and Family Support General Revenue $910,000 $910,000 304 550 $2,993 NV Community Service Option Program for the Elderly* General Revenue $1,941,798 $998,070 138 241 $14,071 JACC General Revenue $10,000,000 $10,000,000 1,347 1,873 $7,424 NJ Congregate Housing Services Program Casino Revenue Fund and $2,634,827 $3,093,000 2,337 2,994 $1,127 General Revenue GAP Program General Revenue $169,000 NR 28 NR $6,036 Area Agency on Aging Services* General Revenue $20,197,810 $10,905,536 111,067 115,675 $182 NM Indian Area Agency on Aging General Revenue $1,437,251 $1,665,352 3,748 3,900 $383 Navajo Area Agency on Aging General Revenue $2,214,217 $1,006,642 6,024 4,300 $368 Expanded In-Home Services for the Elderly Program General Revenue $52,512,184 $25,500,030 46,383 34,545 $1,132 NY Community Services for the Elderly General Revenue $19,853,000 NR 77,989 NR $255 NC Home and Community Care Block Grant General Revenue $29,931,813 $23,449,112 31,198 72,907 $959 SPED 95% State General Revenue, 5% County Match $6,874,804 NR 15,850 NR $434 ND ESPED General Revenue $453,446 NR 1,395 NR $325 OH Senior Community Services Block Grant General Revenue $10,630,988 NR 13,462 NR $790 OR Oregon Project Independence $6,000,000 $5,106,951 3,602 4,400 $1,666 Senior Property Tax Deferral OPTIONS Program* State Lottery $162,257,000 $206,617,706 51,288 229,506 $3,164 PA Pennsylvania Family Caregiver Support Program General Revenue $8,761,000 $11,173,999 NR 8,020 NA Over 60 Attendant Care State Lottery $11,145,071 NA 642 NA NA RI CoPay Program General Revenue $3,816,776 $3,029,000 1,262 1,800 $3,024 General Revenue, Dedicated SC Alternative Care for the Elderly Taxes from Bingo $1,248,208 $755,389 802 484 $1,561 SD Long-Term Care Alternatives Program (LTCAP) General Revenue See note $2,807,363 See note 1,308 $2,146 TN Options for Community Living General Revenue $5,149,000 NA 3,164 NA $1,627 Table 5. Multiservice HCBS Programs: Funding and Enrollment Funding per Appropriation Number Enrolled State Name of Multiservice HCBS Program Source of State Funding Enrollee FY 2007 FY 2002 FY 2007 FY 2002 TX Area Agency on Aging Services* General Revenue $4,767,229 $5,306,470 227,881 176,625 NA UT Home and Community-Based Alternatives Program General Revenue $3,977,295 $3,644,828 1,059 1,865 $3,756 VT HASS* General Revenue See note $750,110 See note 771 NA VA Community-Based Services General Revenue $5,357,554 $6,283,166 NR NR Senior Services Citizens Act General Revenue $8,786,000 NR NR NR WA Family Caregiver Support Program General Revenue NR $622,810 NR 1,354 WV Lighthouse Lottery Funds $1,000,000 NA 329 NA $3,040 WI Community Options Program (COP Regular) General Revenue $12,011,649 NR NR 2,254 NR WY Community-Based In-Home Services* General Revenue $3,151,144 $1,901,155 2,765 2,781 $1,140 TOTAL $1,068,654,124 $1,313,785,916 922,574 995,252 Notes: NR = not reported * Alaska: Care coordination and respite programs were combined into the Senior In-Home Services program in 2004. * California: The IHSS residual program converted to a §1115 Medicaid Demonstration program. * Colorado: The Older Coloradoans program is included in the State Funding for Senior Services Program. * DC: Includes clients served by federal funds. * Georgia: The number of people enrolled is the aggregate number of participants who received a service and is a duplicated count. * Idaho: This program was reported as an Older Americans Act activity and was not included in the 2008 report. * Illinois: 2007 spending is for the non-Medicaid portion of the program. 2002 spending may include both Medicaid- and state-funded clients. * Pennsylvania: Figures for FY 2002 include programs and services funded through an Aging Services Block grant that includes federal funds. The FY 2007 figures report the OPTIONS component of the block grant and the number of people served who receive care management and other HCBS services. * South Dakota: The Long-Term Care Alternatives program was reorgnized into single-service programs. * Texas: This program provides additional state funds for Older Americans Act services beyond the required match. * Vermont: Services were shifted to the Choices for Care Demonstration. Remaining funds support assessment and coordination. * Wyoming: The number of people served in FY 2002 was reduced to correct a reporting error. Table 6. Locally Funded Multiservice HCBS Programs Are there any locally funded multiservice HCBS programs serving older persons in your state? State Yes No NR If yes, please describe AL x AK x AZ x AR x CA x CO x CT x DE x DC x The local services program provides additional funding to expand long-term care alternatives enabling elders to maintain an acceptable quality of life in their own homes and avoid or delay nursing home placement. This program is funded in four of the 11 Planning and Service FL x Areas. The Department administers the program through contracts with AAAs which subcontract with providers for service delivery. x Some of the larger urban counties provide significant funding to support a variety of social services for older residents, Senior Centers, GA meals, transportation, etc HI x ID x IL x x IN x IA x KS x KY x Faith in Action LA x ME x MD x MA x MI x 63 counties have senior millages that support a variety of multi-service HCBS programs for older adults. MN x MS x 43 of the state's 115 counties have a senior tax levy that may pay for HCBS. The funds are governmed by local Senior Tax Levy Boards that MO x have full discretion to allocate or target the funds. MT x NE x NV x NH x Table 6. Locally Funded Multiservice HCBS Programs Are there any locally funded multiservice HCBS programs serving older persons in your state? NJ x NM x NY x NC x Some counties provide local support in excess of local matching requirements for aging services through the HCBS block grant. ND x Some county Social Service Boards provide HCBS to county residents. OH x 56 of 88 counties have a local tax levy senior services programs. Each is designed locally. OK x OR x PA x RI x Did not know SC x SD x TN x TX x One county received increased tax revenue and developed a program similar to the Home and Community Based Alternatives program with UT x a higher financial eligibility standard. VT x VA x WA x WV x WY x TOTAL 9 39 3 Notes: NR = Not reported Table 7. Multiservice HCBS Programs: Population Served What population does this program serve? State Name of Multiservice HCBS program 60+ 65+ People Older persons & Financially Ineligible for Awaiting placement Receiving Awaiting with other adults with ineligible for Medicaid waiver in the state's Medicaid HCBS placement dementia physical Medicaid services based on Medicaid HCBS services for nursing disabilities health/functional program home care criteria AL None AK Senior In-Home Services x x x x x Non-Medical Home & Community-Based AZ x x x x Services State Aging Services x x x x x x AR Cigarette Tax x x x x x x CA Linkages x x x x x x CO State Funding for Senior Services x x x x x x CT Home Care Program for Elders: State- CT x x Funded DE None DC Senior Services Network x x x x x Alzheimer's Disease Initiative x x x x x x FL Community Care for the Elderly x x x x x x Home Care for the Elderly x x x x x x Community-Based Services Program x State-Funded Alzheimer's Program x x x x x x Alzheimer's Community-Based Services x x x x x x GA Caregiver Kinship Care x x x x x Health & Wellness x x x x x x GA Caregiver Resource Center x x x x x x Income Tax Check-off Fund x x x x x x HI* Kupuna Care x x x x x ID None IL Community Care Program x x x IN CHOICE x x x Senior Living Program x x x x x x IA Elder Service x x x x x x KS Senior Care Act x x x KY Homecare x x x LA None Table 7. Multiservice HCBS Programs: Population Served What population does this program serve? State Name of Multiservice HCBS program 60+ 65+ People Older persons & Financially