OO17H# EO EA ISSUES AND CONCERNS - I* Marc J. Musser, M.D. Program Coordinator North Carolina Regional Medical Program *Presented at the Conference of Coordinators of Regional Medical Programs September 30 - October 1, 1968 Marriott Twin Bridges Motel Arlington, Virginia This copy reproduced from original manuscript for immediate distribution to Conference participants. Final copy of all papers will be published and made available as soon as possible. Each of the serles of meetings we have had here In Washing- ton since January, 1967 has come to be a landmark In the evolu-~- tion of Reglonal Medical Programs. Each has concentrated upon the compelling circumstances at 6 particular point tn time-~---- “from the InIttal stage setting efforts to amplify the altruistic goals which the program was capable of accomplishing through the perlods of: Conceptual Ization of the Interrelationship of the planning and operational phases, The much needed exchange between regions of project design and objectives, And now the constructive sharing between the Division and the Coordinators of the Issues and concerns that have emerged as we have been more and more Initimately confronted with the realities of the situation and have had to concentrate more of our time, energy, and Ingenulty upon the mechanics of making the right things happen. From the standpolnt of the record, There can be no positive evidence of the Increasing Involvement of the Regions tn health atfalrs and the growlng substance of operational activities----- natlonwide, than Is provided by These landmarks. Central to the success of thls accomplishment has been the splendid cooperative arrangement between the Division and tha Reglons. This has been a forthright, mutually supportive, and declsive relationship - a "Tell it as ‘it Is" affair that has kopt out goals In sharp focus and has expedited our progress toward thelr accomp|$éhment. it Is Indeed remarkable that In such a short pertod of time we should have reached this point In the promotion and realization of a concept that has been espoused for several decades but seemingly could not be Incorporated In the complex and diffuse health system which has grown up more or less {Ike Topsy In our soclety. Not only did Publ te Law 89-239 come along at Just the right time, but also bacause of Its nature It was able to attract the support of people with the degree of perception and dedication necessary to assure its implementation. The existence of these circumstances has been appreciated Increasingly as we have learned that It ts much easler to talk and legislate about cooperative enterprise for coordinated planning and the most effective and economic utilization of resources than It Is to accomplish all The details necessary to assure Heke reality and durability. As the Issues and concerns Increase in number and complexity, the need for the right answers becomes more and more acute. | Several months ago the Division sent a questionalre to each coordinator asking him to Indicate the Issues and concerns which Ia his region seemed to be the most compel | ing. These have been consol I- dated and | have been asked fo summarize them. ®y and large, the Issues and concerns reported can be divided Into three categories: those relating to events and activities on the Washington stage, those having to do with Interreglonal relationships, and those relating to Intraregional activities. Pervading each of these categories, however, Is the Interrelationship between the regions and the Division. THE REGIONS AND THE FEDERAL GOVERNMENT The reorganization of the Public Health Service and the real ign- mont of health programs within HEW has, of course, been matter of concern to everyone. Probably there Is no group of health adminis- trators In the United States more keenly aware of the need for better communications and coordination between these health programs----- particularly as they operate In the fleld---than the Regional MedIl- cal Program Coordinators. No other group relates as Initimately to The broad array of health professionals and health Interests. Hopefully, the organization of the Health Services and Mental Health Administration will be able to Interrelate Regional Medical Programs, Comprehensive Health Planning, Chronic Disease Control, Vocation Rehabilitation, Health Services Research, and Mental Health so that thelr mutually supportive and complementary features, can be more effectively utilized in the Interests of Pubilc health. A great deal of this has to be worked out at the State or regional level; add some states have made considerable progress in this direction. However, since It appears that everyone takes his cue from what goes on In Washington It would be Immensely helpful If ® prototype cooperative arrangement between these programs within the Administration were more clearly visible so that field representatives would have a stronger motivation to share problems and expertences and work together. There are other federal health Interests outside HEW that well might be brought Into this cooperative