TUBERCULOSIS RECORD SYSTEMS | PAGE 1. mat is a State Central Record System for Tuberculosis? 4 2. Why is a State Central Record System needed? 7 3. How large a task is the installation el a State Central Record System? 13 4. What equipment is needed? IE 5. How can information be interchanged? 22 6. Hew are initial eases selected? 29 7. Haw is a State Central Record System installed and maintained? 36 8. Now is a Local Register installed? 55 9. Now is a Local Register maintained? 57 10. What statistical data will the Central Record System provide? 70 TABLE OF CONTENTS State Central Case Record Systems and Local Case Registers for Tuberculosis Published by the N. C. State Board of Health in Cooperation with the Tuberculosis Control Division, United States Public Health Service 1947 Preface... Almost every State in the Union now has a tuberculosis control program. In response to urgent requests from these States, this manual has been prepared to assist in the establish- ment of efficient record systems. If tuberculosis control programs are to be fully effective, accurate and complete record systems must be instituted and maintained as soon as possible. This manual presents a proved and tried method of keeping such records, and it is presented in the hope that it will assist in the development of uniform and widely used systems through the country. Simple and efficient tuberculosis record systems that are planned to meet State and local needs are fundamental to good follow-up procedures. Indeed, mass casefinding is of little value if all cases found are not followed, and the record system is the chief tool in such enterprise. State and local systems facilitate a maximum utilization of limited clinical, lab- oratory, and field nursing services. To correlate all phases of tuberculosis control, to bring about an equitable distribution of professional services, there exists an urgent need for com- prehensive record systems, based upon defined requirements. With the rapid expansion of local, State, and Federal activities, registers and record sys- tems have assumed additional significance. In a State with an established tuberculosis control program, a case record system is essential for administration, current inventory of the case load, interval evaluation of the effectiveness of control activities, and for a realistic knowledge of the extent of the problem. This manual employs throughout its pages a term which is new to statistical nomencla- ture. In order to differentiate between the State records and the local records, the term, "State Central Record System,” has been used to designate the State records, while the familiar term, "registers,” has been used for local record systems. These terms are clearly defined in the text. The work in this manual is based on extensive field studies, particularly in the States of Oregon and Kansas. Research was conducted by the Field Studies Section, Tuberculosis Control Division, U. S. Public Health Service. Special acknowledgment is made to Dr. J. Yerushalmy, who supervised this project, to Miss Mary Burke, Mr. Deward Waggoner, to Mr. Herbert Sauer, Miss Marcella Siegel and to Mr. Maurice Eysenburg. HERMAN E. HILLEBOE, Assistant Surgeon General Associate Chief Bureau of State Services FRANCIS J. WEBER Medical Director Chief, Tuberculosis Control Division n local health departments it has long been recog- nized that simple and efficient tuberculosis case regis- ters are indispensable tools for case holding, case management, evaluation of activities and definition of local problems. In State health departments, with the expansion of tuberculosis control activities, it has become apparent that there is need also for central State case record systems for program planning, supervision and evaluation. State and local case record systems will, by their very nature, be interdependent, each contributing significantly to the success of the other. Many func- tions will be common to both, yet each system will serve distinct purposes. It is, therefore, desirable to use a different designation for each system. For pur- poses of clarity the local system will be called a case register as is the common practice, and the State system will be referred to as the State Central Case Record System. The major emphasis of the local register is case supervision; that of the State Central Record System is program management. Much serious thinking and study has been given to local tuberculosis registers during the last decade. One of the significant contributions in this field was made by E. X. Mikol in 1943 in his monograph, published by the National Tuberculosis Association.1 Early in 1944 the U. S. Public Health Service initi- ated research projects to study various types of rec- INTRODUCTION 1. Mikol, E. X., M. D., A Manual of Methods for Organizing and Maintaining a Central Tuberculosis Case Register, NT A, 1943. 1 ord systems for tuberculosis control activities. The study included case registers and central record sys- tems for health departments, as well as record systems for nursing and medical social services, clinics and sanatoria. The first phase of this research was the de- velopment of case record systems and registers for State and local health departments. The present man- ual, the first in a series, presents a detailed description of the State Central Record System and accompany- ing local registers, with special emphasis on installa- tion, operation and maintenance. A complete system of local case registers within a State would simplify the installation and maintenance of a State Central Case Record System. Therefore, in the opinion of many, the development of local case registers should precede the installation of State Central Record Systems. Accordingly, in its early phases the Public Health Service study was conducted in local health departments. Extensive preliminary planning consisted of a review of the potential func- tions of the case register, the determination of the relation between the agencies participating in tuber- culosis control, a study of various types of equipment, the designing of forms and the development of re- porting methods. Following this, several experi- mental local case registers were installed. As the study progressed, however, it appeared that the same mechanics were required to set up each local system and that much work was being duplicated. The same problems of determining sources of infor- mation, securing complete exchange of information and formulating plans for installation and mainte- nance had to be met for each local project. It was found also that local communities could neither sup- ply nor support trained personnel. Moreover, when- ever registers had been established independently by local health departments, there were variations among them, and the development of a State Central Record System from these different local registers presented additional complications. These and other difficulties led to the view that the establishment of a State Central Case Record System might be a better initial step in the develop- ment of tuberculosis case record systems. There are many thousand counties and independent cities in the United States, but only 48 States. Would not the prior installation of a State Central Case Record Sys- tem for tuberculosis and the existence of a trained statistician and supervisory field workers be a more effective method of developing local registers? Would not the total task, that of establishing both local and State systems, be simplified if the mechanics were applied first to the State as a whole and then extended to the local units? Once the State Central Record System is established, trained personnel, uniform methods and standard forms and equipment would be made available to local units. Would not the broad objectives of State and local systems be more easily realized by building a State Central Record System first? These questions were explored during field study projects in two States, Kansas and Oregon, where State Central Record Systems for Tuberculosis were planned and installed. Methods of approach were essentially those of installing local tuberculosis case- registers except for the larger scale of operations. Key officials and agencies were consulted, channels of reporting opened, forms devised and personnel re- cruited and trained. Although neither of the two projects has been in operation long, it has been amply demonstrated that a State Central Case Record System is workable and 2 practicable. By field experience it has been shown that sources of information and reporting can be routed through a State Central Record System and that the Central Record System can be installed and maintained much the same as a local tuberculosis case register. Comparison between existing local registers and the proposed State Central Record System shows only one important difference, which is one of use. The local register is primarily a tool for individual case management, while the State Central Record System is essentially an administrative tool for pro- gram planning, supervision and evaluation. Since the State system does not require the detailed information necessary for case management, it may abbreviate, summarize or eliminate many of the f&cts necessary for a local health department register. The simple transcription and transfer to a local health department of its particular section of the State Central Record System becomes the first step in the installation of each local register. The State Central Record System in no way replaces the local register. In fact, one of the main justifications for a State Central Record System is the value of such a system in the establishment of local case registers. Instead of discouraging the development of registers, the existence of a State Central Record System stimu- lates their installation. Both are necessary because of differences in function; one actually complements the other. It is hoped that this manual will be useful to pub- lic health workers in the planning, establishment and operation of case record systems for tuberculosis. It outlines for the staff members of the tuberculosis control office their related responsibilities in estab- lishing and using the record systems. It will attempt to answer these questions: ] What is a State Central Record System for Tuberculosis? 2 Why is a State Central Record System needed? 3, How large a task is the installation of a State Central Record System? 4 What equipment is needed? 5 How can information be interchanged? 6. How are initial cases selected? 1 How is a State Central Record System installed and maintained? 8. How is a Local Register installed? How is a Local Register maintained? ’ll What statistical data will the State Central Record System provide? 3 WHAT IS A STATE CENTRAL RECORD SYSTEM FOR TKKUSBT The local case record system (the register) and the State system (The Central Record System) are both schemes for recording and organizing current medical and public health information about tuber- culosis. Early in the manual, therefore, it appears desirable to indicate how each system fits in the broad field of medical record keeping. Probably the most common medical case record system is that kept by the practicing physician for his own reference. Each case record is a series of nar- rative entries in chronological sequence containing whatever identifying data, diagnoses, treatment and progress notes the physician thinks will be useful in the management of his case. The record is intended for the private physician’s use alone, usually has little formal arrangement and has value only if the patient returns for treatment. It reflects the individualized interdependence between doctor and patient. One characteristic of that relation is that the patient de- cides whether he will return to the same physician, go to another physician or go to none at all. Hospital record systems represent a somewhat more complex scheme of case record keeping since they are essentially an aggregate of many physicians’ re- ports. Information entered on the hospital case rec- ord is contributed and used by many persons, and a greater degree of uniformity in the arrangement and content of the record is required. In the main, the source of information on each patient is the hospital staff, and the record is used only by the staff for direct management of the patient while he is hos- pitalized. Once the patient has left, the hospital usually can take no responsibility for the continua- tion of medical care. Again it is the patient who decides whether he will get further services, this time from the hospital; his decision determines the com- pleteness or currency of the hospital record. Clinic records are a further development in case record systems. They too are collections of individual case histories, uniformly arranged, drawn from the one source—the clinic—to be used by the clinic staff for individual case management. Because a clinic usually offers specialized services to a large number of persons, certain details of identifying data, 4 examinations, diagnoses and treatment are always wanted, and the record forms are designed with definite positions for such details. A tuberculosis clinic record form, for example, may contain boxes for date and result of sputum examinations, date and impression of X-ray examinations, data on surgical treatment, laboratory findings, nursing and medical social service—all of which may be important in the treatment and management of the case. The clinic record system will ordinarily include records only for patients under treatment or those scheduled to return to the clinic, but the patient’s return is still his own responsibility. The services of all three groups, the private physi- cian, hospital and clinic are a response to the indi- vidual’s request for medical care. Although consid- erable information may be found in their case rec- ords, these records do not always contain the current status of the patient, since the volition for continued or current supervision is the patient’s. The local health department case records for a specific service embody a new point of view in med- ical record keeping. Because the health department has a responsibility broader than that of the private physician, hospital or clinic, its records reflect this social obligation. No longer is the health of the indi- vidual patient the focal point; it is the health of the community which concerns the health department. To meet its obligation to the public, a record is kept for each case of disease which threatens the com- munity’s health; and to be valuable this record must be accurate, complete and current. The health de- partment record system which supplies this current information is called a register; its currency dis- tinguishes a register from the previously described record systems. The health department uses its register in an at- tempt to make sure that each case has adequate med- ical supervision. The health department actively seeks out information from many sources, including clinics, public health nurses, hospitals, private physi- cians and laboratories; and the register becomes a summary of these reports. A local health department register includes not only data about those patients under a given supervision, but data on all patients in need of medical or nursing care. A local register needs fewer details of personal and medical history than a clinic or hospital record sys- tem. The register does not replace any of the clinic, nursing or hospital records but is rather an abstract of these records. Uniformity in arrangement and content of data becomes essential. The health depart- ment register places emphasis on the public health rather than on the clinical aspects of disease. For example, data on sputum is of importance not only to the clinic and the patient but also to the health department. However, while this information is used by the clinic primarily to furnish medical service to the patient, it is used by the local health department to prevent the spread of tuberculosis. The group that uses this summary record—the register—is no longer limited to those who furnish direct services to the patient, but includes the health officer, division director, public health nurse and med- ical social worker. The register is available to this group for individual case management, distribution of case-load and definition of local problems. The State Central Case Record System for a par- ticular service, such as tuberculosis, can be considered an extension of the local register plan. A State health department is charged with the protection of the health of the people of the State. Its function is to 5 that proper isolation and care are given to the indi- vidual patient awaiting admission. This is the func- tion of the local health department in preventing the spread of infection to the household and community. On the other hand, when the State health depart- ment learns how many patients must wait long pe- riods for admission to a sanatorium, it can accurately appraise the need for hospital beds. The State tuberculosis division can develop sound programs only when it has authentic and current in- formation. A full knowledge of the tuberculosis problems of the State enables the State tuberculosis division to plan and operate a practical and effective program. The State Central Record System, because of current case histories, offers a quantitative meas- ure for such planning and administration. administer, plan, supervise and evaluate the public health program. The sources of information become more numerous and farther removed from the Cen- tral Record System. Current reports come in from local health departments, clinics, sanatoria, labora- tories and private physicians throughout the State. This material is abbreviated and succinctly summa- rized on standard cards for administrative use. Management of the case may not, in all instances, be affected directly by the persons who use the Cen- tral Record System, but it aids the division director and his staff in administering the State tuberculosis program. For example, when the local health de- partment knows that a patient must wait several months before admission to a sanatorium, it can prof- itably devote its efforts during this period to insure A State Central Record System for tuberculosis and the local tuberculosis case register may each be defined as a system of records for maintaining a current summary of pertinent medical and public health data on those proven and suspected cases of tuberculosis which, according to health department policy, require some type of supervision. 