Ineligible for Awaiting placement Receiving Awaiting with other adults with ineligible for Medicaid waiver in the state's Medicaid HCBS placement dementia physical Medicaid services based on Medicaid HCBS services for nursing disabilities health/functional program home care criteria Home Based Care for Elders & Disabled ME Adults x x x MD Congregate Housing Services * x x x x x MA Home Care Program x Access Services x x x x x x MI Community Services x x x x x x In-Home Service x x x x x x MN Alternative Care x x x MS None MO State-Funded In-Home Services x x x MT None NE Disabled Persons and Family Support x x x x x Community Service Option Program for NV x x x x the Elderly NH None JACC x x NJ Congregate Housing Services Program * GAP Program x x x Area Agency on Aging Services* x x x x x x NM Indian Area Agency on Aging x NR NR NR NR NR Navajo Area Agency on Aging x NR NR NR NR NR Expanded In-Home Services for the x x x x x x NY Elderly Program* Community Services for the Elderly x x x x x x NC Home and Community Care Block Grant x * SPED* x x x x x ND ESPED* x x x OH Senior Community Services x x x OK None OR Oregon Project Independence* x x x x OPTIONS Program x x x Pennsylvania Family Caregiver Support x PA Program Over 60 Attendant Care x x RI CoPay Program x x x Table 7. Multiservice HCBS Programs: Population Served What population does this program serve? State Name of Multiservice HCBS program 60+ 65+ People Older persons & Financially Ineligible for Awaiting placement Receiving Awaiting with other adults with ineligible for Medicaid waiver in the state's Medicaid HCBS placement dementia physical Medicaid services based on Medicaid HCBS services for nursing disabilities health/functional program home care criteria SC Alternative Care for the Elderly x x x x x x SD None TN Options for Community Living x x x TX Area Agency on Aging Services* x Home and Community-Based Alternatives UT x x x x x Program VT None VA Community-Based Services x WA Senior Services Citizens Act x x x WV Lighthouse x x x x x WY Community-Based In-Home services x x x x x TOTAL 36 6 4 13 50 39 38 30 27 Notes: NR = not reported * Connecticut: The program serves individuals with Alzheimer's disease and related dementias. * Hawaii: Also serve individuals with income below the poverty level. * Iowa: The Senior Living Program is a program of last resort that can cover services above the Medicaid waiver maximums. * Maine: Also serves people who are functionally but not financial eligible for Medicaid waiver services. * Maryland: Sserves individuals 62 and older living in selected housing sites. * New Jersey: Congregate Housing Services Program serves adults 62 and over. * New York: Must also meet other program eligibility criteria. * North Carolina: Eligibility is not means-tested but services are targeted to low-income, monitority and rural elders. * North Dakota: SPED serves those who do not have severe impairments in toileting, transferring, or eating and are impaired in at least three IADLs. * North Dakota: ESPED serves individuals with impairments in 4 ADLs or 5 IADLs. * Oregon: Also serves individuals with Alzheimer's and related diseases. Table 8. Multiservice HCBS Programs: Income Limits Name of Multiservice HCBS Program What is the Is the amount tied to a common income standard Does the program disregard certain types or amounts Is eligibility based on income limit (e.g., a percentage of the federal poverty level)? of income and/or certain expenses when determining individual or household State for a single eligibility? income? individual to Ind Hshold qualify? Yes If yes, please describe No NA Yes If yes, please describe No NA income income NA AL None AK Senior In-Home Services $1,911/mo x 300% of SSI x Permanent Fund Dividend x AZ Independent Living Supports None x x x AR State Aging Services None x x x Cigarette Tax None x x x CA Linkages None x x CO State Funding for Senior Services None x x x Home Care Program for Elders: State- CT Funded None x x x DE None DC Senior Services Network None x x x Alzheimer's Disease Initiative None x x x FL Community Care for the Elderly None x x x Home Care for the Elderly $1,911/mo x 300% of SSI x Community-Based Services Program None x x x State-Funded Alzheimer's Program None x x x Alzheimer's Community Based Services None x x x GA Caregiver Kinship Care None x x x Health & Wellness None x x x GA Caregiver Resource Center None x x x Income Tax Check-off Fund None x x x HI Kupuna Care None x x x ID None IL Community Care Program None x x x For cost sharing, health insurance premiums, long-term care costs, IN CHOICE None x x x psychological services, and other payments Less than Senior Living Program x 300% of FPL x x IA $30,630/year Elder Services None x x x KS Senior Care Act None x x x Extraordinary medical expenses, durable medical equipment, prepaid KY Homecare None x burial, and home modications in the last x six months. LA None Table 8. Multiservice HCBS Programs: Income Limits Name of Multiservice HCBS Program What is the Is the amount tied to a common income standard Does the program disregard certain types or amounts Is eligibility based on income limit (e.g., a percentage of the federal poverty level)? of income and/or certain expenses when determining individual or household State for a single eligibility? income? individual to Ind Hshold qualify? Yes If yes, please describe No NA Yes If yes, please describe No NA income income NA Home-Based Care for Elders & Disabled ME None x x x Adults 60% of state median income Allowable medical expenses * * MD Congregate Housing Services Program $2,444/mo x Rental income is adjusted based on MA Home Care Program $1,696/mo x x expenses (i.e., repairs) but very few x people have rental income Access Services None x x x MI Community Services None x x x In-Home Services None x x x Income and assets would Combined Recurring, predictable monthly medical cover 6 months or less of income & expenses, clothing, personal needs MN Alternative Care x nursing home costs based on x x assets are at or allowance, unpaid past medical bills, individual's level of need or below $23,276 $1,500 burial exclusion "case mix.") MS None MO State-Funded In-Home Services See note x x MT None NE Disabled Persons & Family Support $1,364/mo x Median income/family of 4 x Disability and medical expenses x Community Service Option Program for the NV $2,812/mo x x Medical expense x Elderly NH None Supplemental medical insurance premiums, prescribed medical $3,106/mo expenses not reimbursed by insurance; individual client employed-provider insurance: JACC x 365% of FPL x x NJ $4,165/mo Liability and Worker's Comp; standard couple deduction of $160/individual or $309/couple can be used instead of itemizing deductions. Congregate Housing Services Program $930/mo x GAP Program $1,911/mo x 300% of SSI x x Area Agencies on Aging None x x x NM Indian Area Agency on Aging None x x x Navajo Area Agency on Aging None x x x Expanded In-Home Services for the Elderly None x x x NY Program Community Services for the Elderly None x x x NC Home and Community Care Block Grant None x x x Table 8. Multiservice HCBS Programs: Income Limits Name of Multiservice HCBS Program What is the Is the amount tied to a common income standard Does the program disregard certain types or amounts Is eligibility based on income limit (e.g., a percentage of the federal poverty level)? of income and/or certain expenses when determining individual or household State for a single eligibility? income? individual to Ind Hshold qualify? Yes If yes, please describe No NA Yes If yes, please describe No NA income income NA SPED $50,000 x x Primary residence x ND ESPED Medicaid x x x OH Senior Community Services Block Grant None x x x OK None OR Oregon Project Independence None x x x OPTIONS Program None x $100/mo for utilities, 7.5% medical x x PA expenses