2005 C-272 de to NIH S Information jrvices with elected Public Health Service Activities National Institutes of Health National Library of Medicine 2003 c-272 Guide to NIH IV/AIDS Information Services______ with Selected Public Health Service Activities National Institutes of Health National Library of Medicine 2003 PROPERTY OF THE NATIONAL LIBRARY OF MEDICINE Guide to NIH HIV/AIDS Information Services with Selected Public Health Service Activities U.S. Department of Health and Human Services Public Health Service National Institutes of Health NIH Publication No. 03-3731 September 2003 National Library of Medicine Cataloging in Publication Guide to NIH HIV/AIDS information services with selected Public Health Service activities. —Bethesda, MD: U.S. Department of Health and Human Services, National Institutes of Health, 2003 (NIH publication no. 03-3731) September 2003 Prepared by the National Library of Medicine. Includes bibliographical references and index. 1. National Institutes of Health (U.S.). 2. United States. Public Health Service. 3. HIV Infections—Resource Guides—United States. 4. HIV Infections—Directory—United States. 5. Acquired Immunodeficiency Syndrome—Resource Guides—United States. 6. Acquired Immunodeficiency Syndrome—Directory—United States. 7. Information Services—Resource Guides—United States. 8. Information Services- Directory—United States. 9. Research—Resource Guides—United States. 10. Research—Directory—United States. I. National Library of Medicine (U.S.). 02NLM:WC 39 G9465 2003 PREFACE In this Guide, the National Library of Medicine draws together in a single. easy-to-use source data about the many HIV/AIDS information-related activi- ties of NIH along with selected PHS offerings. We hope that the Guide will be a useful tool for health professionals, caregivers, the affected community, and others to learn about AIDS information resources available to them. The Guide was first prepared for the NIH HIV/AIDS Information Services Conference, cosponsored by the National Library of Medicine and the NIH Office of AIDS Research, in June 1993. Those attending the conference, most from outside the Federal Government, were enthusiastic about the Guide and recommended that the Library keep it current and make it widely available. This revised edition has been prepared for wide distribution. We plan to keep it up to date and republish as necessary. Additional copies may be requested by using the form on the last page. Donald A.B. Lindberg, M.D. Director, National Library of Medicine uide to NIH HIV/AIDS Information Services The National Institutes of Health (NIH) supports research into the nature of HIV infection, the genetic and biological properties of the vims, immunopatho- genesis, the natural history of HIV, consequences of HIV infection on the body, risk factors, and various modes of transmission. NIH supports a major effort to develop vaccines and to develop and test new agents for the treatment of AIDS and HIV infection, including opportunistic infections and HIV-associated malignancies. NIH sponsors many information services to assist professionals, patients, and the public in the quest for knowledge about HIV/AIDS. This brochure describes many of these services, some of which are components of other HIV/AIDS- related projects, as well as selected information services sponsored by other agencies of the Public Health Service. The grid below is used to identify the categories of HIV/AIDS information services of each institute, office, or center. Research Clinical Trials Treatment Patient Education Professional Training Prevention General Information The symbols below are used to identify the type or format of each HIV/AIDS information service provided. Q Telephone Service Online Database, -1 Electronic Bulletin Board, or Internet Service □ Publication Exhibit, Educational Campaign, Training Program/Materials, or Conference Fogarty International Center (FIC) http://www.nih.gov/fic C|jnjCa| Patient Professional General Research Trials Treatment Education Training Prevention Information / / / / / AIDS International Training and Research Program (AITRP): This program supports innovative, collaborative training programs that contribute to the long-term goal of building sustainable research capacity in HIV/AIDS and HIV-related conditions at institutions in developing countries. These research-training programs strengthen scientific knowledge and skills for foreign health scientists, clinicians, and allied health workers from developing countries and emerging democracies to enhance prevention of and treatment and care for HIV/AIDS and HIV-related conditions in their country. Web site: http://www.nih.gov/fic/programs/aitrp/aitrp.html