6 WHY IS A STATE CEHTRUlRICOW SYSmi HEEDED ? tuberculosis control activities in State and local health departments throughout the nation have been accelerated during recent years. This development is due largely to the use of new methods of case finding which economically screen large groups of people. Widespread use of small film techniques has discov- ered more active, subclinical and suspected pulmonary tuberculosis than has ever been detected in the his- tory of public health. Such case-finding programs are now in operation on a large scale. Even a casual survey of local programs in tubercu- losis control reveals that quality and quantity of case finding has far surpassed performance in follow-up and case management. Although services of clinics, sanatoria and public health nursing have not devel- oped as rapidly as the techniques of case finding, plans are being made for great increase in follow-up and medical supervision. Increased assistance to local programs has become available through additional appropriations of Federal and State funds. The in- stallation of coordinated central record systems, State and local, is a problem of immediate significance if the full benefits of the new programs are to be real- ized. In too many instances not only have newly dis- covered suspects been inadequately followed, but also known active cases have remained unsupervised be- cause of the lack of administrative control which could have been provided by a Central Record Sys- tem. For this reason the installation of central case record systems, state and local, should become one of the first activities of a tuberculosis control pro- gram. In practice, tuberculosis record systems may be the essential administrative and statistical tool needed for development of adequate services. The usefulness of case registers for local health departments serving districts, cities or counties has been amply demonstrated. Their installation and use, nevertheless, has been limited to health departments with full-time health officers, clinic facilities and reasonably adequate public health nursing staffs. A local tuberculosis register serves to facilitate case management and helps direct an equitable distribu- tion of services for determining tuberculosis. A State Central Case Record System for tuberculosis offers a 7 practical plan for accomplishing these purposes so vital to the Statewide tuberculosis program. It is possible that in some States the physical task of maintaining a large State Central Record System for tuberculosis would be extremely difficult because the system would be too cumbersome for practical use. Factors that influence the size of the task and volume of work are: 1. Prevalence of tuberculosis 2. Extent of case finding (mass X-ray service) 3. Quality of reporting 4. Amount of service for tuberculosis a. sanatoria b. clinics c. nursing and other field services d. laboratories e. rehabilitation 5. Size and type of population Since it is impossible to judge the first four factors without field experience in the States, the factor of population, with full realization that it alone is inade- quate, can be taken as the best available criterion for defining which States should use State Central Record Systems. State Central Record Systems will not be recom- mended for the larger States in the United States (those with over four million population) because their operation in these States might be unwieldy. It cannot be definitely stated that Central Record Sys- tems are unworkable or impractical in these States, since further study is necessary before final decision can be made. However, this tentative population standard would exclude nine States. It is possible that more States would be eliminated after a study of other factors which might influence the size of the system. Such an appraisal should be made by each State de- partment of health that contemplates the installation of a Central Record System for tuberculosis. The States chosen for discussion may be divided into several categories according to the degree of development of public health services and the need for State Central Record Systems. (See Figure 1) In 1942, 10 States showed less than 25 percent of their population served by local full-time health officers. In 7 additional States, 25 to 49 percent of the population had such coverage; in 13 States, 50 to 74 percent; in 14 States, 75 to 99 percent and in 4 States, 100 percent of the population was served by full-time health officers. If the States were divided according to the percent of local health jurisdiction areas (city or county) served by full-time health officers rather than the percent of total population served, the lack of health department services would become even more apparent. In a State where all or most of the local health departments have well-developed services for tuber- culosis and well-functioning local registers, the addi- tional task of maintaining a State Central Record System may not appear to be justified. But even with these well-organized local services, a State Central Record System would provide valuable summary data to the State tuberculosis office for planning, super- vision and evaluation, and for consultation service to local health departments. There are also those States that have complete local health organizations with established tuberculosis pro- grams but few or no tuberculosis record systems. Here State health departments could render valuable service by assisting in the establishment of a uniform 8 V/AVAV/WWW/AVV^VAV/AVl-AV/AV/iVAV^^^ ''■■ Percent of Population Served by Local Full Time Health Officers and Ratio || of Public Health Nurses to Population, All States 1942 Strereei Eme«oat ItUx&k M. local Bcakh tfote far i3» Naas&i New York* 1945. Region and State Population in millions, 1940 Percent of population served by local full time health officers Public healtli nurses per 5,000 population ■ United States 131.7 66 0.6 'Jew England Connecticut 1.7 77 0.9 1 Maine 0.8 24 0.4 1 Massachusetts 4.3 67 n.r. New Hampshire 0.5 43 1.1 - Rhode Island 0.7 40 0.6 1 Vermont 0.3 none 0.7 ■iddle Atlantic | New Jersey 4.2 53 1.1 New York 13.5 77 0.8 m Pennsylvania 9.9 70 0.5 South Atlantic 1 Delaware 0.3 58 0.8 j District of Columbia 1.2 100 1.2 Florida 1.9 70 0.5 •I Georgia 3.1 82 0.6 ] | Maryland 1.8 100 0.6 North Carolina 3.6 92 0.5 South Carolina 1.9 100 0.5 )l Virginia 2.7 72 0.4 1 West Virginia 1.9 77 0.3 Iast North Central if Illinois 7.9 65 0.5 Indiana 3.4 12 0.4 ■ Michigan 5.3 87 0.7 I Ohio 6.9 68 0.5 ’Wisconsin 3.1 38 0.6 Region and State Population in millions, 1940 Percent of population served by local full time health officers Public health nurses per 5,000 population East South Central Alabama 2.8 100 0.4 Kentucky 2.8 90 0.6 Mississippi 2.1 89 0.4 Tennessee 2.9 89 0.6 West North Central Iowa 2.5 6 0.3 Kansas 1.8 41 0.3 Minnesota 2.8 34 0.5 Missouri 3.8 54 0.4 Nebraska 1.3 25 0.5 North Dakota 0.6 10 0.4 South Dakota 0.6 11 0.4 West South Central Arkansas 1.9 87 0.4 Louisiana 2.3 93 0.6 Oklahoma 2.3 61 0.3 Texas 6.4 56 0.3 Mountain Arizona 0.5 68 0.8 Colorado 1.1 53 0.7 Idaho 0.5 21 0.5 Montana 0.6 32 0.6 Nevada 0.1 15 1.1 New Mexico 0.5 100 0.7 Utah 0.6 14 0.8 Wyoming 0.2 13 0.6 Pacific California 6.9 93 0.6 Oregon 1.1 87 0.7 Washington 1.7 76 0.7 system of local tuberculosis registers. In these States, though, the prior establishment of a State system would simplify the task of developing local registers. A study of the remaining States will reveal varying degrees of development of public health services. Some will have a dearth of health departments, clinics and nursing services. Many will lack sanatorium facilities. Most States, however, are contemplating expansion of local and State tuberculosis services. It is in these States that it is particularly important to install Central Record Systems to assist in the de- velopment of new and expanding local tuberculosis programs. Many of the States in the nation and a large number of local health departments will fall into this group. Of course, the development of a State Central Rec- ord System before the existence of local registers leads to many difficulties, the foremost of which is that, in the beginning, the State system must contain more elaborate information than would be necessary if local registers were in operation. Once local regis- ters are developed, the State can make the transition from complexity to simplicity with little effort. The State Central Case Record System will be use- ful to the State health department in fulfilling its responsibilities to: 1. Assist in establishing local case registers 2. Follow up suspects discovered by mass X-ray 3. Provide a State-wide clearing center of information 4. Guide and consult with local health personnel 5. Follow up and supervise cases in areas without local health departments 6. Plan the State wide tuberculosis control program 1. Assist in establishing local case registers: Registers are recommended only if the local health workers actively support their installation. If the local health departments independently establish reg- isters, the lack of uniformity in record forms and definitions makes their coordination for State plan- ning a difficult problem. In many instances a health department may favor the installation of a tubercu- losis register but may be unable to proceed with the task because of lack of personnel familiar with re- porting methods and record systems. Since the regis- ter installation presents rather difficult technical problems requiring trained personnel, professional assistance from an outside source is often needed. The existence of a State Central Record System and experienced State personnel will simplify the local installation. By working out details, plans and procedures for the State, the State tuberculosis ad- ministrator and the records supervisor gain experi- ence which will be valuable in the establishment of local registers. At the same time the essentials of the local register are set up in the State Central Record System and can simply be copied and transferred to the local health office. 2. Follow up suspects discovered by mass X-ray; Mass radiography is frequently a major activity of a State tuberculosis control division. Inasmuch as mass surveys are often planned or directed by the State tuberculosis division, it is the responsibility of the director to refer newly discovered suspects to health departments, physicians and clinics in order to (a) complete diagnosis, (b) insure supervision of newly discovered cases and (c) measure the quality of follow-up work. 10 To realize the full value from mass surveys, sus- pects must be followed until those in need of medical care are brought under supervision and reported as cases. In many States too little attention is paid to this, the most important consequence of mass radi- ography. For this reason, the records of suspects revealed through mass X-ray should be included in the State Central Record System. Although follow- up of suspects is primarily a local health department function, a central plan can be formulated by use of the State Central Record System. 3. Provide a State-wide clearing center of information: A State Central Record System is valuable as a clear- ing center for current information on cases and sus- pects reported from the many sources within a State. An efficient central system for interchange of in- formation will currently inform local health depart- ments of movements of their cases and changes in the medical status or supervision of patients, even though the source of the report lies outside the local jurisdiction or outside the State. It is of course de- sirable that reports from local physicians, public health nurses and clinics be routed through the local health department before transmitttal to the State Record System. But there is information from other sources, such as State clinics, sanatoria, veterans’ hos- pitals and out-of-State agencies, which can be most effectively distributed to the proper local health de- partment through one clearing center. Although this service of the State tuberculosis office could proceed in the absence of a Central Record System, the Rec- ord System will insure the continuance of service and act as a control against interruption or inadequacy of reporting from any source. 4. Guide and consult with local health personnel; The Central Record System will give the State tuber- culosis division a continuous summary of medical and supervisory status of cases in each subdivision of the State. The State director must have such a summary to offer intelligent advice when assistance is needed by the State Public Health Nursing Direc- tor, the State Tuberculosis Nursing Consultant or the local health department. Equipped with this informa- tion, he is better able to discuss local problems with health officers and public health nurses. The plan- ning of new local facilities, such as increased nurs- ing service, clinics and mass X-ray services, will be guided by local needs which can in large part be ascertained from the local section in the State Cen- tral Record System. Missing and negative informa- tion about medical status and supervision of cases will highlight deficiencies. The need for additional services, such as those provided by sanatoria, clinics and public health nurses, is most effectively demon- strated by existing inadequacies. The Central Record System will provide data describing the local situa- tion such as number of active cases in the home, cases not under public health nursing supervision, and cases receiving no medical or nursing care. 5. Follow up and supervise cases in areas without local health departments; Many States have a large proportion of counties with- out full-time health departments, and there may be no public health nursing service in these areas. In ad- dition to the known cases reported from these places, there are cases and suspects currently revealed through mass surveys, selective service examinations and re- ports of discharges from Army, Navy and Veterans 11 Administration hospitals. If any public health nurs- ing follow-up is to be attempted, the State nursing division is directly concerned. Public health nurses from the State office are frequently directed to make home visits to certain classes of cases in these areas, and here a State Central Record System becomes an extremely practical tool for direction of services. While the State Central Record System cannot achieve the completeness and detail of a local regis- ter functioning in a well-organized health depart- ment, it can provide the nurse with knowledge of movements of cases, recent sanatorium discharges and suspects not re-examined. 6. Plan the State-wide tuberculosis control program; Any State tuberculosis control program should be based upon factual data which in large part can be obtained only through a central record system. The planning of mass surveys, State clinics, and new sana- toria must take into account such factors as (a) geo- graphical distribution of new cases reported, existing cases, and deaths; and (b) type and extent of medical care, supervision and health department service being given to known tuberculosis cases in each local area. The State tuberculosis director has the task of plan- ning a budget. The combination of a statistical sum- mary and qualitative description of tuberculosis con- trol activities provides valid support to the adminis- trator who must justify his health program in terms of extent of the problem, effectiveness of activities and protection of the community. 12 HOW LARGE A TASK IS THE INSTALLATION OF A STATE sJlSf EinRAi ttewisOTii? Ililllll The process of installing and maintaining a State Central Record System for tuberculosis is a major administrative and clerical task. Its difficulty should therefore not be minimized. An honest appraisal should be made of budget, personnel, office space and other facilities of the State tuberculosis division which are vital to the successful operation of a State Central Case Record System. The question of whether to establish a State Cen- tral Record System can be answered only after a careful consideration of three chief determinants. These may seem obvious, but there is great danger that one or all may be under-emphasized. 