arrangement. Reglonal MedI- cal Program efforts to contribute to the Improvement of the health care of the poor have establ Ished contact with the programs of HUD, O£0, Labor, Commerce, Just to mention a few. Efforts to generate education and training programs have created a nead to know more InitImately the sources and nature of support outside RMP. The Importance of a mechanism for better coordination of all of these programs becomes more clear when If Is recognized that all of them tend to be directed at and Involve the same groups of people------ be they health educators, commun! ty or. regional health planners, practicing physicians, or allfled health professionals. At feast In our region more and more of these groups sre turning to the RMP for advice as to where to go and what to do, and we are finding this an Increasingly difficult chal lenge. The Increased experlence with Reglonal Medical Program actl- vitles and their ramifications has led to several concerns relating to the executive and legislative branches of the government. One of these has to do with the stabllity and longevity of the Program and the growing need for some assurance of both. The need springs trom the pragmatic realization that the full accompl Ishment of objectives Is a long torm affair, that our hard won cooperative arrangements and the benet its therefrom can only be secured at this early stage of the game by our Integrity and ability to produce, and that the recognition, confidence, and support we have attained at a regional level can disintegrate In the face of a threatened short Itfe, or Increasing evidence of modification of concepts and -administrative policltes that would deprive reglons of their preroga~ tive for determining the nature and modus operand! of their programs. Tha greatest asset to acceptance at a local level has been The assurance of local determination, local decision making, and local administration. There are many with whom the coordinators and their staff deal every day who still don't beileve this Is really true and are continually on the alert for any Indication of bureaucratic Intervention. This ts espectally true of practicing physicians. Their full commitment to the Regional Medical Program ts of critica! Importance, now and for the future. Fortunately, we have been able to obtain a large measure of this because of the sound principles upon which the Program Is based. Interestingly enough the Intensity of committ- ment to the Program seems to run paraltel to the intensity of feeling about the princtpabed Recently a key physician In our Program summarized the state of affairs very succinctly, "Regional Medical Program has been acceptod In Its original Intent, and as such Is good. WIth conceptual changes and If allowed to be infiltrated it will dle aborning. Be assured | will turn 180° for what little that Is worth." Perhaps pertinent to this consideration Is the Issue raised -Se by one of the coordinators ~ local planning vs. nationa) planning. Thus far, the bulk of planning at the Diviston level has been In support of the neads of the Regions, and this has been good. Con- cern has been expressed, however, that over-enthustasm or Impatience might tead to centrally concelved projects which might appear to compete with loca! Inttlative. Untortunately, the earmarking of certain funds by the Congress last year wos Interpreted by some as an example of this, and thereby a folr number of fles wore strained. Indeed there Is 4 need for frequent oxchanges and Joint planning between the regions and the Olvislon tn regards to issues problems, mechanisms, and needs. We also need to share know! edge of what Is working and what Isn't. As we become more tnvoived tn registries and reporting systems the value of uniformity of basic data becomeSobvious. The leadership which the American College of Surgeons is takIng In working out with coordinators, the NCT and the Division staff a concept of cancer registries which might be adopted nation-wide, Is a fine example of how some of these things can be accomplished In an appropriately cooperative Manners Finally, It Is Important that neither the legislative nor the administrative branches of our government lose sight of the fact that for tho first time In the history of our country, the: health professionals and the health Interests areAetnd together ¢o make our health care system more cohesive and more effective, not by legislation or with large Stee ot money, but by pursua~ sion, good Judgement, common sense, and a challenge to local Initla- tive INTERREGIONAL RELATIONSHIPS The anticipated need Is now materlal izing to refine concepts and procedures for interregional zctivities and relationships. This Is reflected tn an Increasing enthusiasm for Interregional meetings. Some of these are on-golng; more are being planned, and It Is itkely that many of the questions and Issues will be resolved between the coordinators. Some will require decisions at a Division level. There fs a growling need for exchange of more detalied planning and operational Information