Program Announcement 03-018 at http://grantsl.nih.gov/grants/ guide/pa-files/PA-03-018.html Contact: Jeanne McDermott, CNM, MPH, PhD, Program Director Division of International Training and Research Fogarty International Center National Institutes of Health, Building 31, Room B2C39 31 Center Drive, MSC 2220, Bethesda, MD 20892-2220 Telephone: (301) 496-1492, Fax: (301) 402-0779 E-mail: mcdermoj@mail.nih.gov Contact: Mildred E. Hatton, Program Specialist Division of International Training and Research Fogarty International Center National Institutes of Health, Building 31, Room B2C39 31 Center Drive, MSC 2220, Bethesda, MD 20892-2220 Telephone: (301) 496-2516, Fax: (301) 402-2056 E-mail: hattonm@mail.nih.gov m 2 International Clinical, Operational, and Health Services Research Training Award for AIDS and Tuberculosis (ICOHRTA-AIDS/TB) Program: The International Clinical, Operational, and Health Services Research Training Award for AIDS and Tuberculosis (ICOHRTA- AIDS/TB) Program provides extended support for training to build capacity for integrated clinical, operational, and health services research at sites in developing countries where AIDS, TB, or both are significant problems. This program is an integral and critical compo- nent of a comprehensive global strategy of the NIH and Department of Health and Human Services (DHHS) to address the needs of the millions suffering from HIV/AIDS, TB, and related conditions in resource-limited nations. It will extend and intensify efforts to provide clinically appropriate and sustainable care to these individuals in a manner that supports continuing and expanding prevention activities. The first phase of the ICOHRTA-AIDS/TB Program, begun in fiscal year 2002 and expected to recompete in 2004 and 2005, consists of 1- year planning grants to foreign institutions to support the organization. planning, preparation, and assembly of an application for the second phase of the ICHORTA-AIDS/TB Program. The second phase will begin in fiscal year 2004, and will provide comprehensive sustained support to both the foreign institution and its linked U.S. partner (or preapproved non-U.S. institution) through 5-year cooperative agree- ments (potentially renewable). Training for integrated clinical, opera- tional, and health services research will take place at the U.S. or foreign sites and mentored research will be carried out mainly at the foreign sites. Web site for Program Announcement in NIH Guide: http://grants.nih.gov/grants/guide/pa-files/PA-02-022.html Program Announcement number: PA-03-033 Request for Applications number: RFA 03-003 Contact: Jeanne McDermott, CNM, MPH, PhD, Program Director Division of International Training and Research Fogarty International Center National Institutes of Health, Building 31, Room B2C39 31 Center Drive, MSC 2220, Bethesda, MD 20892-2220 Telephone: (301) 496-1492. Fax: (301) 402-0779 E-mail: mcdermoj@mail.nih.gov Contact: Mildred E. Hatton, Program Specialist Division of International Training and Research Fogarty International Center National Institutes of Health, Building 31, Room B2C39 31 Center Drive, MSC 2220, Bethesda, MD 20892-2220 Telephone: (301) 496-2516, Fax: (301) 402-2056 E-mail: hattonm@mail.nih.gov National Cancer Institute (NCI) http://www.cancer.gov Clinical Patient Professional General Research Trials Treatment Education Training Prevention Information / / / / H Cancer Information Service: NCI's Cancer Information Service (CIS) is a national resource for information and education about can- cer, including AIDS-related cancers. CIS provides information about cancer to patients, their families, the public, and health professionals by talking one-on-one through its Information Service. People inter- ested in talking with an information specialist may call the toll-free phone number at 1-800^1-CANCER (1-800^122-6237), Monday through Friday between 9 a.m. and 4:30 p.m. local time. Bilingual information specialists are also available to take calls in Spanish. For deaf and hard-of-hearing callers, CIS has a toll-free TTY number, 1-800-332-8615. CIS also provides live, online assistance to users of NCI Web sites through LiveHelp, an instant messaging service that is available Monday through Friday from 9 a.m. to 10 p.m. eastern time. Through LiveHelp, information specialists provide answers to questions about cancer and help in navigating NCI Web sites. 