1. The Central Record System must be genuinely wanted. 2. Funds and personnel must be available for installation and maintenance of the Central Record System. 3. The plan for the Central Record System most have the active cooperation of all persons and organizations concerned with tuberculosis control. 1. The Central Record System must be genuinely wanted: This implies that the director of the tuberculosis division and the State health officer must have a sin- cere interest in the purpose and uses of the Central Record System. The tuberculosis administrator par- ticularly must be prepared for active personal par- ticipation during the period of planning and in- stallation. During the initial phases of work the director of the tuberculosis division must study and familiarize himself with the whole plan and devote much of his time to guidance and supervision of operations. After justifying the project in the State health department and securing budgetary approval, the director must personally assist in the coordination of sources of in- formation so that all reports will flow to the Central 13 Record System (see Chapter 5). This means that he will confer with directors of sanatoria, laboratories and chest clinics, State nursing personnel and all local health departments to explain the record system, its uses and plans for interchange of information. In some places plans may involve changes in ex- isting record forms. Personnel for the Central Rec- ord System must be recruited and trained. Of utmost importance is the selection of a competent person to supervise the maintenance and use of the Central Record System. Office procedures in the State division must be correlated with the plan for the Record Sys- tem. These problems are emphasized because they are primarily administrative, and their solution is de- pendent on personal guidance from the director of the tuberculosis division. The director must realize that it is a difficult and time-consuming clerical task to set up a Central Record System. Sources of information with history and current status of known cases must be investi- gated. From these sources, previously reported cases must be located and their need for public health supervision determined. The clerical staff of the State tuberculosis division will be obliged to visit sanatoria, local health departments, clinics and other agencies to clear reported cases with existing case files. Pres- ent or last-known medical and supervisory status, location of cases, as well as any significant interme- diate case history must be summarized. The services of two experienced clerks for several weeks may be needed to clear the records in a single county of 100,000 population. It cannot be over-emphasized that sifting and evaluating material for a Central Record System is a difficult and tedious task—even for trained and experienced personnel. 2. Funds and personnel must be available for installation and maintenance of the Central Record System; This means that funds must not only be budgeted but must be available for equipment and additional personnel for installing and maintaining the Central Record System. Cost will vary widely with population size, inci- dence of tuberculosis, extent of reporting and amount of service. A conservative estimate, however, for States of one to two million population is $5,000 for equipment and initial installation and $4,500 per year thereafter for maintenance. Further analysis of the cost follows: Installation (Period of six months) Salary of record analyst @ $2,400 per year $1,200 Salary of three clerks @ $1,500 per year 2,250 Equipment and supplies 750 Field travel and subsistence 500 Miscellaneous 300 Total $5,000 Maintenance (Period of one year) Salary of record analyst $2,400 Salary of one clerk 1,800 Field travel and subsistence 300 Total $4,500 Larger States will require additional expenditures for equipment and clerical assistance. 14 3. The plan for the Central Record System must have the active cooperation of ail persons and organizations concerned with tuberculosis control: All persons and agencies engaged in tuberculosis con- trol should display a willingness to cooperate in the plan for a Central Record System. During the period of installation, these agencies must agree to open their files to the State personnel who are clearing records. Those most concerned will be sanatoria, local health departments, clinics and nursing organizations, as well as community chest associations. Further, since the private physician will be the only source of in- formation for a large number of tuberculosis cases, some plan must be formulated for securing informa- tion about patients last reported under their care. Cooperation from private physicians can usually be secured to permit periodic queries about cases under their supervision. Both plans for initial clearing and subsequent periodic querying of private physicians should be presented to State and local medical soci- eties. Without the continued and complete inter- change of information the Record System cannot be successfully maintained as a current system. If the tuberculosis administrator is aware of the problems that may arise during the installation and maintenance of a Central Record System, he will be better prepared to deal with them. The slow rate of progress will not discourage him. If the director is reasonably sure that the prerequisites outlined in the chapter are met, and if he has secured the under- standing and cooperation of all persons and agencies concerned, the operations of installing a State Central Record System will become a smooth process. 15 «M|lttiHPIIEHT|S NEEDED ? Filing equipment: Of the different types of filing systems, the visible files have many advantages for a Central Record System or register. Record cards are so arranged that one or two margins of many cards are visible at the same time. The visibility factor is important be- cause it permits rapid selection of record cards by name for reference or posting, and the use of mar- ginal signals contributes to rapid summary of in- formation and to better mechanical operation of the Central Record System. Each case record is signaled for attention, and there is less likelihood that it will be neglected or overlooked. The two best known types of visible filing systems are: 1. Pocket visible: A serial arrangement of cards placed horizontally in drawers, with the bottom margin of each card visible. 2. Vertical visible or off-set visible: A series of overlapping, vertically supported cards allowing visi- bility of the right vertical margin. A top corner cut gives an added visible margin at a readable angle. A plastic divider is the back support for each row of cards and separates it from the next row. Many rows of cards can be accommodated in a single unit, such as a specially designed desk drawer, a tub or file drawer. Both types of visible filing equipment have been used for tuberculosis record installations, but experi- ence indicates that the vertical visible file (figures 2, 3) is superior for the uses of a State Central Rec- ord System. Card size may vary. Increased marginal area for signaling and a potential capacity of several thousand cards per unit make for a greater overall visibility. The pocket visible equipment, on the other hand, allows but one visible margin and permits a view of only about 60 cards at a time. In addition, hand-sorting for statistical tabulations is facilitated because cards are more easily pulled and refiled in a vertical file. The cost of vertical visible equipment for a Cen- tral Record System will be about one-half that of the pocket visible for a comparable capacity. Total Figure 2 Figure 3 Fig. 2 A desk model for vertical visible files. Each drawer contains three portable trays of cards. Fig. 3 Two portable trays for vertical visible cards. This equipment would be suitable for smaller health departments. cost of vertical visible installations will vary because the capacity of a given unit will depend on width and thickness of the cards and the number of divid- ers, The cards may be purchased from the company supplying the equipment or from the State printing office. In either instance, weight and composition of the card should be adequate for long use, since it will be used from the time a tuberculosis case is first reported to the time the case record is discharged from the Central Record System. Some of the companies manufacturing the vertical visible type of equipment and their products are Remington Rand—Kard-Site; Diebold—Tradex; Vis- ible Index Corporation—VISI-Record; Acme—Veri- Visible; Visual Records Corporation—Vis-U-All; and Hadley—Visible Record Trays. Kansas installed the VISI-Record two-drawer desk model with a capacity of 7,000 cards, for a total cost of $500. The desk model is a convenient arrangement for the record clerk because it serves as both file and work desk. Oregon purchased an Acme installation of two tubs, each with a capacity of approximately 3,500 cards, for $600. CENTRAL RECORD SYSTEM CARD: The Central Record System Card provides space for all significant aspects of case history which may be used for program planning, supervision and evalua- tion. Although there is a large variety of items to be recorded, the card must be compactly designed to simplify maintenance and reference. This design should include space only for available and necessary data. It must be emphasized that the record card in a State Central Record System is not a substitute for clinic or nursing records which call for specialized details. These details may be summarized, abbrevi- 17 ated or omitted entirely from the State Central Rec- ord System. Because it is hoped that State Central Record Systems will foster the installation of local registers, and because the Record System for a par- ticular county will become the nucleus of the county register itself, there are advantages in the use of identical or similar cards in both systems. DESCRIPTION OF STATE CENTRAL RECORD SYSTEM CARD: The recommended card (figure 4) to be used in vertical visible filing equipment was developed after experimentation with tuberculosis registers in two local areas—Montgomery County, Maryland and Washington, D. C.—and State record systems in- stalled in Kansas and Oregon. This card is suitable for a local register or a State Central Record System. The suggested Record System card is divided into three sections: 1. The upper one-third, horizontally lined for identification data and initial information. 2. The vertical columns on the lower two-thirds of the card for current entries of medical history and treatment. 3. The numbered boxes at extreme right for vis- ible signaling. Section 1 is common to all types of record cards and needs no discussion. Section 2 represents a de- parture from commonly used tuberculosis register forms. The proposed arrangement provides one chronological sequence for all entries concerning the patient’s medical status and supervision. All signficant events in the case history from the time a first report is received to the time the patient’s record is removed from the Record System are listed in their time sequence. Items as widely divergent as original case report, sputum examinations, clinic visits, sanatorium admissions and discharges are re- corded as they occur (figure 4A). In contrast, the card form recommended in the National Tuberculosis Association manual for tuber- culosis registers provides separated chronological se- quences for specific categories of information. All sputum results with dates of examination are assem- bled in one box. Hospital admissions and discharges appear in another box. Dates and readings of X-ray are entered in a third. To get a complete picture of the patient’s status, one must select information from many parts of the card. Experience of Public Health Service personnel with various card designs in many State and local installa- tions has shown that the proposed single chronological sequence has many advantages over the separation of related information into specific boxes. This single sequence does not sacrifice detail. It simplifies post- ing and reference. Since the last entry is the current information, the patient’s disease status is quickly determined. Related information at any given time is found on a single horizontal line and can be cor- related with preceding events. By surveying all entries in a single column, any one aspect of the patient’s case history can be summarized. Whether the pa- tient ever had a positive sputum may be determined from the sputum column. A glance at the column for supervision will show how many times the patient has been hospitalized. Further, the time relationship between the positive sputum record and hospitaliza- tion is readily seen because of the chronological order. Section 3 is the visible margin, the space re- served for signaling. Here, in addition to the first letter of each month, numbers which can have any desired reference designate signaling positions which 18 MONTH NEXT REPORT IS DUE DATE DIAGNOSIS: FORM, STAGE,ACTIVITY SPUTUM UNDER MEDICAL SUPERVISION OF REPORTED BY REMARKS: REASON NOT HOSPITAL- 1 IZED. REASON DISCHARGED. ETC.I 3 Figure 4 DATE DIAGNOSIS: FORM. STAGE, ACTIVITY SPUTUM UNDER MEDICAL SUPERVISION OF REPORTED BY REMARKS; REASON NOT HOSPITALIZED, REASON DISCHARGED, ETC. MONTH NEXT REPORT IS DUE Figure 4A allows for changes in the signaling code. Colored signals may indicate a summary of the supervisory status of cases, such as those in sanatoria, positive sputum or other active cases not hospitalized, or cases under no medical supervision. Signals may indicate when additional information is due and when action should be taken by the health department. They may also designate a group for special study or atten- tion, such as mass X-ray suspects. Each health de- partment will use a signaling plan which best suits its needs; the real significance of the signal, how- ever, is that it indicates action. SPECIFIC INFORMATION: Although there are certain types of information which should be common to all Central Record Sys- tems, no one form can be universally suitable. A special problem in one State may suggest the inclu- sion on its Record Card of an item relatively unim- portant in another. For example, the Tuberculosis Control Division of Kansas was concerned with the problem of establishing pneumothorax stations, since there were many areas with no facilities for refills. Therefore, Kansas Record System cards are designed to indicate whether the patient is receiving pneumo- thorax. If local health departments plan to install registers based on the State Central Record System, it is advisable to use identical cards for both State and local systems. In that event the State card may be designed to include space for information not needed by the State health department but wanted by the local health departments for management and supervision of cases. The Kansas and Oregon Record System cards were designed for use both in State Central Record Systems and local registers. 20 Classification of the items on the proposed FORM FOLLOWS: Identification and initial information Case identification County Case number Name Address Birthdate Age Sex Color Marital status Occupation Place employed Under PHN supervision Yes or no Agency supervising: (e.g., health department, school or name of private nursing agency) Reason not under PHN supervision Legal settlement or residence and veteran status Information to determine eligibility of patients for sanatorium care and to evaluate the scope of the veteran and non-resident problems Reason for referral What prompted first examination for tuberculosis, (e.g., symptoms, contact, mass X-ray suspect, Selective Service examination. Army or Navy dis- charge) ? Date Enter month and year of referral Official morbidity report Reported by: (e.g., name of physician, clinic, health department, sanatorium or other agency) Date of report Enter date of first official morbidity report Chronological history of medical supervisory status Date of report Diagnosis Sputum Medical supervision Reported by Remarks Month next report or examination due Optional information on reverse side of card Whether additional information is carried on the Record cards will depend on State policy regarding supervision of cases. If actual supervision is con- ducted from the State tuberculosis division and if a system of local registers is planned, additional in- formation may be desired on the State Record Cards. Other agencies Date each nursing visit was made For each contact: Name of contact Relationship to case Year of birth Sex Color Date examined Diagnosis Date due for re-examination 21 NOW CNN INFORMATION BE INTERCHANGED?Ill TO maintain current information on cases is a fundamental function of the State Central Record System. Without this the System deteriorates into little more than an index of reported cases. All po- tential sources of information must be thoroughly investigated, and plans must be formulated and ap- proved for maintaining a flow of essential informa- tion through the Record System. Information must circulate to the State health department, local health departments and all other agencies or individuals who are concerned with examination, diagnosis, treatment or supervision of tuberculosis patients. Only the co- ordination of records and reporting methods from these agencies will insure continuous and complete interchange of information. A scheme must be put into operation which will tap all sources of informa- tion for the State Record System. Thus, private phy- sicians, sanatoria, tuberculosis associations, health de- partment clinics and nurses, and private nursing or- ganizations must be acquainted with full details of the Record System. Only if their continuous coop- eration in reporting is secured will it be a current live record system. In addition, the Record System becomes a central clearing house for information which is originally reported directly to the State tuberculosis division. This distributon of information is the service the State tuberculosis division renders to other agencies in return for their reports. 