to establish sliding fee share PA Family Caregiver Support Program $39,520 x 300% of FPL x x Over 60 Attendant Care None x x x Prescription drug and adult day care RI CoPay Program $19,341/year x x x services SC Alternative Care for the Elderly None x x x SD None TN Options for Community Living None x x TX Area Agencies on Aging Services None x x x Deductions for medical bills & prescriptions >10% of monthly gross income; Child support,alimony, rent or mortgage > 30% of monthly gross Home & Community -Based Alternatives income; Unreimbursed costs of death UT $1,300/mo x 100% of FPL x x Program or burial durin the preceding 12 months; Relocation payments, uranium mining exposure (similar to Black Lung), foster grandparent and senior companion payments. VT None VA Community-Based Services None x x x 100% of state median income WA Senior Services Citizens Act - x x WV Lighthouse None FPL x x WY Community-Based In-Home Services None x x x Notes: NA = not applicable. NR = not reported. * Maryland counts individual income for single persons and household income for couples. * Missouri: This program provides state-funded service during periods of ineligibility for Medicaid or when individuals have not met their spend-down to qualify for Medicaid. Table 9. Multiservice HCBS Programs: Asset Limits Does the program disregard certain types or amounts of assets when Are asset limits used to determine eligibility? State Name of Multiservice HCBS Program determining eligibility? Yes Asset Limits No NR Yes If yes, please describe No N/A AL None AK Senior In-Home Services x x AZ Independent Living Services x x State Aging Services x x AR Cigarette Tax x x CA Linkages x x CO State Funding for Senior Services x x Primary residence, furnishings, personal belongings; motor vehicle that is the applicant's essential means of CT Home Care Program for Elders: State- $31,320/individual; transportation; irrevocable burial trusts up to $5,400 for each CT x x person or revocable contracts up to $1,800 for each person; Funded $41,760/couple burial plots; total case surrender value for life insurance policies that do not exceed $1,500. DE None DC Senior Services Network x x Alzheimer's Disease Initiative x x Community Care for the Elderly x x FL Homestead, vehicle, prepaid burial contract, burial funds up to $2,000/individual $2,500, life insurance with face value under $2,500 Home Care for the Elderly x x $5,000/couple Community-Based Services Program x x State-Funded Alzheimer's Program x x Alzheimer's Community Based Services x x GA Caregiver Kinship Care x x Health & Wellness x x Caregiver Resource Center x x Income Tax Check-off Fund x x HI Kupuna Care x x ID None Homestead property, clothing and personal effcts, household furnishings, business or farming equipment used for the production of income, motor vehicles except those primarily for recreational purposes, group life insurance, the principal of a trust only when trust states the principal cannot be impaired, IL Community Care Program x $17,500/individual x prepaid burial plan up to $1,500, life insurance policy with total face or cash value or $1,500 or less, and value of Food Stamp coupon. Table 9. Multiservice HCBS Programs: Asset Limits Does the program disregard certain types or amounts of assets when Are asset limits used to determine eligibility? State Name of Multiservice HCBS Program determining eligibility? Yes Asset Limits No NR Yes If yes, please describe No N/A Checking and savings accounts, CDs, IRAs, stocks, bonds, IN CHOICE x $500,000 x mutual funds, cash surrender valua of life insurance, non- income producing real estate. x Senior Living Program x x IA Elder Services x x KS Senior Care Act x x KY Homecare x x LA None ME Home-Based Care for Elders & Disabled x $50,000/individual; $75,000 Adults couple x Real property that was the primary residence of a participant immediately before admission to the Program may not be counted towards the asset limit for 1 year after the date of admission to the Program. If after 1 year from admission the $27,375/individual; participant retains any ownership interest in the real property MD Congregate Housing Services Program x $45,585/couple x that was the primary residence of the participant immediately before admission, the value of the participant's ownership interest shall be counted against the asset limit. MA Home Care Program x x Access Services x x MI Community Services x x In-Home Services x x Combined income and Homestead property, 1 vehicle, personal property, cash value assets are at or below of life insurance under $1,500, burial accounts up to $1,500. MN Alternative Care x $23,276, which equals 135 x and real property contiguous to homestead days of NF care MS None MO State-Funded In-Home Services x x MT None NE Disabled Persons and Family Support x x Community Service Option Program for the $10,000/individual NV x x Elderly $15,000/couple NH None $40,000/individual JACC x x NJ $60,000/couple Congregate Housing Services Program x GAP Program x $2,000 x $1,500 burial account Area Agencies on Aging x x NM Indian Area Agency on Aging x x Navajo Area Agency on Aging x x Table 9. Multiservice HCBS Programs: Asset Limits Does the program disregard certain types or amounts of assets when Are asset limits used to determine eligibility? State Name of Multiservice HCBS Program determining eligibility? Yes Asset Limits No NR Yes If yes, please describe No N/A Expanded In-Home Services for the Elderly x x NY Program Community Services for the Elderly x x NC Home and Community Care Block Grant x x SPED x $50,000 in liquid assets x Real property ND ESPED x $2,000/individual x $3,000/couple OH Senior Community Services Block Grant x x OK None OR Oregon Project Independence x x OPTIONS Program x x Pennsylvania Family Caregiver Support PA x x Program Over 60 Attendant Care x x RI CoPay Program x x SC Alternative Care for the Elderly x x SD None TN Options for Community Living x Do not include home, automobile, and personal belongings TX Area Agencies on Aging Services x x Home and Community-Based Alternatives $6,000/individual UT Program x $12,000/couple x Home x VT None x VA Community-Based Services x x $10,000/individual Home, personal property used to produce income or for WA Senior Services Citizens Act x x $15,000/two persons rehabilitation, cash surrender value of life insurance, one cemetery plot, automobile, and other personal property WV Lighthouse x x WY Community-Based In-Home Services x TOTAL 15 44 1 10 4 46 Notes: NR = not reported Table 10. Multiservice HCBS Programs: Service Limits Does this program limit the amount or If yes, please describe the limit and how it is defined. State Name of Multiservice HCBS Program quantity of any covered service? Yes No NR Service type/name Amount of limit Type of limit Duration of limit AL None Senior In-Home Services x Respite 40 hours Month AK Chore services 10 hours Month AZ Independent Living Supports x State Aging Services x AAA requests voluntary donation AR Cigarette Tax x AAA requests voluntary donation CA Linkages x CO State Funding for Senior Services x CT Home Care Program for Elders: State-Funded x DE None 2-8 (may vary with DC Senior Services Network x Homemaker financial status of hours Week DC) Alzheimer's Disease Initiative x FL Community Care for the Elderly x Home Care for the Elderly x Community-Based Services Program x State-Funded Alzheimer's Program x Alzheimer's Community Based Services x GA Caregiver Kinship Care x Health & Wellness x GA Caregiver Resource Center x Income Tax Check-off Fund x HI Kupuna Care x ID None IL Community Care Program x IN CHOICE x Senior Living Program x IA Elder Services* x KS Senior Care Act x KY Homecare x Based on need and available funding LA None Table 10. Multiservice HCBS Programs: Service Limits Does this program limit the amount or If yes, please describe the