4 Physician's Data Query (PDQ): PDQ is the National Cancer Institute's comprehensive cancer information database. It contains peer-reviewed summaries on cancer treatment, screening, prevention, genetics, supportive care, and complementary and alternative medi- cine; a registry of approximately 1,800 open and 12,000 closed cancer clinical trials from around the world; and a directory of more than 300 individuals who provide services related to cancer genetics (cancer risk assessment, genetic counseling, genetic susceptibility testing, and others). PDQ contains several information summaries on AIDS-related topics, such as AIDS-Related Lymphoma, Kaposi's Sarcoma, and Primary CNS Lymphoma. PDQ's information summaries are peer reviewed and updated monthly by six editorial boards that comprise specialists in adult treatment, pediatric treatment, complementary and alternative medicine, support- ive care, screening and prevention, and genetics. The boards review current literature from more than 70 biomedical journals, evaluate relevance, and synthesize clear summaries. Many of the summaries are also available in patient-oriented versions and in Spanish. For further information, visit the PDQ Web site (http://cancer.gov/ cancerinfo/pdq). Cancer.gov: NCI's Cancer.gov Web site provides online access to many of NCI's cancer information resources, statistical data sources, research funding announcements, research program information, and information about the NCI. The site contains information from PDQ and the NCI's collection of fact sheets, which have information about treatment, prevention, screening, and supportive care. Fact sheets that cover AIDS-related topics include Angiogenesis Inhibitors in the Treatment of Cancer; Biological Therapies: Using the Immune System To Treat Cancer; and Questions and Answers About Gene Therapy. For further information, visit the site (http://cancer.gov). 5 National Center for Complementary and Alternative Medicine (NCCAM) http://nccam.nih.gov Research Clinical Trials Treatment Patient Education Professional Training Prevention General Information / / / NCCAM explores complementary and alternative medicine (CAM) healing practices in the context of rigorous science, trains CAM researchers, and disseminates authoritative information to the public and professionals. m o □ NCCAM Clearinghouse: The NCCAM Clearinghouse provides information on complementary and alternative health care practices with regard to specific diseases and conditions, such as HIV/AIDS. It does so through publications, referrals to Federal sources of informa- tion, and database searches of peer-reviewed medical and scientific literature. Service in Spanish is available. NCCAM does not provide medical advice or referrals to practitioners. For more information, contact the NCCAM Clearinghouse, P.O. Box 7923, Gaithersburg, MD 20898; call toll free at 1-888-644-6226; 1-866^164-3615 (TTY); 1-866^164-3616 (fax). Or send an e-mail to info@nccam. nih.gov or visit the NCCAM Web site (http://nccam.nih.gov/health/ clearinghouse). For fax-on-demand service, call 1-888-644-6226. CAM Subfile of CHID: NCCAM maintains the Complementary and Alternative Medicine (CAM) subfile of the Combined Health Information Database (CHID). CHID leads health professionals, patients, and the public to patient education materials that contain information about various health topics, including CAM and HIV/AIDS. The CAM subfile includes references to fact sheets, journal articles, newsletters and newsletter articles, directories, brochures and pamphlets, bibliographies, monographs, and reports. For more information, visit the CHID Web site (http://chid.nih.gov). 11 1 CAM on PubMed®: Produced by NCCAM and NLM, this subset of ^H PubMed provides free Web-based access to CAM sources of informa- tion. PubMed provides an easy way to access more than 11 million citations of medical journal articles on a wide variety of health topics, 6 including CAM and HIV/AIDS. For more information, visit the CAM on the PubMed Web page (http://www.nlm.nih.gov/nccam/ camonpubmed.html). National Center for Research Resources (NCRR) http://www.ncrr.nih.gov Clinical Patient Professional General Research Trials Treatment Education Training Prevention Information / / Annual AIDS Research Symposium: The Annual Symposium on Nonhuman Primate Models of AIDS is supported by NCRR and host- ed each year by one of the eight NCRR-supported National Primate Research Centers. Scientists from the United States and abroad pre- sent the latest findings in AIDS research in the nonhuman primate model. The presentations are published in the Journal of Medical Primatology. Stories of Scientific Discoveries: The NCRR Office of Science Policy and Public Liaison (OSPPL) produces several publications that focus on recent biomedical research findings supported jointly by NCRR and other NIH components. Articles in the NCRR Reporter magazine and in the NCRR Highlights magazine include AIDS research findings. Articles from past and current issues of these publi- cations may be obtained by calling OSPPL at (301) 435-0888 or by accessing NCRR's Web site (http://www.ncrr.nih.gov). Access to AIDS Animal Models: The NCRR Comparative Medicine Resources directory lists several research facilities where investigators can gain access to nonhuman primates for AIDS studies, including vaccine development. For more information about research resources that enable AIDS investigations, contact NCRR, OSPPL, One Democracy Plaza, 6701 Democracy Boulevard, Bethesda, MD 20892-+874, telephone (301) 435-0888; or visit NCRR's Web site (http://www.ncrr.nih.gov). 