22 GENERAL PLAN FOR INFORMATION INTERCHANGE: The procedure for interchange of information between the State Central Record System and other agencies will vary of course, and must be adapted to the facilities and policies of each State. In general, the interchange of information could follow this pattern: 1. All information originating from private physi- cians, local health department clinics, city and county sanatoria, laboratories or other institutions in an area with a full-time health department will be sent first to the local health office. The information may be entered on the local register, then forwarded to the State Central Record System. 2. All information starting from a State, Federal, or private institution will be sent directly to the State tuberculosis control office. After entry in the State Central Record System, the information will be forwarded to local health departments. In addi- tion, information about patients in counties without full-time health officers may reach the State tuber- culosis division first. This too will be routed to per- sons supervising public health work in local areas. 23 A ISN information interchange form (figure 5) patterned after the Record System card is suggested for transmit- ting and requesting information from State and local health departments. This form may be originated by either health department. For example, the nurse reports that a patient has moved to another county. The form first reaches the local register and then the State Central Record System. On the other hand, the State Central Record System may use the same form to report to the nurse in the county to which the patient has moved. Sources of information and reports with suggested procedures for routing follow: TUBERCULOSIS INFORMATION INTERCHANGE (Among Central Record System, local register and Public Health Nurse) To Date From Complete all items Complete items checked and make necessary corrections For your information only Case No. Name Address New address? Birth date County of residence Marital status Occupation Where employed Under PHN ~ Supervising agency: supervision C]Yes DNo Reason not supervised: Legal settlement in State; [jYes DNo In county: □ Yes □ No Veteran: □ Yes □ No Hospitalization Y Reason not recommended 1 es i-iNo hospitalized Reason for referral; Specify what prompted the first examination Age Sex Color Symptoms Contact Mass x-ray Special occupation group (e.g., food handler, etc.) Selective Service Examination Army or Navy Discharge Veteran’s Hospital Report Interstate referral Other Date report Diagnosis „ Under medical or visit Form, stage, activity **u um supervision of Remarks Other services to family (Agencies, etc.?) Remarks: The Public Health Nurse will originate this form to report new information which will include; 1. Change of name and address 2. Change of marital status 3. Change in occupation or place employed 4. Admission to or discharge from PHN supervision 5. Change of medical supervision 6. Change in service rendered by other agencies 7. Death from a cause other than tuberculosis Report by Date Figure 5 24 REPORTS b MORBIDITY REPORTS In all States, either by law or health department regulation, tuberculosis is a reportable communicable disease. The attending physician in some States re- cords only the name and address of the patient and “tuberculosis” on a general epidemiological report. In others, a special tuberculosis report form such as figure 6 is used, which provides more specific in- formation concerning address, age, sex, color, marital status, occupation, legal residence, stage and activity of disease and sputum tests. Figure 6 is preferable because it gives public health workers information needed for identification of the patient and some basis for intelligent follow-up. reach the State Central Record System. The first case report may constitute the first entry in a State Central Record card. b CLINIC REPORTS Chest clinics are the best sources of information about the current medical status of patients under their supervision. Clinic records will supply data concerning last X-ray reading, sputum analysis, gen- eral recommendations and date due for re-examina- tion. It should be possible to obtain such information CLINIC TOWN COUNTY DATE TUBERCULOSIS CLINIC REPORT CLINICIAN CLINIC NURSES Volunteer* and Attendant* DIAGNOSIS AND REMARKS REPORT OF A TUBERCULOSIS CASE TO STATE HEALTH DEPARTMENT Name and Addreaa AGE SEX COLOR Referred by IF CONTACT. NAME OF SOURCE CASE To Clinic Ntwjpld BIRTH DATE OCCUPATION SEX COLOR RESIDENCE IN Q UNDER 1 YEAR STATE: □ I YEAR ON OVER MARITAL STATUS 19 NUMBER OF FAMILY CONTACTS: UNDER 15 YEARS 15 YEARS OR OVER FORM AND STAGE OF DISEASE IMPRESSION OF ACTIVITY SPUTUM MINIMAL MODERATELY ADVANCED FAR ADVANCED OTHER. SPECIFY: PROBABLY ACTIVE ACTIVITY UNDETERMINED PROBABLY INACTIVE POSITIVE NEGATIVE NO EXPECTORATION NOT EXAMINED Total FAT I ENT WILL BE SUPERVISED BY: □ MYSELF Cl OTHER. SPECIFY DIAGNOSIS CONFIRMED BY X-RAY: Q YES □ NO Figure 7 Total Number at Clinic Figure 6 from all public clinics. Private clinics should also be encouraged to submit similar reports. In some instances it may be feasible to obtain a duplicate of the whole clinic record. However, this is apt to be much more detailed than necessary for the Record System. The suggested clinic report (figure 7), de- signed particularly for Record System and register use, contains only the information needed for these systems. The report from the local health department Such reports are ordinarily routed through the local or county health department which forwards either the originals or duplicates to the State health office. In cities or counties without health departments, the physicians usually send the reports directly to the State office, and they are routed to field personnel in the area. In either situation, case reports ultimately 25 clinic should be first abstracted on the nursing rec- ords and register and then sent on to the State Cen- tral Record System. Clinics operated by the State sanatorium or State tuberculosis division may report directly to the Central State Record System, After entry of pertinent data on the record card, the report will be forwarded to the local health department. • PUBLIC HEALTH NURSING REPORTS Public health nurses are the health department repre- sentatives who have, through home visits, the most frequent contacts with tuberculosis patients. They are indispensable sources of information for the Rec- ord System. They can report change in address, change in medical supervision or examination of contacts. To standardize the information originating from the many nurses throughout the State, the in- terchange form (figure 5) suggested earlier is help- ful. Pertinent material is transferred from the nurs- ing record to this interchange form and routed to the local register and the State Central Record Sys- tem. Nurses report whenever a visit reveals new information which supplements or changes that already recorded. • HOSPITAL ADMISSION AND DISCHARGE REPORTS The value to public health workers of hospital ad- mission and discharge reports which indicate a change in the patient’s medical supervision cannot be over- emphasized. The use of the State Central Record System as a clearing center insures that sanatorium reports will be available to all concerned in time for effective use. Many sanatoria voluntarily notify health departments and private physicians who are to supervise cases after discharge. This clerical task for the sanatorium is simplified if reports are sent to one clearing center which forwards them to local health departments. The local health department wants to know about admissions and discharges as they occur. Prompt reporting of discharges is par- ticularly important because it is immediately follow- ing discharge that the patient should be brought under public health supervision. At this time local DAILY HOSPITAL ADMISSION SUMMARY HOSPITAL ADMISSIONS DATE PATIENT S NAME I COUNTY Of| REFERRING AGENCY OR AND ADDRESS RESIDENCE PHYSICIAN’S NAME Figure 8 DAILY HOSPITAL DISCHARGE SUMMARY HOSPITAL DATE PATIENT’S NAME COUNTY OF AND ADDRESS RESIDENCE DISCHARGED DIAGNOSIS ( including clinical status) SPUTUM RECOMMENDATIONS Figure 8A HOSPITAL DISCHARGE REPORT torn* of Institution) Date PATIENT’S PATIENT’S ADDRESS maiden) COUNTY OF ON DISCHARGE RESIDENCE dUcharge CD advice D advice O AWOL O plinary Q death D other Form and Stage □ PRIMARY □ MINIMAL □ MOD. ADVANCED □ FAR ADVANCED O OTHER (Specify) DIAGNOSIS ON DISCHARGE ~ Activity Sputum ] ACTIVE 1 QUESTIONABLY ACTIVE iINACTIVE ] POSITIVE ]NEGATIVE □ FURTHER EXAM. NOT INDICATED □ RE-EXAM. IN MONTHS RECOMMENDATIONS PER y118 WORK NO. WEEKS BEFORE RECOMMENDED □ AMBULANT TREATMENT □ PNEUMOTHORAX TO BE CONTINUED 1. Type work recommended 2. Recommended by — _ , . _ . . (physician or vocational rehab, director) I. Rehabilitation Service with which patient is registered' 1 ” Remarks: Other significant findings, surgery, complications; Figure 9 26 health officers and nurses are interested in diagnosis, sputum and reason for discharge, as well as in recom- mendations for the patient’s care. Daily admission and discharge reports (figures 8 and 8A) may be requested from State and large county sanatoria; weekly summaries from smaller sanatoria may be more practical. A detailed indi- vidual discharge report (figure 9) for each patient is preferable because after its entry in the State Cen- tral Record System it is easily forwarded to the proper local health department. Further, if a sana- torium uses a summary report containing information for a group of patients, it becomes necessary for the State office to copy for each local health department the information about its cases. • REPORTS FROM PRIVATE PHYSICIANS To learn the status of disease of all tuberculosis pa- tients in the community, the health department needs a periodic report on those patients under the super- vision of the private physician. Many patients do not remain under the care of one physician; many do not return to any physician for responsibility is to make sure that they are under some continued and current supervision. It is recom- mended that, if possible, current status on this group of patients be determined at 6-month intervals. The State tuberculosis division should initiate the queries which are directed to the local health departments. They in turn secure the information from the private physicians. The local health department may do this by means of a form such as figure 10, a telephone call or a nurse’s visit to the private physician. • LABORATORY REPORTS Sputum examinations may be done in State, local or private laboratories, and ordinarily it is possible to obtain a report of each examination. Both positive and negative sputum reports should be routed to the Central Record System. The positive sputum report is of special significance to the health department, as it indicates a possible danger to the community and an active case requiring medical care. The nega- tive report yields important information concerning the whereabouts of cases and their current medical supervision. Often, presumably lost cases are located through information contained on sputum reports. Reports originating in the laboratory of a city or county health department are routed to the local health department and then to the State Central Rec- ord System. However, reports originating in the State or sanatorium laboratory are routed through the State Central Record System first. • DEATH REPORTS In order that the Record System be maintained as a current file, deaths of all tuberculosis cases must be reported to it. The State vital statistics division can supply much of the necessary information. Copies or PHYSICIAN S PERIODIC REPORT OF A TUBERCULOSIS CASE TO STATE HEALTH DEPARTMENT 19 NAME OF PATIENT REPORTED AS UNDER YOUR CARE ADDRESS IS ADDRESS CORRECT? YES PRESENT STAGE OF DISEASE □ MINIMAL C □ MODERATELY ADVANCED [ □ FAR ADVANCED Q □ OTHER. SPECIFY: DIAGNOSIS IMPRESSION OF ACTIVITY PROBABLY ACTIVE ACTIVITY UNDETERMINED PROBABLY INACTIVE □ POSITIVE □ NEGATIVE J NO EXPECTORATION □ NOT EXAMINED Figure 10 PATIENT IS UNDER MY SUPERVISION YES □ NOQ DATE OP LAST X-RAV_ APPROXIMATE DATE PATIENT TO RETURN care. Although the health department does not give direct medical care to all tuberculosis patients, its 27 transcriptions of the original death certificates are sent to the Record System. For future reference and study they should be kept in a permanent file in the State tuberculosis control division. Not only death certificates on which tuberculosis is assigned as the primary cause, but all certificates mentioning tuber- culosis should be included. Search for death certifi- cates mentioning tuberculosis should be conducted routinely each month by personnel of the vital sta- tistics division. These certificates must be selected by reading or scanning all causes of death on all cer- tificates. Death certificates for residents who have died in other States are also available in the vital sta- tistics division and special request should be made to the State registrar to secure them. In addition, there will be instances when tuberculosis is not mentioned as a cause of death on the certificate of a patient previously reported as a tuberculosis case. When local health departments obtain knowledge of such a death they should forward the information to the State Central Record System. The State tuberculosis di- vision will, for its part, inform local health depart- ments of all tuberculosis deaths among the local residents, particularly those occurring outside the local area. • OTHER REPORTS Any additional case information received in the State tuberculosis division should be cleared with the Rec- ord System. Interstate reciprocal reports, Selective Service referrals, reports on mass survey suspects and general correspondence contain current data on loca- tion of patients and their medical and supervisory status. These reports are usually directed from the primary source to the State tuberculosis division, and according to the general plan for routing, they are then forwarded to local health departments for action. As a general procedure all correspondence, reports and records in the State tuberculosis office are directed to the Record System clerk who abstracts pertinent information and routes the report. 28 how tKE luifttt GENERAL CONSIDERATIONS The planning of a State Central Record System raises two questions: Which cases shall be included in the Record System? To what extent will they be investigated? A State Central Record System could be started with only newly reported cases if no file of previously reported cases can be obtained at the start. Previously reported cases under the direct super- vision of health departments could be added as nurs- ing or clinic reports are received. Actually, it seems desirable to start with all cases reported in recent years, in order to profit from past case reporting. The extent of investigation of previously reported cases will be determined by number and quality of personnel for clearing activities, as well as by the availability and kind of information which may be found in sanatoria, clinics and health departments. The official case reports for the years selected will include not only all known living cases but cases dead, lost, moved out of the State, healed, or in no need of supervision. To eliminate those cases no longer in need of medical supervision is one purpose of initial clearing operations. By the same operations it is also possible to obtain a certain amount of inter- mediate and current case history on those cases which will constitute the State Central Record System. A well-staffed State office with an adequate budget could arbitrarily elect to investigate all cases re- ported during the last ten years. This group would include almost all known cases in the State. But much of the work would be unprofitable because a high percentage of cases will be found to be dead, lost, moved out of the State or not in need of super- vision. On the other hand, if only new cases or those reported within one year are included, considerable time must elapse before the Record System gives a complete picture of the known case load. Many States will be able to investigate morbidity reports received during the past several years. Few will be able to go back as far as ten years, and few will wish to start with new cases alone. A conservative yet practical procedure is the in- vestigation of cases reported in the last five years. Investigation should cover all cases for whom some 29 report has been received in the stated period, even though they may have been originally reported many years before. It will be found that a five-year group will include most of the known active cases in any area. Missed cases will be added to the Record Sys- tem as additional reports are received through any of the channels set up for reporting. In Kansas and Oregon, after perfunctory investi- gation through readily available sources, cases were classified into three categories: 1. Cases eliminated as lost, moved out of State, dead, non-tubcrculous or not significant for follow-up according to State policy. 