limit and how it is defined. State Name of Multiservice HCBS Program quantity of any covered service? Yes No NR Service type/name Amount of limit Type of limit Duration of limit Ave Medicaid per 2 weeks ME Home-Based Care for Elders & Disabled Adults x Institutional respite 2 weeks diem Standard model: 3 Per week Ongoing Personal assistance; housekeeping; hours; individualized MD Congregate Housing Services Program x model: 9 hours laundry MA Home Care Program x Access Services x MI Community Services x In-Home Services x Care plan limited to 75% of monthly MN Alternative Care x Elderly Waiver case mix cap; home Per year modifications cappped at $4,845 MS None MO State-Funded In-Home Services x MT None NE Disabled Persons and Family Support x Chore $100 dollars month Community Service Option Program for the Homemaker 2 hours hours NV Elderly x Respite 2 weeks weeks Adult Day Care 1 day week NH None JACC x NJ Congregate Housing Services Program x $600 month GAP Program x Area Agencies on Aging x NM Indian Area Agency on Aging x Navajo Area Agency on Aging x Expanded In-Home Services for the Elderly x NY Program Community Services for the Elderly x NC Home and Community Care Block Grant x Table 10. Multiservice HCBS Programs: Service Limits Does this program limit the amount or If yes, please describe the limit and how it is defined. State Name of Multiservice HCBS Program quantity of any covered service? Yes No NR Service type/name Amount of limit Type of limit Duration of limit Respite, Homemaker, Family Home $725; $244; $26.84 month/month/day SPED x Care ND ESPED x Same as SPED Same as SPED Same as SPED OH Senior Community Services Block Grant x Depends on local policy OK None OR Oregon Project Independence x OPTIONS Program x Pennsylvania Family Caregiver Support Program Services and supplies; home Month; maximum for PA x $200; $2,000 dollars modifications entire duration Over 60 Attendant Care x Certified nursing assistant 20 hrs week RI CoPay Program x Adult Day Services 5 days week SC Alternative Care for the Elderly x SD None TN Options for Community Living x TX Area Agencies on Aging Services x Respite $300 dollars quarter Home and Community-Based Alternatives UT x Program VT None VA Community-Based Services x WA Senior Services Citizens Act x Personal care, mobility assistance, WV Lighthouse x 60 hours month nutrition assistance, houskeeping* WY Community-Based In-Home Services x Home Modifications $300 one time TOTAL 16 42 2 Notes: NR = not reported * Iowa: Limits may be placed by local Area Agencies on Aging but there are no statewide limits. * Ohio: Varies by local program and available resources. * West Virginia: Housekeeping is limited to 33% of the total service plan. Table 11. Multiservice HCBS Programs: Cost Caps Does this program set an upper limit on the total cost If yes, is this care plan cost cap tied to a related factor? of services provided to an individual (care plan cost State Name of Multiservice HCBS Program cap)? Yes If yes, amount No NR Yes No NA If yes, please describe AL None AK Senior In-Home Services x x AZ Independent Living Supports x x State Aging Services x x AR Cigarette Tax x x CA Linkages x x CO State Funding for Senior Services x CT CT Home Care Program for Elders: State- x 25% of the cost of NF care for x Client is placed in category according to Funded people at risk; 50% of the cost functional need: Category I (at risk, of NF care for those who meet moderately frail) is 25% of nursing facility level of care but are not cost and Category II (immediate need, very financially eligible for Medicaid frail) is 50% of nursing facility cost. DE None DC Senior Services Network x x Alzheimer's Disease Initiative x x FL Community Care for the Elderly x x Home Care for the Elderly x x Community-Based Services Program x x State-Funded Alzheimer's Program x x Alzheimer's Community Based Services x x GA Caregiver Kinship Care x x Health & Wellness x x GA Caregiver Resource Center x x Income Tax Check-off Fund x x HI Kupuna Care x x ID None x Varies by assessment score x IL Community Care Program and primary service type. 3 months cost of nursing IN CHOICE x x Skilled Nursing Facility Index facility care Senior Living Program x x IA Elder Services x x Table 11. Multiservice HCBS Programs: Cost Caps Does this program set an upper limit on the total cost If yes, is this care plan cost cap tied to a related factor? of services provided to an individual (care plan cost State Name of Multiservice HCBS Program cap)? Yes If yes, amount No NR Yes No NA If yes, please describe KS Senior Care Act x $1,445 x KY Homecare x x LA None x Level I = $900/mo; x Level IV = 85% of average cost of nursing Level II = $1,100/mo facility. Level III = $1,675/mo Home-Based Care for Elders & Disabled ME Level IV = $2,033436/mo Adults (Levels are based on functional need) MD Congregate Housing Services Program x x MA Home Care Program x x Access Services x x MI Community Services x x In-Home Services x x x 75% of monthly Elderly Waiver x MN Alternative Care cap MS None MO State-Funded In-Home Services x $2,604 x Nursing facility cost cap MT None NE Disabled Persons and Family Support x $300/mo Community Home-Based Initiatives Program x x NV NH None JACC x $600/mo x NJ Congregate Housing Services Program x GAP Program x $7,000 over three years x Area Agencies on Aging x x NM Indian Area Agency on Aging x x Navajo Area Agency on Aging x x Expanded In-Home Services for the Elderly x x NY Program Community Services for the Elderly x x NC Home and Community Care Block Grant x Table 11. Multiservice HCBS Programs: Cost Caps Does this program set an upper limit on the total cost If yes, is this care plan cost cap tied to a related factor? of services provided to an individual (care plan cost State Name of Multiservice HCBS Program cap)? Yes If yes, amount No NR Yes No NA If yes, please describe SPED x $1,602/mo x ND ESPED x $1,602/mo x OH Senior Community Services Block Grant x OK None OR Oregon Project Independence x OPTIONS Program x $714/mo x Pennsylvania Family Caregiver Support x $200/mo x PA Program Over 60 Attendant Care x x RI CoPay Program x x SC Alternative Care for the Elderly x x SD None TN Options for Community Living x TX Area Agencies on Aging Services x x Home and Community-Based Alternatives x $750/mo x UT Program VT None VA Community-Based Services x WA Senior Services Citizens Act x x WV Lighthouse x $930/mo x WY Community Based In-Home Services x x TOTAL 16 43 1 4 10 38 Notes: NR = not reported. Table 12. Multiservice HCBS Programs: Cost Sharing State Name of Multiservice HCBS Program Do participants of this program If yes, please describe the methodology to determine the amount of co-payment for an share in the cost of care? individual. Yes No NR AL None AK Senior In-Home Services x Sliding fee scale. Independent Living Services x Cost sharing is required for respite services but AAAs are encouraged to implement cost AZ sharing for other services. State Aging Services x AR Cigarette Tax x CA Linkages x CO State Funding for Senior Services x CT CT Home Care Program for Elders: State- x Yes, if their income exceeds 200% of FPL. Funded DE None DC Senior Services Network x Alzheimer's Disease Initiative x Sliding fee scale. Clients with an income of $1.00 or more must make a copayment unless they are determined exempt. Clients who are automatically exempt are Home Care for the Elderly clients, Medicaid Waiver clients, Adult Protective Service clients (exemption cannot exceed 30 days), and individuals and couples with less than $1.00 monthly income. FL Community Care for the Elderly x Sliding fee scale. Clients with an income of $1.00 or more must make a copayment unless they are determined exempt. Clients who are automatically exempt are: Home Care for the Elderly clients, Medicaid Waiver clients, Adult Protective Service clients (exemption cannot exceed 30 days), and individuals and couples with less than $1.00 monthly income. Home Care for the Elderly x Community-Based Services Program x Sliding fee scale. Household size and annual income are used to determine the percentage of the unit cost for a service that is assessed as a fee or copay. Individuals with income at or below 125% of FPL do not pay a fee. Those with income above 400% of FPL pay 100% of the cost of service. State-Funded Alzheimer's Program x Same as above. GA Alzheimer's Community Based Services x Same as above. Caregiver Resource Center x Same as above. Income Tax Check-off Fund x Same as above. Caregiver Kinship Care x Health & Wellness x Table 12. Multiservice HCBS Programs: Cost Sharing State Name of Multiservice HCBS Program Do participants of this program If yes, please describe the methodology to determine the amount of co-payment for an share in the cost of care? individual. Yes No NR Sliding fee scale for all services except case management and home-delivered meals. Individuals with incomes at or below $1,107/mo (150% of FPL) are not charged a fee. Those with incomes between $1,108-1,845/mo (150-250% of FPL) pay 1/3 of the service cost; those HI Kupuna Care x with incomes between $1,845-2,583/mo(250-350% of FPL) pay 2/3 of the service cost; those with incomes above $2,583/mo (350% of FPL) pay the full cost. Out-of-pocket health care expenses and emergency expense are deducted. ID None IL Community Care Program x Sliding fee scale based on poverty level. Sliding fee scale. Individuals with income below 151% of FPL pay nothing, and those with IN CHOICE x incomes at or above 351% of FPL pay full cost of services. Senior Living Program x IA Elder Services x KS Senior Care Act x Sliding fee based on household income. Sliding fee scale based on federal poverty guidelines. A one-person household with income less KY Homecare x than 130% FPL does not pay a fee; 130-149% pays 20% of cost;150-169% pays 40%; 170- 189% pays 60%; 190-209% pays 80%; and 210% and higher pays full cost. LA None Home-Based Care for Elders & Disabled x 3% of assets monthly ($15,000 asset disregard); 4% of monthly income. ME Adults MD Congregate Housing Services Program x Based on net income. MA Home Care Program x Monthly fee based on annual gross income only. Access Services x MI Community Services x In-Home Services x Sliding fee scale. Individuals with income between 100%-150% of FPL and gross assets < MN Alternative Care x $10,000 pay 5% of service cost; 150%-200% FPL pay 15% of service costs; over 200% FPL or assets over $10,000 pay 30% of service costs. MS None MO State-Funded In-Home Services x Sliding fee scale. MT None NE Disabled Persons and Family Support x NV Community Service Option Program for the x Eliminated in July 2008. Elderly NH None Table 12. Multiservice HCBS Programs: Cost Sharing State Name of Multiservice HCBS Program Do participants of this program If yes, please describe the methodology to determine the amount of co-payment for an share in the cost of care? individual. Yes No NR x Sliding fee scale. Copay amounts can be $0, $15, $30, $60, $90, or $120 based on monthly income (i.e., individuals with incomes below $1,153 have no co-pay; $1,154-$1,517 - $15; JACC $1,518-$1,951 - $30; $1,952-$2,384 - $60; $2,358-$2,818 - $90; $2,819-$3,165 - $120). NJ Congregate Housing Services Program x Sliding fee scale. GAP Program x Individuals contribute to environmental modications that exceed $7,000. Area Agencies on Aging x NM Indian Area Agency on Aging x Navajo Area Agency on Aging x Expanded In-Home Services for the Elderly Sliding fee scale starts at 150 FPL and applies to some service. Some exclusions from income x NY Program (EISEP) are allowed, such as housing costs that exceed 40% of income. Community Services for the Elderly x Sliding fee for EISEP-like services; no fee for other services. NC Home and Community Care Block Grant x Voluntary donations. SPED x Separate sliding fee scales for $0-$24,999 and $25,000-$50,000. ND ESPED x OH Senior Community Services Block Grant x Sliding fee scale. OK None Sliding fee starts at 100% of FPL and increases in $25 increments to 200% of FPL. Full cost OR Oregon Project Independence x above 200% FPL. Monthly fees are limited to 30% of net income for a one-person household and 40% for two or more. All medical costs are deducted from gross income. OPTIONS Program x Sliding fee scale. Individuals with incomes at or below 100% of PFL have no copay. Those with income above 300% of FPL pay the full cost of services. PA Pennsylvania Family Caregiver Support x Sliding fee scale. Individuals with incomes at or below 125% of FPL have no copay; full Program payment starts at 300% of FPL. Over 60 Attendant Care x RI CoPay Program x Sliding scale based on income. SC Alternative Care for the Elderly x Sliding fee. SD None TN Options for Community Living x Sliding fee calculated by Area Agency on Aging. TX Area Agencies on Aging Services x Home and Community-Based Alternatives x Sliding fee that ranges from zero to $34 per month. UT Program VT None Some local Area Agencies on Aging operate their home and community-based care services on VA Community-Based Services x a fee-for-service basis and charge people using a sliding fee scale. Table 12. Multiservice HCBS Programs: Cost Sharing State Name of Multiservice HCBS Program Do participants of this program If yes, please describe the methodology to determine the amount of co-payment for an share in the cost of care? individual. Yes No NR No fee below 40% of state median income; sliding fee scale between 40-100% of state median WA Senior Services Citizens Act x income. WV Lighthouse x Sliding fee scale based on Federal Poverty Level WY Community-Based In-Home Services x Sliding fee scale based on Federal Poverty Level TOTAL 38 21 1 Notes: NR = not reported. Table 13a. Multiservice HCBS Programs: Services Provided* Home Home Home- Name of Multiservice HCBS Skilled Personal Chore Respite Care Transpor- Adult Day State Health Health Homemaker Delivered Program Nursing Care Services Care Mgmt tation Care Aide Care Meals AL None AK Senior In-Home Services x x x x AZ Independent Living Supports x x x x x x x x x State Aging Services x x AR Cigarette Tax x x CA Linkages x x x x x x x x CO State Funding for Senior Services x x x x x x x CT Home Care Program for Elders: CT x x x x x x x x x x State-Funded DE None DC Senior Services Network x x x x x x x x x Alzheimer's Disease Initiative x x x FL Community Care for the Elderly x x x x x x x x x Home Care for the Elderly x x x x x Community-Based Services Program x x x x x x x x State-Funded Alzheimer's Program x x x Alzheimer's Community-Based GA Services x x Caregiver Kinship Care x Health & Wellness Caregiver Resource Center x x Income Tax Check-off Fund x x HI Kupuna Care x x x x x x x ID None IL Community Care Program x x x x IN CHOICE x x x x x x x x x x x Senior Living Program x x x x x x x IA Elder Services x x x x x x x KS Senior Care Act x x x x x x x KY Homecare x x x x x x x x x LA None Table 13a. Multiservice HCBS Programs: Services Provided* Home Home Home- Name of Multiservice HCBS Skilled Personal Chore Respite Care Transpor- Adult Day State Health Health Homemaker Delivered Program Nursing Care Services Care Mgmt tation Care Aide Care Meals Home-Based Care for Elders & ME Disabled Adults x x x x x x x x x Congregate Housing Services MD x x x Program MA Home Care Program x x x x x x x x x x Access Services x MI Community Services x x x x x x In-Home Services x x x MN Alternative Care x x x x x x x x x x x MS None MO State-Funded In-Home Services x x x x x x MT None NE Disabled Persons & Family Support x x x x x x x x Community Service Option Program NV for the Elderly * x x x x x NH None NJ JACC x x x x x x x x x Congregate Housing Services x x x Program GAP Program Area Agencies on