0 m E3 7 National Eye Institute (NEI) http://www.nei.nih.gov Clinical Patient Professional General Research Trials Treatment Education Training Prevention Information 1 7 / / / Studies of the Ocular Complications of AIDS: General information is available on the ocular complications of AIDS, including basic research and clinical trials, completed and ongoing. For more informa- tion, contact NEI, Office of Communication, Health Education, and Public Liaison, Building 31, Room 6A32, 31 Center Drive, MSC 2510, Bethesda, MD 20892-2510; call (301) 496-5248; or access the NEI home page (http://www.nei.nih.gov). NEI continues to conduct the Longitudinal Study of Ocular Complications of AIDS. Results disseminated from the Foscarnet- Ganciclovir Retinitis Trial, the Ganciclovir Implant Study for Cytomegalovirus (CMV) Retinitis, and the CMV Retinitis Retreatment Trial are available in the NEI's online clinical studies database at http://www.nei.nih.gov/neitrials/index.htm. Information on the HPMPC Peripheral CMV Retinitis Trial, the Ganciclovir-Cidofovir CMV Retinitis Trial (GCCRT), and the Monoclonal Antibody Retinitis Trial are also available in the database. National Heart, Lung, and Blood Institute (NHLBI) http://www.nhlbi.nih.gov Clinical Patient Professional General Research Trials Treatment Education Training Prevention Information / AIDS Research Programs: NHLBI issues a report on its AIDS research programs. Copies of this report may be obtained by writing to NHLBI AIDS Program, Building 31, Room 4A35, 31 Center Drive, MSC 2490, Bethesda, MD 20892-2490; or by calling (301) 496-3245. m 8 NHLBI Specimen Repository: Information about the NHLBI Specimen Repository is available on NHLBI's Web site (http://www. nhlbi.nih.gov); click on Scientific Resources, then, under Research Resources, click on NHLBI Biologic Specimen Repository. Questions concerning the Repository should be addressed to Dr. Luiz Barbosa, Rockledge 2, Room 10146, Bethesda, MD 20892-7950; or call (301)435-0073. National Institute on Aging (NIA) http://www.nih.gov/nia □ Clinical Research Trials Patient Professional General Treatment Education Training Prevention Information / / AIDS and the Older Adult: NIA produces this document, one in a series of "Age Pages," that provides general information to the public on AIDS in the older population and lists resources to contact for more information. For a free copy, call 1-800-222-2225. or write to NIA, Building 31, Room 5C-27, 31 Center Drive, MSC 2292, Bethesda, MD 20892-2292. National Institute on Alcohol Abuse and Alcoholism (NIAAA) http://www.niaaa.nih.gov Clinical Patient Professional General Research Trials Treatment Education Training Prevention Information / / / / 0 Alcohol & AIDS: A Guide to Research Issues and Opportunities: This pamphlet provides a foundation for expanded discussions on alcohol and HIV/AIDS. This publication outlines the intersection 9 between the alcoholism and HIV/AIDS epidemics and provides infor- mation on epidemiological, behavioral, and biomedical research. In addition, research regarding high-risk groups and settings, dual-risk groups, and comorbidity are addressed. Copies are available free from NIAAA, Willco Building, Suite 409, 6000 Executive Boulevard, Bethesda, MD 20892-7003; by calling (301) 443-3860, or by going online at http://www.niaaa.nih.gov/extramural/AIDS/contents.htm. "Alcohol and AIDS": This issue of NIAAA's quarterly bulletin, Alcohol Alert, provides information to health professionals about the relationship between alcohol consumption and HIV/AIDS. It focuses on the relationship of alcohol consumption to unsafe sexual behavior and on the treatment implications of alcohol's effect on the immune system. Copies are available free from NIAAA, Willco Building, Suite 409, 6000 Executive Boulevard, Bethesda, MD 20892-7003; by calling (301) 443-3860, or by going online at http://www.niaaa.nih. gov/publications/aa57.htm. Alcohol Health & Research World: Two issues of this peer-reviewed journal feature information about the relationship between alcohol consumption and HIV/AIDS: "Alcohol, Infectious Diseases, and