2. Cases known to be under some medical super- vision or in need of medical care. These cases will constitute a large part of the final Record System. 3. Cases whose supervisory and medical status is unknown. This group may be held in a separate file pending a gradual yet more intensive in- vestigation by local health departments. At the close of initial clearing operations for Kansas in November 1945, there was the following disposition of cases originally reported during the years 1940 to 1944: November 1945—Disposition of Cases Originally Reported in Kansas from 1940-1944. Year of first case report Total reports Cases remaining in Record System , Cases excluded from Record System Last report received within past 12 months Last report received over 1 year previously Dead, arrested, moved out of State, lost, or not significant for follow-up Number Percent Number Percent Number Percent Total 3,688 733 19.9 602 16.3 2,353 63.8 1940 757 86 / 11.4 125 16.5 546 72.1 1941 829 98 11.8 145 17.5 586 70.7 1942 698 129 18.5 131 18.7 438 62.8 1943 697 157 22.5 109 15.6 431 61.9 1944 707 263 37.2 92 13.0 352 49.8 Investigation showed that 72 per cent of the initial 1940 cases were closed as compared with 50 per cent of the 1944 cases. Furthermore, there had been a report within the last 12 months for only 11 per cent of the cases first reported in 1940, compared with reports for 37 per cent of the cases originally reported in 1944. 30 PRELIMINARY STEPS IN CLEARING Because it is difficult to transfer information in its proper chronological sequence from the many sources directly to the final Record System card, the mechan- ics of clearing are simplified by the use of an inter- mediate record or worksheet patterned after the Rec- ord System card. The worksheet can be multilithed or mimeographed as soon as the final draft of the Record System card is approved. A worksheet is started for each case reported by official morbidity report in the selected time period. In the process of clearing with different sources, supplementary in- formation will be added to each worksheet. Finally, after duplicate reports are combined and entries are arranged in chronological sequence, the Record Sys- tem card is prepared by editing the contents of the worksheet and transcribing them to the card. SEARCHING RECORDS 1. DEATH REPORTS Elimination of worksheets for deceased cases should be the first operation in clearing. Much fruitless searching will thus be avoided. The size of this op- eration will vary among States, since some State tu- berculosis divisions may have already indicated the fact of death on the case reports. One way to clear for deaths is to match the work- sheets against the index of deaths in the State vital statistics division. This index will normally include not only deaths occurring in the State but deaths of residents occurring anywhere in the United States. 2. SANATORIUM RECORDS As sanatorium and out-patient clinic records contain significant material for many cases covered by the Record System, it is advisable to transport all the worksheets to each sanatorium in turn, in order to check against sanatorium records. State or county sanatoria will usually grant permission for clearance activities. Privately owned or Federal sanatoria may allow inspection of their records; if not, information may be obtained through written query. The worksheets should first be compared with a master index of the sanatorium and records pulled for Record System cases which have been hospitalized. A list of all patients in the sanatorium and under sanatorium clinic care should be checked to ascer- tain whether there are any patients under treatment for whom there are no worksheets. For these, work- sheets will be added. In some States all sanatoria may be under one governing body, such as a State Board of Health or Department of Public Welfare, which may have one central file of case abstracts. Under such a system the task of clearing cases with sana- torium histories will be greatly simplified. 3. LOCAL HEALTH DEPARTMENT RECORDS Public health nursing records Public health nursing records will be the main source of information for clearing. The worksheets, sorted according to the city or county of residence of pa- tient at the time of last report, can be taken to the local health department. There they can be checked with family folders or other nursing records. Three purposes will be served in this clearing operation. First, a certain percentage of the cases may be eliminated because of death, change of residence to another State or because the patient no longer needs supervision. Second, current medical status, super- vision and other information may be added to the worksheets. Third, additional active cases under 31 public health supervision will turn up. Cases in this third group may not have been previously reported or may have been reported before the time interval selected. A Record System worksheet will be pre- pared for each of these patients. The amount of information to be gained from the nursing records of course will vary with the extent of development of local tuberculosis control activi- ties and particularly with the amount of nursing service for tuberculosis. Full-time city and county health departments will have records with detailed histories of medical and supervisory status and in- formation on examination of contacts. On the other hand, in counties and cities with inadequate nursing staffs, data in the nurses’ records may be scanty. In fact, little more may be ascertained than the patient’s place of residence. The family folder or case record for tuberculosis may not be the only source of information. Inquiry should be made concerning all tuberculosis records in the local health department. Other possible sources may be individual tickler files, correspondence and unfiled reports. The review of nursing records should be carried out with as much personal assistance as possible from the nursing staff. Due to current short- age of nursing and clerical personnel, many health department nursing records may be incomplete, and much pertinent material needed for clearing will be secured through discussion with the public health nurses. Care must be exercised to abstract from nursing records only that information which defines current supervisory and medical status of the patient and those details of the case history which are important for future supervision and follow-up. Clinic records Several types of chest clinics may be in operation in a State, and they will generally allow inspection of their records. The entire health department clinic file should be checked against the worksheets. The same procedure should be followed for private clinics, but if this is impossible, information can be obtained through correspondence with the clinic director. 4. REPORTS FROM PRIVATE PHYSICIANS Determination of current status of patients last re- ported under the care of private physicians should be the last step in clearance to avoid querying physicians about cases whose status could have been learned from other sources. The proportion of cases for whom the private phyisician is the only source of current information varies widely from one com- munity to another. To learn whether a patient is still under the super- vision of the physician who last reported the case is a difficult but necessary task. Investigation will show that a high percentage of the old reported cases are under no known supervision. This indicates the need for more careful and current follow-up. Some of these cases should be reopened for health department service, some should be under sanatorium or clinic care and others may not be in need of public health supervision. A personal visit by the health officer or nurse to the private physician, a telephone call or a mailed query are the principal methods of obtaining infor- mation promptly. The first two may be possible in some city or county health departments and will be effective. Mailed queries may be the only means of reaching some physicians. Whenever the mailed query 32 is selected as the method, it should be signed and sent by the local health officer. The content of the query form (figure 11) will greatly influence its usefulness; if too much is asked, the returns are liable to be poor. The present location of the patient and the type of his medical supervision is the information most wanted. Additional questions can be added if full reporting is anticipated. It will often be found that a number of cases for which there are no previous morbidity reports will be reported at this time. In counties with full-time health departments and established tuberculosis con- trol programs, where the medical societies are in full accord with the program, a rather detailed question- naire may be used. In addition to information on supervision, diagnosis on last X-ray and results of sputum examination may be requested. In a county with neither a health department nor a nursing serv- ice, it is doubtful whether the query should request anything more than type of current medical super- vision. accompanied by a query form listing cases last known to be under his supervision. The 64 percent of the physicians who answered the queries returned in- formation on 316 cases, or 61 percent of the original 515 cases. Of the 316 cases, 21 percent were reported to be still under the supervision of the physician to whom the query was sent, 14 percent were reported to be under the supervision of another physician or hospital, totaling 3 5 percent under known super- vision. In addition, 19 percent were known to be either arrested or dead. The remaining 46 percent were not known to be under medical supervision. RESULTS OF CLEARING After worksheets have been cleared with all sources of information and those for cases needing no public health supervision are eliminated, those remaining will represent cases under medical care or in need of public health supervision according to local pol- icies of case management. Analysis of the latter group will indicate that the current status of many cases is not known. If "current” means that any report on a case has been received within one year, information in the Kansas inventory was 68 percent current after perfunctory clearing; in 32 percent of the cases, there had been no report for over a year. On the same basis, 72 percent of the inventory in- formation in Oregon was current. It is recommended that the section in any State Central Record System corresponding to the 32 percent in Kansas and the 28 percent in Oregon be included in the Record Sys- tem but segregated or signaled for later gradual investigation by local or State field personnel. After all clearing operations are completed, in- formation will be transcribed to the permanent Rec- ord System cards. Figure 11* To show the results of querying physicians in counties without full-time health departments, the following experience in Kansas is cited. Letters were mailed to 239 physicians requesting information about 515 cases. Each physician received a letter 33 SPECIFIC PROCEDURES FOR INITIAL CLEARANCE OF CASE RECORDS A. PRELIMINARY 1. Prepare a work sheet from the case report file in the tuberculosis division for each case reported within the selected time interval. Copy all pertinent information: a. identifying data b. diagnosis 2. Arrange work sheets in alphabetical sequence by case name. 3. When other cases are found in the process of searching, prepare a worksheet for each additional case. In clearing these worksheets with various sources such as sanatoria and health departments, search for tuberculosis cases in such files for which there are no worksheets. There will ordinarily be many of these. B. SEARCHING RECORDS 1. Deaths a. check all work sheets against State death index, b. on work sheet enter date and fact of death. 2. Sanatorium records a. Hospital case histories (1) Check case histories against work sheets (2) Enter on work sheets dates of each admission diagnosis on admission diagnosis for patients in sanatorium at present date of each discharge reason for each discharge diagnosis on discharge sputum on discharge present medical supervision of dis- charged patient b. Sanatorium clinics (Out-patient records may be found with sanatorium case histories) Enter on work sheets date of most recent clinic visit diagnosis at last visit last recommendations (treatment, supervision) date, results of most recent sputum examination Rearrange worksheets alphabetically by local health department jurisdiction 3. Local Health Department records a. Public Health Nursing records (1) Check worksheets with public health nursing records, family folders, corre- spondence, tickler files (2) Enter on worksheet present address of patient present medical supervision (name of private physician, clinic or sanatorium) date of last medical supervision dates of each sanatorium admission and discharge, reason for dis- charge and name of sanatorium 34 whether patient is under public health nursing supervision date of last nursing visit changes in name, marital status, occu- pation, place of work any items of identification not previ- ously known b. Clinic records (1) Check clinic files against worksheets (2) Enter on worksheet date of first clinical examination diagnosis at first clinical examination date of most recent clinic visit diagnosis at most recent clinic visit last recommendations (treatment, hospitalization, supervision) dates and results of recent sputum report c. Laboratory reports Check positive sputum reports against worksheets d. Other records in local health department Mass X-ray file for suspects, Selective Service rejectee file, consultation films, correspondence files. 4. Private physicians a. Query by written form (fig. 11 p. 33), let- ter, telephone, or nursing visit for informa- tion on patients last reported under physi- cian’s supervision b. Enter pertinent data on worksheet 5. Other sources of information Tuberculosis Associations Office of Vocational Rehabilitation Social Service Organizations Check worksheets with these sources for additional information such as; location of patient medical supervision other agencies interested in family C. FINAL STEPS 1. Review worksheets. Eliminate worksheets for: a. cases dead, lost, moved out of State b. cases not in need of supervision according to State policy 2. Prepare master index cards (figure 12 p. 38) for all remaining worksheets. File cards in one alpha- betical sequence. (Keep worksheets in county groups for next step.) 3. Prepare a Record System card for each worksheet a. Edit, rearrange and transcribe pertinent data from worksheet to Record System cards. Keep in county groups b. Arrange Record System cards in permanent current file by county. 