Aging x x x x x x x x NM Indian Area Agency on Aging x x x x x x x x Navajo Area Agency on Aging x x x Expanded In-Home Services for the x x x x x NY Elderly Program Community Services for the Elderly x x x x x x x x x Home & Community Care Block NC x x x x x x x x x Grant SPED x x x x x x ND ESPED x x x x x x Senior Community Services Block OH x x x x x x x x Grant OK None OR Oregon Project Independence x x x x x x x x x Table 13a. Multiservice HCBS Programs: Services Provided* Home Home Home- Name of Multiservice HCBS Skilled Personal Chore Respite Care Transpor- Adult Day State Health Health Homemaker Delivered Program Nursing Care Services Care Mgmt tation Care Aide Care Meals OPTIONS Program x x x x x x x x x x Family Carewgiver SupportSupport PA x x x x x x x x x x Program Over 60 Attendant Care x x RI CoPay Program x x x x x SC Alternative Care for the Elderly x x x x SD None TN Options for Community Living x x x x TX Area Agencies on Aging Services x x x x x x Home and Community-Based UT Alternatives Program x x x x x x x x x x VT None VA Community-Based Services x x x x x WA Senior Services Citizens Act x x x x x x x x x x x WV Lighthouse x x x WY Community-Based In-Home Services x x x x x x TOTAL 8 22 11 45 44 32 43 45 33 34 41 Percent of programs covering this service 13% 37% 18% 75% 73% 53% 72% 75% 55% 57% 68% Notes: NR = Not reported. State totals are in Table 13b. * Programs that use a different name for a service that is consistent with the definition included on the survey are considered to offer the service listed. Table 13b. Multiservice HCBS Programs: Services Provided (continued) Emergency Spec Med Adult Total Habili- Home Assessment Assisted State Name of Multiservice HCBS Program Response Equip/ Foster Number of Other (specify) tation Repair/Mod Services Living System Supplies Care Services AL None - AK Senior In-Home Services 3 AZ Independent Living Supports x x x x 13 State Aging Services 2 Senior Center activities. AR Cigarette Tax 2 Senior Center activities. CA Linkages x x x x x x 14 Health promotion: including art therapy, music CO State Funding for Senior Services x x x x 12 therapy, dental, hearing, immunizations, medication management screening & education, insurance counseling, physical fitness & vision. CT Home Care Program for Elders: State- CT x x x 13 Mental health counseling. Funded DE None - DC Senior Services Network x x 11 Memory disorder clinics; caregiver training & Alzheimer's Disease Initiative x 4 support groups. FL Community Care for the Elderly x x x 12 Home Care for the Elderly x x x 8 Special cash subsidy. Activities that promote socialization, physcial and Community-Based Services Program x x x x x 13 mental enrichment; community public education; information and assistance. State-Funded Alzheimer's Program x 4 Alzheimer's Community-Based Services 2 Outreach to information of other services GA Caregiver Kinship Care 1 available and counseling to assist with decision making. Activities that promote health, wellness, mobility and flexibiity, including specialized workouts for Health & Wellness 0 persons with disabilities or mobility limitations. GA Caregiver Resource Center 2 Public information. Income Tax Check-off Fund 2 HI Kupuna Care 7 ID None - IL Community Care Program x 5 IN CHOICE x x x x x 16 Table 13b. Multiservice HCBS Programs: Services Provided (continued) Emergency Spec Med Adult Total Habili- Home Assessment Assisted State Name of Multiservice HCBS Program Response Equip/ Foster Number of Other (specify) tation Repair/Mod Services Living System Supplies Care Services Senior Living Program x x x 10 Mental Health. IA Elder Services x x x 10 Mental Health. KS Senior Care Act x x x x 11 KY Homecare x x 1 1 LA None - Home-Based Care for Elders & Disabled ME x x 11 Adults At least two meals per day either cooked on-site MD Congregate Housing Services Program 2 or catered and served in a community setting. Companion, grocery shopping & delivery, home based wandering response, laundry, medication MA Home Care Program x x x x x 15 dispensing system, supportive day care, supportive home care aide, transitional assistance, wanderer locator. Information & assistance, outreach, case 1 Access Services coordination & support. Community Services x x 8 Friendly reassurance. MI Disease prevention/health promotion, nutrtiion In-Home Services x 4 counseling, legal assistance, services for the deaf & visually impaired. MN Alternative Care x x x x x 16 Family adult day services, caregiver training & MS None - . MO State-Funded In-Home Services 5 Counseling services. MT None - NE Disabled Persons & Family Support x x 9 Community Service Option Program for NV x 6 the Elderly NH None - Adult social day care is separate from adult day JACC x x 11 NJ health care. Congregate Housing Services Program 3 GAP Program x x 2 Area Agencies on Aging x x 10 NM Indian Area Agency on Aging x x 10 Navajo Area Agency on Aging 4 Table 13b. Multiservice HCBS Programs: Services Provided (continued) Emergency Spec Med Adult Total Habili- Home Assessment Assisted State Name of Multiservice HCBS Program Response Equip/ Foster Number of Other (specify) tation Repair/Mod Services Living System Supplies Care Services Expanded In-Home Services for the Several of the services listed are covered as x x x x 9 NY Elderly Program ancillary services. Community Services for the Elderly x x x x 13 NC Home & Community Care Block Grant x 0 1 ND SPED x x x 9 Family home care.* ESPED x x x 9 Family home care.* OH x x x 1 1 Senior Community Services Block Grant OK None - OR Oregon Project Independence x x 11 Assisted transportation (escort); long term care planning; other services approved by DHS. OPTIONS Program x x x x x x 16 Personal assistance services. PA Family Caregiver Support Program x x x x 14 Over 60 Attendant Care x 2 Personal assistance services. RI CoPay Program 4 SC Alternative Care for the Elderly 4 SD None - TN Options for Community Living 3 TX Area Agencies on Aging Services x x 8 Home and Community-Based Alternatives UT x x x x 14 Program VT None - VA Community-Based Services 5 WA Senior Services Citizens Act x x x x 15 WV Lighthouse x 4 WY Community-Based In-Home Services x x x 9 TOTAL 6 29 21 35 26 0 4 Percent of programs covering this service 10% 48% 35% 58% 43% 0% 7% Notes: North Dakota: Family home care is provided by relatives and adult foster care is provided by non-relatives. Table 14: Case Management Functions State Name of Multiservice HCBS Has case Financial Complete Functional Develops Authorize Monitor Coordinate Reassess- Approves Other Provide Program manage- eligibility assess- eligibility care plan services service services ment changes in waiver case ment ment delivery care plan manage- ment AL None AK Senior In-Home Services x x x x x x x AZ Independent Living Support x x x x x x x x x x State Aging Services No AR Cigarette Tax No CA Linkages x x x x x x x x x State Funding for Senior No CO Services Home Care Program for Elders - CT x x x x x State Funded DE None DC Senior Services Network x x x x x x x x x x Alzheimer's Disease Initiative x x x x x x x x x Community Care for the Elderly x x x x x x x x x FL Home Care for the Elderly x x x x x x x x x x Community-Based Services x Program State-Funded Alzheimer's Program * Alzheimer's Community-Based GA Services * Caregiver Kinship Care * Health & Wellness No Caregiver Resource Center * Income Tax Check-off Fund ** HI Kapuna Care x x x x x x x ID None IL Community Care Program x x x x x x x x x x x IN CHOICE x x x x x x x x x x x Senior Living Program x x x x x x x x x x IA Elder Services x x x x x x x x x x KS Senior Care Act x x x x x x x x x x KY Home care x x x x x x x x x x LA None Table 14: Case Management Functions State Name of Multiservice HCBS Has case Financial Complete Functional Develops Authorize Monitor Coordinate Reassess- Approves Other Provide