between regions, especially adjacent: regions. This creates problems of supply and demand. No Ideal solution exists at the moment. There Is a falr movement of annual reports, operational grant applications, and project proposals, but the very volume of most of these negates thelr practical utility. A while back, Ed. Friedlander concelved the Idea of a brief, but . complete, profile of each region's program - - something that could be perlodically updated to assure currency. A sdtisfactory format for this hasn't been worked out thus far, but If still seems a good Idea. Also, it has occurred to me that broader use could be made of the splendid project summaries Martha Phillips and her staff prepare.. These could be Incorporated In the profile of a region; also they could be regrouped on a disease category or subject basis and made avallable whenever there {s a need to know what Is going on nationally. 7 For exampia, many regions have concerned themselves with the care of the acute coronary patient. Perhaps there are twenty-five to thirty projects dealing with one aspect or another of this problem. It would be most helpful to a planning group to be able to review the essential features of these projects, and also, when such Informa- thon becomes avaliable, to have some assessment of a project's effec- tiveness. Presently there Is no way to get this Information untess one corresponds with every region. And yet It seams to me the avall- ability of this information for bibillographic purposes would contri~ bute materially to Improved project design. The Sclence Information Exchange has provided a service of this type for some years. Yesterday 8 group of directors of hypertension projects met to consider the feaslbliity of a uniform systom of data collection and reporting. They also had an opportunity to discuss thelr plans and share experiences. Perhaps this witl become an Increasingly attrac- tive mechanism for interregional communications and coordInat ton of activities. The problem of Information exchange will be compounded as regional programs grow and become more complex. If Indeed we are preaching the availability of the "latest advances" we need to practice It within the family. The destrabiiity has been expressed of Interreglonal or, when appropriate, national I tbraries for support materlals, such as audiovisual alds, etc. and also of a multi-reglonal speakers bureau. In this latter regard It would be helpful If such o bureau were coordinated with other organizations that provide speakers such as the American Cancer Soclety and American Heart - agsoclation. Efforts at reglonal ization have generated planning activi- ties which cross the borders of adjacent Regional Medical Programs. Mostly these reflect the identification of hospital service areas or the ¢irming up of long standing functional relationships between communities. There seems to be no reason why these porder adjust- ments cannot be accomplished between the regions Involved. Some dit¢icutties might arise when funds from other than the RMP, such as county or state funds, sre required. Our experience has Indicated that county commissions are extremely careful with thelr money. Also, there may be some problems with reports and statistics, particularly those comptied on a state basis. Concern ts growlng over the coordination between RMPs, espec- dally those serving the same geographical area, Interregional programming, and the mechanisms for handling Interregional projects. Much of this depends upon core staff Interrelationsbips. The forth= coming guidelines for the Implementation o of Section 910 of the new RMP law (HR 15758) may clarity this to some extent. However, a number of potential problems can be foreseen. One coordinator has -found that the attitudes of public officials or official agencies are not always conduc ive to Interreglonal planning, particularly between states. Also, If Interraglonal projects must compete with- - tn a region with the other projects which the region has generated {ndapendantly, and particularly If tight money causes advisory councl!s to have more and more rigid criteria for determination wf project priorities; they might fare less well than they deserve. Thus, It may be necossary to establish a separate funding mechanism for Interreglonal projects. The growing need tor Interregional activities necessitates 6 serlous review of core staff organization and tunctlons. Produc~ tive Interregional relationships will relate directly to staff Input -- and few If any of us have made provisions for this In our present staff organizations. Other unanticipated demands upon core staffs have accentiated the problem. Mony of these demands require the avatiabliity of skills and knowledge which are not readity avali- able. One possible machanism for the resolution of this situation Is the avatlability of consultant services between reglons and the sharing of staff members with spectal skifis. We have had an Interesting experience In this regard. A year ago we ‘began to make consultative services avaliable to community