35 |«Mlf 1| * SWtEKWWL IECJM SYSTEM INSTALLED ailGt" »ll»- MAINTAINED? fv>i PERSONNEL C |JP upervisory and clerical personnel responsible for installation and maintenance of the State Central Record System must be carefully selected. In addi- tion to being sufficient in number, personnel must be intelligent, well-trained and aware of the objec- tives of the State and local tuberculosis programs as well as the role of the State Central Record System in those programs. Supervisory Personnel: Supervision of the Record System requires an understanding of the whole tu- berculosis program, including techniques of case finding, significance of case management and treat- ment, and knowledge of the interaction of all agen- cies concerned with the total tuberculosis problem. Ideally, the Record System should be under the im- mediate supervision of the director of the tuberculosis control division, for it is he who will be using it as an administrative tool. However, since it will be impossible in most States for the director to assume this added duty, it is recommended that this responsi- bility be delegated to a record analyst. The record analyst would not only supervise maintenance and use of the Record System, but would also be re- sponsible for coordination of field reports and out- side records. Additional duties of this position might entail the preparation of charts, tables and statistical analyses from the Record System and other sources. Most State civil service or merit systems will have a position classification for a statistician or a record analyst. In selecting such a person, training in sta- tistics, sociology, biology and, if possible, experience in the fields of public health or medical statistics should be stressed. If no position classification exists, one should be developed in cooperation with the State civil service or merit system. A sample job descrip- tion may be obtained from the United States Public Health Service, Tuberculosis Control Division, Wash- ington, D. C. 36 Clerical Personnel: Since the members of the cler- ical staff must appreciate the purpose of the Rec- ord System and use judgment and discrimination in interpreting many types of medical records, they must be of the highest caliber. They should be capa- ble of efficient and exact performance in detailed work. The need for Record System personnel will vary from Stare to State. Special activities such as indus- trial surveys and other mass radiography projects will influence the amount of work of the State Cen- tral Record System. The number of reports flowing to the Record System will, in large part, depend on the amount of services rendered by State, local and private agencies. Of course, the prevalence of tuber- culosis (as evidenced by. morbidity and mortality rates) will also have a direct influence on the volume of clerical work. In Kansas and Oregon, for example, the size of clerical staff needed for work on the Rec- ord System varied. Kansas, with a population of 1.7 million, a mortality rate (1944) of 20 per 100,000 population, and an annual case reporting rate (1944) of 40 per 100,000 population, requires the services of a record analyst and one full-time clerk. Oregon, on the other hand, with a population of 1.2 million, an annual mortality rate of 25 per 100,000 popula- tion, and an annual case reporting rate of 5 6 per 100,000 population, requires a permanent staff of one record analyst and two clerks. During the installation of the Record System, it will be necessary to employ temporary or part-time clerks who will not be needed later. Great care should be exercised in their selection. It may be pos- sible to obtain some temporary personnel by borrow- ing within the tuberculosis division of the health department. Personnel is, without doubt, the most critical factor in the success of the Record System plan. Personnel attitudes, interests and abilities will directly determine the effectiveness of the Record System in the tuberculosis control program. DEFINITION OF POLICY The State Central Record System has been defined as a system of records for maintaining a current sum- mary of pertinent medical and public health data of known tuberculosis cases and suspects which accord- ing to health department policy require some type of supervision. Reports from many sources will be accepted, rejected or abstracted uniformly only if instructions and definitions are clearly stated. Rec- ord System personnel need standards in order that entries and procedures will be uniform over a period of years. This chapter, a working manual for the record analyst, is devoted to definitions and specific directions for procedures involved in the maintenance of the Record System. Policy regarding current and closed cases: The current file is a file containing a current record for every known case or suspect considered "administra- tively active” by the head of the State tuberculosis office. "Administratively active” cases are those under current medical supervision or in need of med- ical supervision as defined by State and local policies of case management. The definition must be made through agreement with the nursing division, local health department and sanatoria directors. These policies are generally determined by the extent of the State and local tuberculosis programs and the availability of facilities for service. There undoubt- edly will be considerable variation among the States 37 in definitions of "administratively active” or current cases. For example, in a State with limited local health organization and a scarcity of public health nurses, only the presumably clinically active cases will be retained in the current file. Another State with more extensive development of local health services may retain in the current file known ar- rested cases, cases reported as clinically inactive and suspects. Since all case records will eventually be discharged from the current file it is necessary to maintain a file for closed case records. This will include cases de- fined as not administratively active, such as dead, lost or moved out of the State. It may be termed a "closed file” and must be kept for two reasons: (1) as a source of reference and statistical data, and (2) to make case records available for transfer into the current file for those which may again become administratively active, such as cases returning to the State, lost cases which are found and cases with reactivation of the disease. ORGANIZATION OF FILES To make information available for both local and State use, 3 files will be necessary. 1. The current file contains cards on all administra- tively active cases. Record System cards are grouped in a section for each county or other local health jurisdic- tion. Record System cards are arranged alphabet- ically within each county section. 2. The closed file contains cards for all cases con- sidered administratively inactive. The cards are arranged by countjy, as in the current file, or by alphabetical sequence. 3. The master index contains a card for every case record included in the current file and closed file. Arrangement of the current file by county sections, plus the existence of a closed file, requires the maintenance of a master index which will show where the Record System card is filed. The cards are arranged in one alphabetical sequence for entire State. Essential items on the master index card are: Name Location of Record System card—in the current or closed file. County or city section in which the card is filed. Additional identifying information such as year of birth, marital status, sex and color to assist in locating records and avoiding duplication. Figure 12 shows that the card for Mary Doe may be found in the "Jackson County” section of the current file. Figure 12 H Figure 12 a. 9 Figure 12A shows that the card for John Doe may be found in the closed file: 38 INSTRUCTIONS FOR FILLING IN THE RECORD SYSTEM CARDS Whenever a first report is received, a card is prepared and inserted in the current file. Information entered from first report should be typewritten. Subsequent entries may be in longhand. Instructions for filling out the cards are: ENTRIES - Identifying data Name Last name first in capital letters, followed by first name and middle name or initial. For a mar- ried woman enter also maiden name when available. COUItty County of residence. Number A Record System number can be assigned to each new case reported. A consecutive series, be- ginning with number 1, may be maintained for each county. 39 Address Present home address. Subsequent addresses will be added. After each change of address, indi- cate the date. The last entry is present address. Admission to a hospital (other than a mental hospital) does not constitute a change in address. Birth date Enter month, day and year. If only age is given, compute and enter year of birth. Age At the time the case is first reported, enter age at last birthday. Sex M or F for male or female. Color W for white, N for negro. Designations for other groups should be written out as "Chinese,” etc. Marital status . . . Write in full; single, married, widowed, divorced, separated. Occupation .... Enter description of specific job: janitor, teacher, miner, carpenter, bookkeeper, student, house- wife, etc. DO NOT CONFUSE WITH "place employed.” Place employed . . Enter name of company. Under public health nursing supervision. Enter "yes” or "no.” If there are several agencies in the community, specify whether super- vision is from local health department, school, or private nursing organization. State reason for no supervision. Legal settlement or legal residence . . . Check correct block, according to State law. Veteran Check yes or no. Reason for referral . What prompted the first examination for tuberculosis? Check proper block for reason. Date Enter month and year of referral. Official morbidity report by Specify by name the private physician, clinic, sanatorium, hospital or other source first submit- ting an official morbidity report. Date Of report . . . Enter date of first official morbidity report. 40 ENTRIES - Current Status Date From report of private physician, clinic or hospital, copy date of examination, (i.e., show date of examination—not date information is recorded). When the date of examination is unknown, enter date report reached Record System and indicate by an asterisk. Make entries in chrono- logical order. Diagnosis .... Use the following abbreviations for diagnosis: Form of disease Moderately advanced Mod Adv Pulmonary Pulm Far advanced Far Adv Primary Prim Activity Other forms Specify form Active Act using abbreviations Questionably active Quest Act Stage of disease Quiescent Quies Minimal Min Apparently arrested App Art 41 Arrested Arr Tuberculosis Tbc Apparently cured App Cured Suspect Susp Inactive Inact Not stated N S Healed Heal Questionable ? Other abbreviations Probably Prob Sputum Positive Pos Negative Neg No expectoration N E Medical supervision . Clinic Name of chest clinic Hospital Name of institution and admitted or discharged Private physician Name of physician and "MD” Out-of-State Specify supervision as above plus name of city and State Health department H D Reported by ... . Specify: Clinic Clin Med. discharge from Armed Forces. . . . A F Death certificate D Cert Official morbidity report Morb General hospital Hosp Private physician Phys Interstate referral Int Ref Public health nurse PHN Institution other than tbc Tbc sanatorium San sanatorium Inst Veterans’ hospital report Vet Mass X-ray Mass X Laboratory report Lab Remarks . . . . . In the Remarks column enter in abbreviated form all data not applicable to the other columns but important for the supervision of the case, such as: application made for hospitalization, rea- son discharged, complications, recommendations for treatment, surgery, pneumothorax, discon- tinuance of pneumothorax. 42 ABBREVIATIONS Standard abbreviations in general use in your State may be entered in the following space: 43 DATE DIAGNOSIS: FORM, STAGE,ACTIVITY UNDER MEDICAL SUPERVISION OF REMARKS; REASON NOT I ZED, REASON DISCHARGED. ET■ 1st quarter 1 Blue March J 1 Pink April 1 2 Red May > 2nd quarter 2 Blue June J 2 Pink July 3 Red August - 3rd quarter 3 Blue September 3 Pink October 4 Red November - 4th quarter 4 Blue December 4 Pink Reference to special groups: Suspects Positive sputum—no case report 6 Red Mass X-ray suspect _ - 6 Brown Any other suspect not reported _ - 6 Green Probable case, official morbidity report due * Blue New case reported within calendar year ... , .... •> Pink Reported case first discovered by mass X-ray _ _ 5 Brown M* Renorted ease first discovered bv clinic s Creen C* Any item which remains constant may be given a permanent ignal by use o: a rubber stamp and colored stamp pad ink. The visible margin may be divided into the eight signaling positions. 66 GENERAL DIRECTIONS FOR ENTRIES IN THE REGISTER; Current File and Closed File Change of address: A—Enter new address on register card B—When a report indicates that a person has moved outside the county, transfer card from current to closed file C—Notify State Record System of change of ad- dress on tuberculosis interchange form (figure 5, page 24) For querying: A—Whenever information reaching the register is incomplete or inconsistent, query the source of report for additional information. Affix a signal to the register card and denote the month in which a reply is due (Signal position 1-4). The tuberculosis interchange form can be used to query local nurses or the State Record System. B—When more than 6 months have elapsed since the last report on an administratively active case under the supervision of a private physi- cian, query private physician for current status of patient. Telephone call or nursing visit may be used to request information from private physician. SPECIFIC REPORTS WHICH FLOW TO THE REGISTER AND METHODS OF HANDLING 1. Official morbidity reports made by the private physician, clinic physician, hospital physician or the local health department to report the existence of a case of tuberculosis. a. When first report is received, prepare and file a new card, using available information. Use standard abbreviations for diagnosis (see page 62). For each report: Check each incoming report against the current file and the closed file to learn whether a register card exists. A—If there is a register card: 1. pull from file 2. enter new information 3. signal 4. refile register card 5. route report to proper persons B—If there is no register card: 1. search other possible sources of information in the office—(old case index, mass survey file, correspondence) 2. originate a register card from the new re- port, adding pertinent data previously re- ported 3. signal 4. file register card in proper place—current or closed file 5. route report to proper persons For transfer between current and closed file: A—When an administratively active case is closed, transfer card from current to closed file (dead, moved, lost, not significant for further follow- up) B—When a closed case becomes administratively active, transfer card from closed file to the current file (lost case which has been found or cases which have moved back to the com- munity) 67 b. Signal card indicating the month an investi- gation report is due from public health nurse (Signal position 1-4). If no report in 2 weeks, send query on tuber- culosis interchange form to nurse. c. If there is already a register card for case, enter the new information as current status in one horizontal line on the card. d. Report is routed from physician ► local health department (case register) State health department (State Central Record System). 2. Clinic reports a. Enter on the register card, date of examina- tion, diagnosis, results of sputum tests, name of clinic and recommendations. (Use abbre- viations on pages 62, 63.) On reverse of card enter date and result of contact examination. b. Enter reports of clinical examinations. Itemize dates of successive pneumothorax re- fills under "Remarks” on same line as last clinical examination. c. Signal indicating "Month next report is due,” positions 1-4. d. Routing of report: 1. local health department clinic ► local register ►State Record System, or 2. State clinic ——►State Record System ► local register 3. Public health nursing report a. Enter on register card date of each public health nursing visit to the tuberculosis patient and any new information or change of in- formation. This may consist of movement of patient, change in medical or nursing super- vision or change of identifying data, such as name, marital status, occupation or place of employment, examination of contacts. b. In small centralized health departments the nursing record can be routed through the reg- ister after each home visit. The date of nurs- ing visit and changes of information can be entered on the register by the clerk. c. In large health departments the nurse will probably inform the register of new informa- tion or change of information on the tuber- culosis interchange form. Record of home nursing visits can be secured for the register from the daily record sheet of each nurse. After the sheets have been used for statistical tabulation, they can be routed weekly or monthly through the register. d. Information is routed by means of a tuber- culosis interchange form. Public health nurse ► register State Record System. 4. Hospital admission and discharge reports a. Admission: Enter on one horizontal line the date and fact of admission, diagnosis, result of sputum examination and name of institution. b. Discharge: Enter same data plus reason for discharge and recommended supervision. Affix signal indicating the month the next report is due, Signal position 1-4. c. Routing of hospital reports: Hospital ► State Record System ► local register ► public health nurse. 68 5. Sputum reports a. Negative reports: Enter on register card the date, result of examination—including type of examination—and name of physician or agency submitting specimen. b. Positive reports: Enter information as above. If there is no case record in the register, pre- pare a register card. Affix signal indicating "Positive sputum—no case report,” Signal position 6. After two weeks, request an official morbidity report from the physician or agency which submitted the specimen. c. Routing of reports: Laboratory State Record System —► register f public health nurse. 6. Death reports a. Enter on register card fact and cause of death and name of physician or institution. b. If no register card exists, prepare one from the information on the death report and place the card in the closed file. Request official morbidity report from physi- cian who signed the death certificate. Send interchange form to public health nurse to initiate contact examinations. c. Routing: Vital statistics division State Rec- ord System ► register public health nurse. 7. Mass X-ray reports a. Start register cards for all suspects on the basis of the small film reading. Make subsequent entries from the reports of the 14"x 17" follow-up film, clinical exam- inations and nursing visits. b. Signal "Mass X-ray suspects” (Signal posi- tion 6) for attention, until the suspect is offi- cially reported as a tuberculosis case or as not significant for further supervision. 