Immunity" ($19.50, PB93160604) and "Prevention of Alcohol-Related Problems" ($19.50, PB94113503). These issues are available from the National Technical Information Service (NTIS). Call NTIS at (703) 487^1650 for more information. Alcohol & HIV/AIDS Home Page: Web site features information about initiatives related to alcohol and HIV/AIDS research. The site includes links to articles, news releases, other Federal resources, and NIAAA contact information. For details, visit http://www.niaaa.nih.gov/ extramural/AIDS/main.htm. National Institute of Allergy and Infectious Diseases (NIAID) http://www.niaid.nih.gov Clinical Research Trials Patient Professional General Treatment Education Training Prevention Information / / / / / / / NIAID provides major support and direction for the national cadre of scientists conducting research to understand, treat, and ultimately prevent the many infectious, immunologic, and allergic diseases that afflict people worldwide. NIAID cosponsors the AIDSinfo service. NIH Clinical Trials Information Phone Line: NIAID's Division of Intramural Research/NIH Clinical Center operates a free telephone service for information about participating in NIH clinical trials on HIV/AIDS. Call 1-800-AIDS-NIH (1-800-243-7644) or visit the Web site (http://clinicaltrials.gov). NIH Vaccine Research Center (VRC): For information on clinical trials in HIV vaccine research, call 1-866-833-LIFE (1-866-833-5433). E3 0 NIAID Updates on Basic and Clinical Research: NIAID's Office of Communications and Public Liaison distributes fact sheets, press releases, and other print materials about NIAID research results. NIAID disseminates research results relevant to clinical practice through its press releases, Note to Physicians, and Clinical Alert. NIAID Reports: NIAID's Office of Communications and Public Liaison disseminates materials describing NIAID's current research initiatives, such as information about HIV vaccine development, pre- clinical drug development, basic research, and epidemiologic studies. NIH AIDS Research and Reference Reagent Program: NIAID operates this program, which provides state-of-the-art biological and chemical materials for studying HIV and related opportunistic infec- tions. For information, call (301) 340-0245. or send an e-mail to aidsreagent @ mbs-mckhboc.com. 11 NIAID Pamphlets and Fact Sheets: NIAID's Office of Communications and Public Liaison has developed materials address- ing HIV-related prevention and treatment issues for health care providers to use when counseling people with HIV infection or AIDS. Contact the NIAID Office of Communications and Public Liaison, Building 31, Room 7A-50, 31 Center Drive, MSC 2520, Bethesda, MD 20892-2520. Materials are also available from AIDSinfo at 1-800-HIV-0440 (l_800^148-0440) or on the Web at http://AIDSinfo.nih.gov. NIAID World Wide Web Site: The NIAID Web site (http://www.niaid.nih.gov) contains AIDS-related press releases, publications, training, and grant and contract information. Vaccine Research Center (VRC) World Wide Web Site: The VRC Web site (http://www.niaid.nih.gov/vrc) contains information about HIV vaccine clinical trials, press releases, and information on VRC laboratories and components. National Institute of Child Health and Human Development (NICHD) http://www.nih.gov/nichd Clinical Patient Professional General Research Trials Treatment Education Training Prevention Information 1 / / / / / Reports: NICHD's Public Information and Communication Branch disseminates reports on various Institute-supported conferences and workshops related to HIV/AIDS in women, adolescents, and children. Information on Clinical Research: Based on research results pub- lished in scientific literature, NICHD issues press releases summariz- ing current research advances in HIV/AIDS prevention, diagnosis, and treatment. Reprints of research findings published by NICHD staff in leading scientific journals are also available. Additionally, information about the NICHD International and Domestic Pediatric and Perinatal HIV Clinical Trials Network can be accessed (using Internet Explorer) m 12 at http://www.nichdclinicalstudies.org. Information about the NICHD- sponsored Adolescent Trials Network (ATN) for HIV/AIDS Interven- tions can be accessed at http://www.atnonline.org. The ATN conducts research, often in collaboration with other networks, on promising behavioral, microbicidal, prophylactic, therapeutic, and vaccine modalities in HIV-infected and HIV-at-risk adolescents, ages 12 through 24 years. Report From the Pediatric, Adolescent and Maternal AIDS (PAMA) Branch to the NICHD Council, January 2003: The PAMA Branch, which funds research specifically focused on HIV infection in