hospitats In the areas of design, equipping, and operation of Coronary Care Units. This was done In collaboration with the med I- cal schools, the North Carol ina Medical Care Commission (HIE i-Burton) and the Duke Endowment, whlch long has acted In an advisory capacity to hospitals, As this service became more popular, It emerged that one of the major needs was for expert architectural and engineering consultation. It turns out thet there are no available guidel Ines for the proper design of: these units and for the elimination of the various hazards which can be of catastrophic consequence. The part- time architect-engineer whom we retained, In conjunction with The Medical Care Commission, and who now has acquired a considerable smount of expertise, has been able to properly advise hospital authorities, and In so doing he has saved them well In excess of $100,000.00. So Important has thls service become that we are In the process of employing the architect tull time providing him with further opportunities to expand -his knowledge and expertise, and among other dutles, to have him prepare the guide {Ines and stan- one which are necossoryy, 4 f | An expanded role also Is forseen for the Ilason officers of the Division since they can be Immensely helpful In the resolu- tion of: many of the problems relating to Interregional planning: and operations. | (MTRAREGIWWL ACTIN TIES Probably the major concern within regions ts the accomp!ish- ment of an optimal degree of cohesiveness among participants In program planning and operations. More and more this has become a core staff responsibil Ity, and yet a willingness to cooperate on the part of participants fs essential. A varlety of factors contribute to this problem. One Is that the participants have ‘not had much expertence working together, and at least at the onset have beer Inclined to fall back upon thelr more firmly estab! shed patterns of operation when they contemplate the nature of thelr Regional Medical Program Involvement. Thus the medical schools, not accustomed to service responsibility at a community level, have tended to preter. To conduct educational and demonstration activities within their walls and to maintaln Independent planning staffs. This attitude prevails more strongly at a departmental level than In the Dean's Office. Community hospital boards, administrators, and staffs have found it difti- cult to think in terms of regional services, even though they have depended for years upon. reterrals from within thelr service areas. They also are intensively preoccupled with their own needs and problems. State and County medical societies, curlously, seem to have been exciuded from a large number of organized health planning efforts In the past and consequently find It difficult to suddenly be In the malnstream. The universities, community colleges, tech- nical Institutes, State Boards of Higher Educatlon, or Divisions of community colleges, though Involved In health education have not | coordinated thelr efforts and thus find It difficult to look at the total array of health nanporenl thin a region. State health agen- cles, particularly Boards of Health, first were caught In the con- fuslon of a change In their federal funding from categorical to block grants, and then tn trying to decide how they might relate to both Regional Medical Programs and Comprehensive Health Planning. Slowly but surely, however, these and other groups are be- coming more comfortable In this new situation and are beginning to work more effectively together. However, expertence Is demons- trating that meaningful participation per se requires a sustained investmont of timo and effort by particIpants which they are not organized or statfed to provide. Thus there emerges & certain ’ "cosi of togetherness" which hasn't yet been specifically Identifled tn dollars and cents but which the realities of the situation require be recognized. Cructal to the productivity of these new tles Is the avall- abliity of & competent and adequate core staff. There must be some mechanism to bring plans or concepts Into reality, to manage the countless number of administrative detalls necessary to assure smooth operation, continulty and evaluation, and to Interprete these properly to the Advisory Councll. More and more, the position of the Reglonal Medical Program becomes thet oi a way station between the medical schools and medical centers on the one hand and the system of delivery of health service on the other, Interposed for the purpose of cata- lyzing stronger and more meaningful tles, of trying to determine how sclentifie knowledge and resources can be used more effectively tu meet patient care needs. Concern with patient care needs rapidly leads to an Identification and understanding of those Individuals, organizations, and agencles which in one way or anovher are Involved in ministering to them. Concern with the medical schools, medical centers, and other academic Institutions allows for e sharper Iden- +iftlcation of the resources avaliable and those that must be developed . Only