69 WHAT STATISTICAL DATA Will THE STATE CENTRAL RECORD SYSTEM PROVIDE? |n addition to serving as a case-holding device, the Central Record System offers an opportunity to assemble and analyze data for general administration of the State and local tuberculosis programs, and for research in the epidemiology of tuberculosis. Statis- tics to be used by the administration for consultation and guidance to local health departments, in direct case management and program planning, can be sum- marized from the State Record System whenever needed. These statistics can further serve as a source of most of the data required by U. S. Public Health Service for semi-annual and annual reports. The State tuberculosis director requires a knowl- edge of the total State tuberculosis problem to direct the allocation and expenditure of funds and services. He must be able to evaluate the results of services in terms of cases brought under public health nursing supervision, cases hospitalized and cases receiving clinic service. All this information is available from the Central Case Record System. Quantitative measures of total services furnished by public health nurses and clinics to tuberculosis cases cannot be obtained from the State Record Sys- tem without provision for additional details on the cards. The record of services to contacts and sus- pects, an important part of tuberculosis control programs, will also not be available from the State Record System. These statistics in most instances must originate from direct compilations of the serv- ices of each clinic and public health nursing division. While it may not be practical to analyze certain information from the State Record System because of incomplete or unreliable reporting, the need for basic tabulations on new cases, case loads, and deaths is evident. Certain of these tabulations may be planned in advance and will be of use even though the raw data are incomplete. Some will be assembled as needed and will be merely hand counts to give particular indices. Information such as geographic distribution of cases and deaths may be tabulated 70 each month, while more detail of the status of the known case load will be tabulated annually or semi- annually. The method employed to tabulate these data will vary according to the size of the State Record Sys- tem and the equipment and personnel of the tubercu- losis division and the State health department. For small Record Systems containing less than 1,000 cases, it will be possible to hand-sort the cards for the necessary statistics. The vertical visible filing equipment simplifies the process of pulling and re- filing the cards so that the cards can be pulled from the file and easily hand-sorted and counted according to any classification desired. However, even for small installations it will be worthwhile to consider the use of auxiliary punch cards of a simple design to obtain annual or semi-annual tabulations. Machine tabulation is usually needed to compile sufficient statistics on a semi-annual or annual basis from a record system of more than 1,000 cases. Ac- curacy and economy of effort result. METHODS OF MACHINE TABULATION Any State tuberculosis division planning to obtain statistics from the Record System by using punch card equipment must decide whether (1) to main- tain a statistical punch card file as current as the Record System or (2) to punch the whole Record System periodically whenever tabulations are planned (i.e., semi-annually or annually). The first means re-punching the statistical card each time new in- formation on the case comes to the Central Record System. This is a large additional clerical job. The second is a simpler clerical operation; this will call for the complete re-punching of the Record System material annually or semi-annually. The obvious dis- advantage is that original and current status of cases is indicated only at a given time. After practical experience in the field with both methods, it became evident that the first plan was cumbersome and could work only in a State with excellent facilities for statistical operations. Even then, it was doubtful whether the value gained from this method would warrant the expenditure of the extra funds needed for its maintenance. The second plan works well and is relatively simple. In this chapter are presented a punch card code and sug- gested tables which will make available statistics on new cases and suspects, current case load, and mor- tality. A brief description of each of the tables follows: Tables I. A, B, C Summary statistics for case management. State Central Record System personnel should be ready, at any time, to supply summaries of informa- tion for local areas. The director of the tuberulosis division or State consultant nurses may request this information to be used for consultation and guidance in field work with local health departments. Basic data can be quickly hand tallied from the county section of the Record System. Some of these are: Table! A Current Status of Cases and Suspects. Listings, by name, of cases needing discussion and review. Examples: 1. Cases discharged from nursing service 2. Cases under no medical supervision 3. Cases with no record of a recent examina- tion 4. Positive sputum cases or active cases not hospitalized Cases and Suspects by status 1. Tuberculosis cases in current file a. Cases in sanatoria b. Cases in other institutions 2. Suspects in current file 71 3. Mass X-ray suspects by current status a. Reported as cases b. Reported as not tuberculosis c. No report received Table I B Probable activity of disease for cases not hos- pitalized. Table I C Type of current medical supervision for cases not hospitalized. Tables II. A, B, C Current morbidity reports. An analysis of the characteristics of newly re- ported cases, monthly and annually, will serve as a measure of the effectiveness of case finding activities in tuberculosis control. These data collected over a period of years can be used to determine trends in case finding and reporting. Variables important in the analysis of the new morbidity reports are: geo- graphic distribution, the source of the report, stage of disease, age, sex and color. Table II A Newly reported cases by county or city of resi- dence and by form and stage of disease. When the geographic distribution of new cases and deaths is available, it is possible to compute the ratio of new cases to deaths in a given area. This is often used as a measure of the adequacy of case finding methods. The classification of new cases by stage of disease and county of residence will point out the areas reporting tuberculosis only in its advanced stages. Table II B Newly reported cases by form and stage of disease and source of report. This is a particularly useful table since it not only tells who are discovering and reporting new cases (i.e., private physicians, health departments, clinics, etc.) but also indicates the sources which are dis- covering tuberculosis in its early stages. Table II C Newly reported cases by form and stage of disease by age, sex and color. Distribution of tuberculosis cases by age, sex, and color is information necessary for direction of serv- ices of case finding and case management. COUNTY POPULATION (STATE) A. Listing, by name, of cases needing discussion or review B. Cases and Suspects by Status: 1. Tuberculosis Cases in Current File 3. Mass x-ray suspects ” a. Cases in sanatoria By disposition status b Cases in other institutions a Reported as cases b. Reported as not tuberculosis 2. Suspects in Current File c No disposition report received ____ TABLE I A PROBABLE ACTIVITY BY TYPE OF SUPERVISION FOR CASES IN CENTRAL RECORD SYSTEM NOT HOSPITALIZED PROBABLE ACTIVITY TOTAL CLINIC UNDER PHN TYPE OF SUPERVISION NO PHN PR. PHYSICIAN UNDER PUN NO PHN NONE UNDER PUN NO PUN TABLE IB TOTAL POSITIVE SPUTUM OTHER ACTIVE OR PRESUMABLY ACTIVE OTHER CASES TYPE OF SUPERVISION TOTAL Report within fc months t-11 months 12-23 months TABLE I C. TOTAL CLINIC HEALTH DEPARTMENT PRIVATE PHYSICIAN NONE 72 Tables III. A, B, C, D Current Analysis of Record System. Neither incidence nor mortality data as collected in State health departments gives a complete picture of the total known State tuberculosis problem. The State Tuberculosis Record System can be the source of more information. Possible tabulations and their uses are too numerous to discuss in a manual. There are some, however, that should be set up routinely from any State Record System; and some which will serve as bases for annual or semi-annual reports. They pertain to the geographic distribution of cases, clin- ical status and types of supervision. The State health department needs to know the geographic distribution of the case load and its char- acteristics. To evaluate and plan for services, analyses by clinical status and by type of supervision (i.e., the number of active, presumably active, or inactive cases under the supervision of private physicians, health department clinics, sanatoria, or under no supervision) will be valuable. The number of pre- sumably active or positive sputum cases not hospital- ized may be an indication of a need for added sana- torium facilities. Age, sex and color distributions of the case load may further define the problem. To include these factors, the following tables are sug- gested for geographic subdivisions and for the total State. Table ill A Cases by age, sex and color, and by form and stage of disease. Table III B Cases by current medical supervision and probable activity. TABLE II A NEWLY REPORTED CASES OF TUBERCULOSIS BY RESIDENCE OF CASE AND BY FORM AND STAGE OF DISEASE Geographic Area (County or City) TOTAL FORM AND STAGE OF DISEASE REINFECTION TUBERCULOSIS NOT STATED PRIMARY Minimal Mod. Advanced Far Advanced Stage Not Stated Other forms TOTAL TABLE 11 B NEWLY REPORTED CASES OF TUBERCULOSIS BY FORM AND STAGE OF DISEASE AND SOURCE OF REPORT Form and Stage of Disease TOTAL Source of Report Private Phys. Health Dept. Clinic Sanatorium Other Instit. Other Other TOTAL REINFECTION TUBERCULOSIS Minimal Mod. Advanced Far Advanced Stage not stated Other Forms Not Stated Primary TABLE 11 C NEWLY REPORTED CASES OF TUBERCULOSIS BY FORM AND STAGE OF DISEASE BY AGE, SEX AND COLOR WHITE FORM AND STAGE OF DISEASE REINFECTION TUBERCULOSIS AGE Total Minimal .Mod Far Staje Other Stated Primary Advanced Advanced not stated forms MFMFMF MF M FMIFMFMF TOTAL UNDER 5 YEARS 5-14 15-24 25-34 35-44 45-54 55-64 NONWHITE FORM AND STAGE OF DISEASE REINFECT ION TUBERCULOSIS irt —i N<)t Total Minimal . .Mod- ..Far . S'**' . ,°ther Stated Primary Advanced Advanced not stated forms MF MFMF MF M FMiFMFMF TOTAL UNDER 5 YEARS 5-14 15-24 25-34 35-44 45-54 55-64 73 Table ill C Cases by current medical supervision and the in- terval since last report was received. Table III D Cases by reason referred and current medical su- pervision. Additional tabulations. From other information on the card, counts may be made periodically or whenever needed. These would include, for administrative purposes, items such as: 1. Number of veterans reported as cases 2. Number of cases without legal residence in the State 3. Number of positive sputum cases not officially reported. TABLE 111 B CASES BY CURRENT MEDICAL SUPERVISION AND PROBABLE ACTIVITY ACTIVE OR QUESTIONABLY ACTIVE OTHER CURRENT MEDICAL SSKf S. JSSJJi, ««••"« i TOTAL PRIVATE PHYSICIAN HEALTH DEPARTMENT TUBERCULOSIS CLINIC Tuberculosis Sanatorium OTHER HOSPITAL OTHER INSTITUTIONS OTHER NOT STATED TABI.K NIC CASKS BY CIRREM MEDICAL SI PERV LSION \\l) THE INTERV AL SINCE LAST REPORT TIME INTERVAL SINCE LAST REPORT RECEIVED Cl RRKNT MEDICAL — — j— SI PER VISION TOTAL Tmonths «*-•• months 12-1.1 mo. TOTAL PRIV ATE PHYSICIAN Tt BERCLLOSES CLINIC OTHER HOSPITAL OTHER TABLE III A CASES BY ACE. SEX \NI) COLOR AND BY FORM AND STAGE OE DISEASE WHITE FORM AND STAGE OF DISEASE REINFECTION IT BERCl LOSIS AGE Total Minimal . .Mod' Ear M Stage Other Not Primary Advanced Advanced not stated forms Stated ' memIfm f mf m f mfmf mf I ruler 5 Years NON WHITE FORM AND STAGE OF DISEASE REINFECTION i t BERCl LOSIS Total Minimal Advanced Advanced not* stated forms Stated Primar>' TOTAL I'nder 5 Years 65 and over —L_ 1 1 TABLE III D CASKS BY REASON REFERRED AND Cl RRENT MEDICAL SUPERVISION CURRENT MEDICAL SUPERVISION REASON REFERRED , , Private Health .... Tbc. Other Other ... Not PIIVS. dept "*C San. Ilosp. In»t. (Mher None Stated MASS X-RAY INTERSTATE REFERRAL CONTACT SYMPTOMS 74 Tables IV. A, B, C Analysis of the closed file. Cases discharged from the current file to the closed file provide information essential for evaluation of the tuberculosis program and services. For the most part, these cases will be dead, moved out of State, healed, lost or defined as administratively inactive.* Significant statistics for cases closed each year are the following: Table IV A Reason discharged from current file by length of time in current file. Table IV B Tuberculosis deaths by form of disease, age, sex and color. Table IV C Tuberculosis deaths by county of residence and in- terval since first report. TABLE IV A CASES OF TUBERCULOSIS BY REASON DISCHARGED FROM CURRENT FILE BY LENGTH OF TIME IN CURRENT-FILE LENGTH OF TIME IN CURRENT FILE REASON FOR DISCHARGE Under fc ,, mo 12 mo 24 J5 mo i 5 yr byT‘ TOTAL INACTIVE TUBERCULOSIS (not significant for DEAD MOVED OIT-OF-STATE NON-TUBERCULOUS OTHER Table IV A TABLE IV B DEATHS BY FORM OF DISEASE. AGE. SEX. AND COLOR WHITE FORM OF DISEASE TOTAL (all forms PI l.MONARY OTHER FORMS TOTAL I'nder 5 Years 5-14 15-24 25-34 35-44 45-54 55-64 65 years and over NON-WHITE w:l lOTAI. iall forms Pi l.MONARY' OTHER FORMS TOTAL Lnder 5 Years Table IV B Table IV C TABLE IV C HBKRCIIOSIS DKVUIS »V TIMK INTKRX \l. BKIWF.F.N 11 RKK< 1 I.OSIK CASK KKPORT AND DKATII. BY COI STY Time interval between case report and death (.'.unry TM- 1 „,l„ . .1 j t to n itj TOTAL Case* first reported hy death certificate orJ>> morbidity report simultaneously *See chapter VII, "How Is A State Central Record System Installed and Maintained?” p. 3 6. 75 Another use of the Central Record System is to furnish data necessary for the semi-annual and annual reports requested by the U. S. Public Health Service. A copy of each report is reproduced below (figures 16 and 17). FORM Federal Security Agency Public Health Service Tuberculosis Control Div. SEMI - ANNUAL TUBERCULOSIS REPORT State or City Six-months' Period Ending SPONSORED ~BY~ PROJECT FINDINGS TOTAL Official Private agencies agencies A. Number of individuals reported examined in Mass Radiography Projects... Total number of individuals with films characteristic of reinfection ' tuberculosis (By Stage of Disease) 1. Minimal 2. Moderately advanced 3. Far advanced 4. Stage unknown Number of morbidity reports received this period for cases first dis- c* covered by Mass Radiography Projects I. MASS RADIOGRAPHY PROJECTS SEMI-ANNUAL TUBERCULOSIS REPORT n. MORBIDITY A. Total tuberculosis cases newly reported during this period (By Source of Report) 1. Private physicians 2. Tuberculosis sanatoria and general hospitals 3. Public and private chest clinics 4. Mental institutions 5. Death certificates 6. Other FIGURE 16 B. Race and sex of newly reported cases Total 1. White 2. Non-white TOTAL Male Female HI. MORTALITY Provisional number of tuberculosis death certificates coded nos. 13-22 inclusive* by A. State Vital Statistics Division for this six-months’ period (By Place of Occurrence) ♦International List of Causes of Death Remarks 76 It will be found that most of the material required for the semi-annual summaries, and part of that for the annual, can be obtained from the suggested tabulations: SEMI ANNUAL TUBERCULOSIS REPORT I. Mass Radiography Projects Item A. Obtain from units operating in the area. Item B. Count all vertical visible register cards prepared during the six-month period for all individuals whose reports from mass radiography units show films characteristic of reinfection tuberculosis, regardless of whether follow-up examinations have been made or not. Such individuals will ordi- narily be classified as suspects until fol- low-up examinations have been completed or Obtain from Mass Radiography Project Analysis Reports from all units operating in the area. Item C. Hand sort record cards or Use columns 21 through 23 of the sug- gested codes for punch card system. Count those tuberculosis cases newly re- ported during the six-month period re- gardless of the date they were found in mass radiography services as tuberculosis suspects or as having films characteristic of reinfection tuberculosis. II. Morbidity Item A. Hand sort record cards for month and year of initial report or Use columns 13, 14 and 15 of Code. Item B. Hand sort for race and sex or Use columns 9 and 10 Code. III. Mortality Item A. Obtain information from Vital Statistics Division ANNUAL TUBERCULOSIS REPORT (Figure 17) IV. Chest Clinic Services Item A. Count record cards or Obtain statistical reports from each clinic in the State. Item B. Count record cards or Obtain statistical reports from each clinic in the State. Items C and D. Obtain from clinic records unless record cards are planned to include such detail. V. Public Health Nursing Services Items A and B. Obtain from local registers or nursing records. PUNCH CARO SCHEDULE Identification 1-2 County or city of residence 5-6 Case number 7-8 Year of birth 9 Sex 10 Color 11 Length of residence in State 12 Veteran status Original Report 13-14 Month and year of report 77 ANNUAL TUBERCULOSIS REPORT FORM Federal Security Agency Public Health Service Tuberculosis Control Div. ANNUAL TUBERCULOSIS REPORT STATE or CITY YEAR ENDING December 31, 194 IV. CHEST CLINIC SERVICES CLASSIFICATION TOTAL —- Total number of clinic cas'es of reinfection tubercu- ‘ losis diagnosed for the first time during year 1. Minimal 2. Moderately advanced 3. Far advanced 4. Reinfection tuberculosis (Stage Not Specified).... Total probably active 1. Minimal (Probably Active) 2. Moderately advanced (Probably Active) 3. Far advanced (Probably Active) . Reinfection tuberculosis (Stage Not Specified But Probably Active) WHITE NON-WHITE Under 15 years Under 15 years 15 years and over 15 years and over FIGURE 17 Number of previously diagnosed reinfection cases given clinic service during year Total clinic services given during year to all persons included under (A) and (B) D, Pneumothorax Service 1 Number of patients given pneumothorax during year Number of pneumothorax refills and other ser- ’ vices given during year V. TUBERCULOSIS PUBLIC HEALTH NURSING SERVICES A. Total number of tuberculosis cases which were given home nursing service during this year 1. Cases admitted to home nursing service for first time 2. Cases first admitted to home nursing service during previous years B. Total number of visits for tuberculosis made by home nursing service Remarks 78 7-8 Year of birth Numerical—last two digits of year Example: 99 . . . 