Program manage- eligibility assess- eligibility care plan services service services ment changes in waiver case ment ment delivery care plan manage- ment Home-Based Care for Elders & x x x ME Disabled Adults Congregate Housing Services MD x x x x x x x x x x x Program MA Home Care Program x x x x x x x x x x x Access Services x x x x x x x x x x MI Community Services In-Home Services MN Alternative Care Program x x x x x x x x x x x x MS None State-Funded In-Home Services MO x x x x x x x x x x x MT None Disabled Persons and Family NE x x x Support Community Service Option NV x x x x x x x x x x x Program for the Elderly NH None JACC x x x x x x x x x x NJ Congregate Housing Services NR Program GAP Program Area Agencies on Aging x NM Indian Area Agency on Aging x Navajo Area Agency on Aging Expanded In-Home Services for x x x x x x x x x the Elderly Program* NY Community Services for the x x x x x x x x x x Elderly* Home and Community Care NC x x x x x x x x x x Block Grant SPED x x x x x x x x x x x ND ESPED x x x x x x x x x x x Table 14: Case Management Functions State Name of Multiservice HCBS Has case Financial Complete Functional Develops Authorize Monitor Coordinate Reassess- Approves Other Provide Program manage- eligibility assess- eligibility care plan services service services ment changes in waiver case ment ment delivery care plan manage- ment Senior Community Services OH x x x x x x x x x Block Grant OK None OR Oregon Project Independence x x x x x x x x x x x OPTIONS Program x x x x x x x x x Family Caregiver Support PA x x x x x x x x x x Program Over 60 Attendant Care x x x x x x x RI CoPay Program x x x x x x x x x Alternative Care for the Elderly SC x x x x x x SD None TN Options for Community Living x x x x x x x x x Area Agencies on Aging x x x x x x x TX Services Home and Community-Based UT x x x x x x x x x x x Alternatives Program VT None VA Community-Based Services No WA Senior Services Citizens Act x x x x x x x x x x WV Lighthouse x x x x x x x x x x Community-Based In-Home WY x x x x x x x x x x x Services TOTAL 45 23 38 31 40 35 39 40 36 34 6 26 Percent 75% 55% 90% 74% 95% 83% 93% 95% 86% 81% 14% 62% Notes: Care management functions are calculated as a percentage of programs with care management. Georgia: * Case management is not mandatory. Eligibility, assessment, impairment level, and unmet need are completed at the AAA single entry point but not with this funding source. Georgia: Clients of the community-based services program may receive case management which is supported by this funding source. Minnesota: Assists with contracting with providers. New Mexico: Reported that case management was covered but did not specify the functions. Table 15. Multiservice HCBS Programs: Consumer Direction State Name of Multiservice HCBS Program Is there an option for What percentage choose consumer Scope of consumer-directed activities consumer direction in this direction? program? Yes No NR AL None AK Senior In-Home Services x Independent Living Support x AZ Tobacco Tax Program x State Aging Services x AR Cigarette Tax x CA Linkages x Consumers do not manage a budget except for certain voucher services where consumers are allocated a set amount and selects CO State Funding for Senior Services x Unknown their own provider. Consumers may hire family members and direct the delivery of the service. CT Home Care Program for Elders: State- x Separate pilot program for 250 people. May hire family members if services were not previously provided on CT Funded an in-kind basis. DE None DC Senior Services Network x Alzheimer's Disease Initiative x FL Community Care for the Elderly x Home Care for the Elderly x Community-Based Services Program x State-Funded Alzheimer's Program x Alzheimer's Community Based Services x GA Caregiver Kinship Care x Health & Wellness x GA Caregiver Resource Center x Income Tax Check-off Fund x HI Kupuna Care x IL Community Care Program x ID None CHOICE x About 1% Consumers recruit, hire, train, reimburse, and fire attendant care IN providers (personal care). Table 15. Multiservice HCBS Programs: Consumer Direction State Name of Multiservice HCBS Program Is there an option for What percentage choose consumer Scope of consumer-directed activities consumer direction in this direction? program? Yes No NR Senior Living Program x IA Elder Services x KS Senior Care Act x 15% Hire attendants, sign invoice, select services needed. KY Homecare x A pilot program is underway. LA None Home-Based Care for Elders & Disabled x 5% Ability to manage individual budget, hire and direct, can hire family ME Adults members. Congregate Housing Services Program x 50% Individualized program participants can select the service package MD that best meets their needs. May direct personal care and homemaker services, cannot hire a MA Home Care Program x Less 100 consumers spouse. Access Services x MI Community Services x In-Home Services x The CDCS service option includes all services participants needs to remain in their homes. The participant chooses a fiscal management entity (FSE) through which all claims are billed to MMIS, determines what services are needed, selects their workers, controls the worker's schedule, and determines how tasks are to be done. CDCS participants can hire legally responsible relatives (spouse or guardian) to provide personal assistance services only. The legally responsible relative can only be paid for personal assistance up to 40 hours per week at a payment rate no greater than the MA payment for PCA MN Alternative Care x 2% services. There are no limitations on the hiring of other family members for any services needed at any rate. The participant's allowable maximum budget is determined by the participant's case mix level. Each case mix level has a budget maximum assigned based on the average actual expenditures of all AC recipients in that case mix level. The budget includes all paid services the participant needs except required case management and criminal background checks. MS None MO State-Funded In-Home Services x MT None NE Disabled Persons and Family Support x 100% Table 15. Multiservice HCBS Programs: Consumer Direction State Name of Multiservice HCBS Program Is there an option for What percentage choose consumer Scope of consumer-directed activities consumer direction in this direction? program? Yes No NR Community Service Option Program for x NV the Elderly NH None JACC x NR NJ Congregate Housing Services Program x NR GAP Program x Area Agencies on Aging NM Indian Area Agency on Aging Navajo Area Agency on Aging Expanded In-Home Services for the x NY Elderly Program Community Services for the Elderly x A small pilot program allows consumers to manage an individual NC Home and Community Care Block Grant x 2% budget and hire family members as caregivers for in-home services. SPED x ND ESPED x OH Senior Community Services Block Grant x Varies by AAA that offer this option. OK None OR Oregon Project Independence x Not documented but estimated at 50% Hire and fire own service providers. OPTIONS Program x Participants manage personal care and home support services. PA Pennsylvania Family Caregiver Support x Over 60 Attendant Care x NR NR RI CoPay Program x SC Alternative Care for the Elderly x SD None TN Options for Community Living x TX Area Agencies on Aging Services x Home and Community-Based x Less than 1% Manage individual budget, hire and train providers. UT Alternatives Program VT None Table 15. Multiservice HCBS Programs: Consumer Direction State Name of Multiservice HCBS Program Is there an option for What percentage choose consumer Scope of consumer-directed activities consumer direction in this direction? program? Yes No NR VA Community-Based Services x WA Senior Services Citizens Act x WV Lighthouse x WY Community-Based In-Home Services x TOTAL 19 37 2 Notes: NR = not reported. Table 