with these two bodies of Information can effective and coordinated operational activities be generated. it Is not beyond the realm of possibit ity that thls unique role of the core staff will become one of the major Reglonal Medical Program contributions to the Improvement of our health care system. «| 3~ - Much of all this points up the Increasing complexity of core statt functions. As these ere more clearly Identified, their documentation would be particularly helpful In better ecqualat ing advisory councl!s, planning groups, participants, and project directors with the mechanics of Regional Hedical Program operations. Money, of course, Is and always will be an issue. One concern hos to do with the projected fiscal potential of the Reglonal Medical Programs. More specifically, this could be expressed by asking what can we expect to be able to support three, five, and ten years from now. - Clearly, the longer renge potential will depend upon what the program produces--~~how woll It attalns the objectives of Public Law 89-239--with appropriate concern for economics, organization and administration. The shorter range concerns are more pressing, and yet they have relevance to what might happen In the more distant future. Each Region, In order to mount a visible operational program, has begun caut lously by undertaking {Imtted feasibility studies or pilot projects. In these early stages, visibtiity, solidification of cooperative arrangements, and a beginning Impact upon the Improve- ment of patient care have taken precedence over the amount of money avaliable. Very soon though, the point Is roached where tosted projects should be expended ,and an Increasing number of now project proposals are submitted, roflecting to a large extent the success of efforts to stimélate pert lclpation and planning. It becomes Important et this stage for those responsible for decision making to know how close to the belt they must operate, how restrictod a priority range they must adopt to stand a reasonable chance of funding. With limited avallabliity of funds, If becomes the tendency to support the winners ------ to put one's money on the favorite. However, Public Law 89-239 encourages Innovation --- and Innovation 1s the antested, unproved -~ very often the long shot. Restricted funding at too early a stage Is apt to discourage Innovation and thereby serlously | imit the programs potential. Certainly there never will or should be un~ jimited funds, but It must be hoped that sufficient money will be available to enable regions to adequately explore and evaluate new and Innovative approaches and to determine how those that are success- ful can be Incorporated into the health cere system. Eventually, It will be possible to free up funds by terminating unsuccessful projects and by devising measures by which good projects can be self supporting. However, as exper lence Increases, project | cesign and relevance to objectives should improve. This could necessitate some very hard choices by Advisory Counciis, should Limited avallablilty of funds force a choice between continued - support of a good project or recommended support of a new one that looks better. Some recourse might be provided by the avalilablilty of other than Regtonal Medical Program funds. To a large extent, this might depend upon how well federal health programs are coordinated from now one On a more simple level, e need has emerged for the clarifica- tion of a mechanism for a large number of small, short term fiscal -|5- transactions. The orfgtinal gulde-tines Indicated that the Invol va- ment of community hospitals should be accomp! Ished by a letter of affiliation which would make the hospital a participant. Also, they provided for participant faculty and staff Involvement on a part “time salary basis, and not as consultants. Becoming a participant requires conformance with certain Bureau of the Budget regulations, It also makes indirect costs available which In turn eliminates such Itoms as rental charges. This Is fIne for the long term, permanent type of participation. Thus far, however, most of the transactions with community hospitals have been short term affairs Involving gmail sums of money -- for which the letter of atflilation ts not practical. Fortunately, the new guide-lines provide a mechanism to purchase necessary services in much more acceptable manner. In a similar veln, there ere some faculty members with long term comnittments to the Program who can be employed part time. However, the need Is Increasing tor/reimbursenent nvcnanism for occastonal or limited services. Concern has also been expressed over the moct practical and realistic manner to deal with equipment that Is provided to coopera~ - ting hospitals and other Inst Itutlons. Existing government reguls- tions are directed to a large extent to the established situations where equ I pment remains under the dlroct supervision of tho grantee. Such will seldom be the case with Reglonal Medical Program oqul pment for It must be placed In the fled where it will do the most good. -|6- ne