1899 00 . . . 1900 35 . . . 1935 9 Sex 1 . . . Male 2 . . . Female X. . . Not stated 10 Color 1 . . . White 2 . . . Negro 3 . . . Mexican 4 . . . Indian 5 . . . Oriental (Chinese, Japanese, Filipino) 9 . i . Other X . . . Not stated 11 Length of residence in state 1 . . . Under 1 year 2 ... 1 year and over X. . . Not stated 12 Veteran status 1 . . . Veteran 2 . . . Non-veteran X. . . Not stated 13-14 Morbidity (Month and Year of Original Report) 13 Month 14 Year 1 . . . January Punch last digit 2 . . . February of year. 3 . . . March 4 . . . April 5 . . . May 6 . . . June 15 Source of report 16-17 County or city of residence at time of original report 18 Stage of disease 19 Clinical status 20 Sputum status 21 Reason referred 22-23 Month and year of original report Current Status 24 Interval since last report 25 Stage of disease 26 Clinical status 27 Number of clinic visits 28 Sputum 29 Supervision 30 PHN Closed File 31-32 Date discharged from current file 3 3 Reason discharged 34 Interval between official report and discharge from current file PUNCH CARD CODE Column 1-2 County or city of residence 01 . . . Auburn 02 . . . Baker 03 . . . Clackamas 3-6 Case number Numerical Example: 0001 0002 0003 79 7 . . . July 8 . . . August 9 . . . September 0 . . . October X . . . November Y . . . December 15 Source of official morbidity report 1 . . . Private physician 2 . . . Local health department 3 . . . Clinic 4 . . . Tuberculosis sanatorium 5 . . . Other hospital 6 . . . Mental institution 8 . . . Death certificate 9 . . . Other X . . . Not stated 16-17 County or city of residence at time of original report Same code as for columns 1-2 18 Stage of disease on original report 1 . . . Minimal 2 . . . Moderately advanced 3 . . . Far advanced 4 . . . Advanced, not specified 5 . . . Pulmonary, stage not stated 6 . . . Primary 9 . . . Other forms X . . . Not stated 19 Activity and clinical status 1 . . . Active 2 . . . Probably active 3 . . . Questionably active or activi- ty undetermined 4 . . , Inactive 6 . . . Quiescent 7 . . . Apparently arrested 8 . . . Arrested 9 . . . Apparently cured or healed X . . . Not stated 20 Sputum status at time of original report 1 . . . Positive 2 . . . Negative 9 . . . No expectoration X. . . Not examined 21 Reason referred 1 . . . Symptoms 2 . . . Contact 3 . . . Mass x-ray 4 . . . Selective Service 5 . . . Army or Navy Discharge 6 . . . Veterans Hospital 7 . . . Interstate referral 8 . . . Positive sputum 9 . . . Other X. . . Not stated 22-23 Month and year of original referral 22 Month 23 Year 1 . . . January Punch last digit 2 . . . February of year 3 . . . March 4 . . . April 5 . . . May 6 . . . June 7 . . . July 8 . . . August 9 . . . September 0 . . . October X. . . November Y . . . December 24 Interval since last report 1 . . . Less than 6 months 80 2 . . . Less than 6 months, initial report only 3 ... 6-11 months 4 . . . 6-11 months, initial report only 5 ... 1 year 6 ... 1 year, initial report only 7 ... 2 years and over 8 ... 2 years and over, initial report only 25 Stage of disease, current Same code as for column 18 26 Clinical status, current Same code as for column 19 27 Number of clinic visits during inter- val (This will be available only when all clinic visits are recorded) 0 . . . None 1 . . . One 2 . . . Two (Space) 9 . . . Nine or more X. . . No report 28 Sputum, current 1 . . . Positive 2 . . . Negative X . . . Not stated 29 Supervision 0 . . . None 1 . . . Private physician 2 . . . Local health department 3 . . . Clinic 4 . . . Tuberculosis sanatorium 5 . . . Other hospital 6 . . . Mental institution 9 . . n. Other X. . . Not stated 3 0 PHN Supervision 1 ... Yes 2 ... No X . . . Not stated 31-32 Date discharged from current file Numerical—last two digits of year 3 3 Reason discharged 1 . . . Arrested or apparently cured 2 . ; . Dead 3 . . . Lost 4 . . . Moved out of state 5 . . . Old primary 6 ... Non tuberculous 9 . . . Other X . . . Not stated 34 Interval between first official report and discharge from current file 0 . . . None 1 . . . Under 3 months 2 . . . 3-5 months 3 ... 6-11 months 4 . . . 12-23 months 5 . . . 24-35 months 6 . . . 3-5 years 7 ... 6 years and over 81 GLOSSARY Administratively Active Cases Cases under current medical supervision or in need of medical supervision as defined by State and local policies of case management. Annual Tuberculosis Report A summary report of chest clinic and tubercu- losis public health nursing services to be re- quested annually by the Tuberculosis Control Division, U. S. Public Health Service. Current File A file containing the latest known record for every tuberculosis case or suspect considered "administratively active” by the head of the State Tuberculosis Office. Closed File A file containing cases not administratively ac- tive—i.e., dead, lost, moved out of the State, or not in need of medical supervision as defined by State and local policies of case management. Follow-up A process of discovering, recording, and pe- riodically reviewing control activities to deter- mine present status of suspects and proven cases, as well as to indicate action needed. Initial Case Selection A process of choosing cases to be included at the time of the Central Record System installa- tion. Interchange of Information A method of maintaining current information on tuberculosis cases by circulation of informa- tion among the State health department, local health department and all other agencies or in- dividuals concerned with examination, diagnosis, treatment, or supervision of tuberculosis cases (such as private physicians, sanatoria, tubercu- losis associations, health department clinics and nurses, and public health nursing organiza- tions) . Information Interchange Form A general purpose form used between Central Record Systems and interested parties for the interchange of information to be used when a special purpose form is not indicated. Local Tuberculosis Case Register A system of records for maintaining a current summary of pertinent medical and public health data on those proven and suspected cases of tuberculosis which, according to health depart- ment policy, require some type of supervision . . . used primarily to direct the supervision of such cases. Master Index An alphabetical file which contains a card for every tuberculosis case ever reported and shows where record card is filed. Physician’s Periodic Report A method of follow up (questionnaire form, phone call or visit) to determine current status, 82 preferably at 6-month intervals, of those tuber- culosis patients under care of a private phys- ician. Record Analyst The individual, qualified by education and ex- perience in records and statistics, who is re- sponsible for supervising the maintenance and use of the Central Record System and related records under the supervision of the tuberculosis control director. Semi-Annual Tuberculosis Report A summary report of mass radiography, tuber- culosis morbidity and mortality to be requested semi-annually by the Tuberculosis Control Di- vision, U. S. Public Health Service. State Central Record System A system of records for maintaining a current summary of pertinent medical and public health data on those proven and suspected cases of tuberculosis which, according to health depart- ment policy, require some type of supervision . . . essentially an administrative tool for pro- gram planning, supervision and evaluation. Status of Cases, Current Latest known supervision (in sanatorium or at home), activity of disease, or sputum status of patients. Vertical Visible or Offset Visible File A file with a series of overlapping, vertically- supported record cards allowing visibility of the right vertical margin. Worksheet An intermediate temporary record of each case used to simplify the mechanics of clearing and to aid in installing the record system. 83 LOCAL CASE REGISTER Same card Space allowed for more details of contact history and home nur- sing visits. Pocket visible card optional —Sufficient to include all records for cases in county. Public Health Nurse and one clerk to maintain record system with case load up to 1,000. Primary use is to; Manage individual cases. CHART OF STATE CENTRAL CASE RECORD SYSTEM AND LOCAL CASE REGISTER Same Same Same * « S o ?*s s*» •S s -o s •3 «s ~ « in +j g ■H >1 -H c 4) U) U O 7 P- X 3 0) c 2 n u a, c m Primary uses to: a. assist in establishing local case registers. b. define and describe the tuberculosis problem in the state. c. plan a tuberculosis control program. d. administer the program. c . . . , , f Sufficient to include all records for cases in state. Case records supervisor and clerks. (Number of clerks determined by size of problem.) a. clinics b. Public Health Nursing Divisions c. hospitals and sanatoria d. laboratories e. private physicans f. mass x-ray services g. Army and Navy h. Veterans’ Hospitals i. welfare agencies j. voluntary health agencies k. vital statistics bureaus l. other State and local health depart- ments STATE CENTRAL CASE RECORD SYSTEM CZ^, Vertical visible card 3. CASE RECORD CARD 7. FORMS FOR ROUTING INFORM - AT ION 4. VISIBLE FILING EQUIPMENT 6, SOURCES OF INFORMATION 1. DEFINITION 5. PERSONNEL 2. USES P.H. NURSE PRIVATE PHYSICIAN MASS X-RAY LOCAL REGISTER Select according to policy which defines “administratively active" cases LABORATORY a. Same b. Same c. Route information to state health department. d. Signal for Individual case supervision. VITAL STATISTICS SANATORIUM CLINICS Same Same Cases reported within past five years. Select according to state policy which defines “administratively active" cases. STATE SANATORIUM Investigate readily available sources. a. Abstract information from reports. b. Enter material on record cards. c. Route information to proper health department. d. Signal for 1. Maintenance of state program. 2. Administration of program. VITAL STATISTICS I STATE LAB. STATE CENTRAL RECORD SYSTEM OUTSTATE REPORTS STATE CLINICS MASS X-RAY 8. INITIAL CASES CLEARING FOR INITIAL CASES 9. INTERCHANGE OF INFORMATION 10. MAINTENANCE SELECTION OF INITIAL CASES 85 INDEX Address, change of, 49, 67 Administratively active, policy defined, 37, 59, 82 Annual report, 77, 82, see figure 17, page 78 Card, Local Register: arrangement in Current and Closed file, 59, 67; description of, 58; entries, 59; instruction for filling in, 59; signals, 65; see figure 15, page 61, and figure 15A, page 64. Card punch schedule, 77 Card, State Central Case Record System: arrange- ment in Current file, in Closed file, in Master Index, 38, 49; description of, 18, 21; entries, 39; instructions for filling in, 39; signals, 45; see figure 4, page 19 and figure 4A, page 20. Case: policy regarding current and closed, 37; selec- tion of initial, 29, 82; status of, 37 Case records, clearing of, 31 Change of address, 49, 67 Clearing: results of, 33; steps in, 31 Clinic records, 4, 32, 35, 77 Clinic reports, 25, 51, 68, see figure 7, page 25 Closed file, 38, 59, 82 Codes, punch card, 79 Contacts, 63 Cost: of installation, 14; maintenance, 14 Current file, 38, 59, 82 Daily Hospital Admission Summary, see figure 8, page 26 Daily Hospital Discharge Summary, see figure 8A, page 26 Death report, 27, 31, 34 Disposition of cases, 30 Entries: general directions, 39, 59; Local Register, 59; State Central Case Record System, 39 Equipment, 16, 58 Files: Current, 38, 59, 82; Closed, 38, 59, 82; Mas- ter Index 38, 82, Vertical Visible, 16 Follow-up, 5, 10, 45, 65, 82 Forms: Annual Tuberculosis Report, see figure 17, page 78; Clinic Report, see figure 7, page 25; Daily Hospital Admission Summary, see figure 8, page 26; Daily Hospital Discharge Summary, see figure 8A, page 26; Hospital Discharge Report, see figure 9, page 26; Information Interchange, see figure 5, page 24; Local Register Card, see figure 15, page 61 and figure 15A, page 64; Master Index Card, see figures 12 and 12A, page 38; Morbidity Report, see figure 6, page 25; Per- cent of Population served by local full time health officers and ratio of public health nurses to population, all States, 1942, see figure 1, page 9; Query, see figure 10, page 27 and figure 11, page 33; Semi-Annual Tuberculosis Report, see figure 16, page 76; State Central Case Record System Card, see figure 4, page 19, figure 4A, page 20, figure 13, page 44 and figure 13A, page 46; Statistical Tables, see pages 72 to 75. 86 Glossary of terms, page 82 Hospital Admission and Discharge Reports, 26, see figures 8, 8A and 9, page 26 Information interchange, 23, 82, see figure 5, page 24 Installation: of Local Register, 55; of State Central Record System, 36 Interchange of information, 24, 82 Interstate reciprocal reports, 28 Kansas: clerical personnel, 37; Record System Card, 20 Laboratory reports, 27, 35 Local health department records, 31, 34 Local Register: definition, 82; installation, 55; main- tenance, 57; card, see figure 14, page 58, figure 15, page 61 and figure 15A, page 64; chart, page 84 Machine tabulation, 71 Mass X-ray reports, 28 Master Index, 38, 82; card, see figures 12 and 12A, page 38 Morbidity reports, 25, see figure 6, page 25 Nurses: ratio of public health to population, see fig- ure 1, page 9 Nursing: information interchange, 24; public health nursing records, 26, 34, 52, 63, 68 Oregon clerical personnel, 37 Percent of population served by local full time health officers and ratio of public health nurses to popu- lation, all States, 1942, see figure 1, page 9 Personnel: Clerical, 37, 56; Local Register, 57; State Central Case Record System, 36; Record Analyst, 36; supervisory, 36 Physicians, reports from private, 27, 32, 33, 35, 82, see figure 10, page 27 and figure 11, page 33 Policy: definition of, 37; regarding current and closed cases, 37 Population, percent of, served by local full time health officers, 9 Public Health Nurse, see Nursing Punch Card: Code, 79; Schedule, 77 Query form, see figure 10, page 27, and figure 11, page 33 Record Analyst, 36, 83 Record System, see State Central Case Record System Register, see Local Register Reports: Annual, 77, see figure 17, page 78; death 27, 31; Interstate reciprocal 28; laboratory 27, local health department, 31; mass X-ray, 28; morbidity, 25, see figure 6, page 25; nursing, 26; sanatorium, 31; Selective Service, 28; Semi-an- nual, 77, 82; see figure 16, page 76; sputum, 53, 69 87 Routing information, 22, 50 Sanatorium, see Forms and Reports Selective Service Reports, see Reports Semi-annual Tuberculosis Report. 77, 83, see figure 16, page 76 Signaling: general directions for, 45, 65; specific plan for, 47, 66, see figure 13, page 44 and figure 13A page 46 Sputum reports, see reports State Central Case Record System: card for, 17, 39, see figure 4, page 19, figure 4A, page 20, figure 13, page 44, figure 13A, page 46; equipment re- quired for, 16, see figures 2 and 3, page 17; his- tory of, 4; installation of, 13; maintenance of, 36; need for, 7; policy for, 37; reports to, 25, 51; selection of initial cases for, 29; signaling, 45; statistical data secured from, 70; statistical tables, see pages 72 to 75; chart, pages 84 and 85 Statistics, 70 Vertical Visible file, 17, 83; see figures 2 and 3, page 17; in use, see page 58 Worksheet, 31, 8 88 PAGE 1. What is a State Central Record System for Tuberculosis? 4 2, Why is a State Central Record System needed? 7 3. How targe a task is the installation of a State Central Record System? 13 4. What equipment is needed? 16 TABU OF CONTENTS 5. How can information he interchanged? 22 6. How are initial cases selected? 21 7. Haw is a State Central Record System installed and maintained? 30 8. How is a local Register installed? 55 0. How is a local Register maintained? S7 10. What statistical data will the Central Record System provide? 70