16: Multi-Service HCBS Programs: Quality Measurement and Budget Limitations State Name of Multi-Service HCBS How is quality measured in this program? Have there been any recent revenue/budget limitations on Program the program? AL None AK Senior In-Home Services NR NR Independent Living Support Bi-annual customer satisfaction survey and program monitoring. Reductions are pending in 2008 and expected in 2009. AZ Tobacco Tax Program Contacts with case managers. Unable to determine State Aging Services AR Cigarette Tax CA Linkages NR NR CO State Funding for Senior Services AAAs administer the program locally. Satisfaction surveys are No completed annually. The State Unit on Aging tracks service delivery and expenditures monthly. CT CT Home Care Program for Elders: Annual client surveys to determine client satisfaction. No, not at this time. The program is open and enrolling clients: State-Funded no waiting list. DE None DC Senior Services Network Satisfaction surveys. Resources are always limited. Alzheimer's Disease Initiative Case manager observations; case management agency client No satisfaction surveys and quality assurance monitoring; Department of Elder Affairs client satisfaction surveys. Community Care for the Elderly Case manager observations; case management agency client No FL satisfaction surveys and quality assurance monitoring; Department of Elder Affairs client satisfaction surveys. Home Care for the Elderly Case manager observations; case management agency client No satisfaction surveys and quality assurance monitoring; Department of Elder Affairs client satisfaction surveys. Community-Based Services Program Outcome measures include but are not limited to AAA monitoring of Unknown service providers at least annually and client satisfaction surveys. State-Funded Alzheimer's Program Same as above Unknown Alzheimer's Community Based Same as above Unknown GA Services Caregiver Kinship Care Same as above Unknown Health & Wellness Same as above Unknown Caregiver Resource Center Same as above Funding has been cut three times in the last five years. Income Tax Check-off Fund Same as above Unknown HI Kupuna Care Measured through meeting contract and area plan objectives. Client satisfaction surveys at state level; AAAs use various methods. Yes, adding to client load ID Idaho Seniors Services Act Table 16: Multi-Service HCBS Programs: Quality Measurement and Budget Limitations State Name of Multi-Service HCBS How is quality measured in this program? Have there been any recent revenue/budget limitations on Program the program? Primarily through quality improvement reviews of service providers and NR case management units; also through the Service Improvement IL Community Care Program Program. Also, providers must survey staff and client satisfaction. CHOICE (Community and Home Client review by case manager every 90 days; consumer satisfaction Appropriations remained flat. IN Options to Institutional Care for Elderly survey with feedback to vendors annually; and compliance monitoring and Disabled) checks. Senior Living Program NR Appropriations is fixed every year and needs historically IA exceed the appropriation. Elder Services Quality Assurance Review at least every 4 years. The appropriation is fixed every year. KS Senior Care Act Customer surveys. NR Client satisfaction surveys. Also developing a program evaluation and FY 2009 budget has been cut 3%. KY Homecare outcomes based contracting. LA None Home-Based Care for Elders & Case reviews; home visits, QA review committee; provider audits; Program has a large and growing waiting list. ME Disabled Adults consumer satisfaction surveys. Congregate Housing Services Program State and local monitors interview participants in a group and No increases in state funding in several years. MD individually. Measured by consumer satisfaction, health and safety and outcomes No MA Home Care Program from the care plan. Access Services NR Funding unchanged over 10 years; waiting lists statewide. MI Community Services NR Funding unchanged over 10 years. In-Home Services NR Funding unchanged over 10 years. Residential services were dropped in 2006. Eligibility asset MN Alternative Care Elaborate site visit, random interview method. and income limits were reduced to 135 days of NF care from 180 days. MS None Providers undergo the same quality assurance measures as providers State appropriation has been reduced. MO State Funded In-Home Services of Medicaid covered services and must meet conditions of participation. MT None Disabled Persons and Family Support Self-reporting by consumers. No budget increase since 1989. NE Community Service Option Program for Participant experience survey. There was a 4.5% decrease in administrative funds. NV the Elderly NH None Table 16: Multi-Service HCBS Programs: Quality Measurement and Budget Limitations State Name of Multi-Service HCBS How is quality measured in this program? Have there been any recent revenue/budget limitations on Program the program? Jersey Assistance for Community On-site visits by state staff from the Division of Aging and Community Funding remains level and there are waiting lists. Caregiving (JACC) Services and client satisfaction surveys. NJ Congregate Housing Services Program NR NR Program manager conducts on-site evaluations before and after Level funding for many years. GAP Program modifications are made. NM Area Agencies on Aging Indian Area Agency on Aging Navajo Area Agency on Aging Expanded In-Home Services for the Quarterly reports, annual evaluations, client survey and in a limited Programs were reduced by 6% in FY 2008 and flat funding is Elderly Program numbner of AAAs, POMP. expected in FY 2009. NY Community Services for the Elderly Quarterly reports, annual evaluations, client survey and in a limited Programs were reduced by 6% in FY 2008 and flat funding is numbner of AAAs, POMP. expected in FY 2009. Home and Community Care Block Measured by preventing unnecessary institutionalization. No NC Grant SPED A comprehensive quality management program has been implemented NR for all programs. ND ESPED A comprehensive quality management program has been implemented NR for all programs. Senior Community Services Block Varies by AAAs. Funding has been reduced by 25% since 2001. OH Grant OK None OR Oregon Project Independence Customer satisfaction surveys, audit smaples. State staff perform field Funding was reduced $1.8 million over last bi-ennium reviews in each local area. ($800,000 each year). OPTIONS Program Consumer satisfaction surveys, onsite monitoring and care plan NR monitoring. Pennsylvania Family Caregiver Support Consumer satisfaction surveys, onsite visits and care management. No PA Program Over 60 Attendant Care Consumer satisfaction surveys, onsite monitoring and care plan NR monitoring. RI CoPay Program Periodic quality review Enrollment in the program was closed for five months. SC Alternative Care for the Elderly QA standards adopted by agency and used by service providers. SD None AAAs have quality assurance teams that monitor providers; TN Options for Community Living Commission on Aging team monitors overall program. TX Area Agencies on Aging Services NR NR Home and Community-Based Frequent care management contact. Anticipate slow growth. UT Alternatives Program Table 16: Multi-Service HCBS Programs: Quality Measurement and Budget Limitations State Name of Multi-Service HCBS How is quality measured in this program? Have there been any recent revenue/budget limitations on Program the program? VT None VA Community-Based Services WA Senior Services Citizens Act Monitoring of contracted service providers. Funds were reduced several years ago that have not been restored. WV Lighthouse Peer review by Registered Nurses No WY Community-Based In-Home Services Annual assessment on each grantee who recieves funds. NR NR = Not reported.