infants, children, adolescents, and women, issued a report to the NICHD Council in January 2003 about the types of and findings from research funded by the Branch; information about the PAMA Branch can be found at http://www.nichd.nih.gov/crmc/pama/pama.htm, and requests for a copy of the report can be sent to Dr. Lynne Mofenson (mofensol@mail.nih.gov). Pediatric AIDS Rehabilitation Research: Report of a Workshop: This publication addresses the need for rehabilitation in HIV-infected children. The goals of rehabilitation in this population include gaining optimal function within the scope of medical, physical, and/or mental limitations and diminishing disability or handicap by maximizing function and quality of life. The report grew out of a 1994 workshop sponsored by NICHD's National Center for Medical Rehabilitation Research. Research Consultation on the Care of HIV/AIDS Affected Women and Children in Africa: This workshop, held in Gaborone, Botswana, on March 25-29, 2001, brought together an international group of medical researchers, health care providers, and others concerned with HIV/AIDS in women and children in Africa, and explored a research agenda to enhance the treatment and care of women and children affected by HIV/AIDS in Africa. The final report of the meeting can be accessed (via Internet Explorer) at http://www.nichdclinicalstudies.org/ public/events/aaiO 103. Public Health Service Reports: NICHD staff were instmmental in the preparation of Public Health Service guidelines related to HIV/AIDS. In addition, NICHD staff are part of the Working Groups that provide ongoing real-time updates to these guidelines, which are now available on the Internet. Available recommendation documents include guidelines on antiretroviral treatment of HIV-infected adults and adolescents, treatment of HIV-infected children, treatment of HIV- infected pregnant women and interventions to reduce perinatal HIV transmission, and prophylaxis of opportunistic infections. The most recently updated guidelines can be accessed at the treatment guideline section of the AIDS information Web site of the Department of Health and Human Services (http://AIDSinfo.nih.gov). For more information and other publications on HIV, contact the NICHD Clearinghouse through the NICHD Web site (http://www.nichd.nih.gov), or phone l_800-370-2943, Monday through Friday, 8:30 a.m. to 5 p.m. eastern time. Some publications are available in Spanish. Related publications include the NICHD Plan on Health Disparities: Bridging the Gap and the Demographic and Behavioral Sciences Branch Report on Program Activities and Progress 1995-2000. National Institute on Deafness and Other Communication Disorders (NIDCD) http://www.nidcd.nih.gov Research Clinical Trials Treatment Patient Education Professional Training Prevention General nformation / / NIDCD supports and conducts research in the areas of hearing, balance, smell, taste, voice, speech, and language. For information about HIV/AIDS-related research at NIDCD, contact the Office of Health Communications and Public Liaison, 31 Center Drive, MSC 2320, Bethesda, MD 20892-2320; or call (301) 496-7243. G3 Bibliography: For people who are deaf or hard of hearing, NIDCD prepares an annual bibliography of HIV/AIDS information materials available to patients and health professionals. To receive a copy, contact the NIDCD Information Clearinghouse, One Communication Avenue, Bethesda, MD 20892-3456; or call 1-800-241-1044 (voice) or 1-800-241-1055 (TTY). 14 NIDCD's Web site (http://www.nidcd.nih.gov) also provides informa- tion about the Institute and a health information database that users can search online. National Institute of Dental and Craniofacial Research (NIDCR) http://www.nidcr.nih.gov Clinical Patient Professional General Research Trials Treatment Education Training Prevention Information / / / / Oral Health Implications of HIV Infection and AIDS: This literature search on the oral health aspects of HIV infection and AIDS from the National Oral Health Information Clearinghouse (NOHIC) is from the Oral Health subfile of the Combined Health Information Database (CHID). Designed with a strong patient education focus, CHID brings together health-related materials that fall outside the scope of more technical, research-based collections. The search focuses on the availability of educational materials for both the professional and the patient and includes topics such as the oral manifestations of HIV, oral hygiene for the HIV patient, oral health information for caregivers. adverse oral effects of medical management of HIV infection, and periodontal disease in the patient with HIV. Access the Oral Health subfile and CHID online via the NOHIC Web site (http://www.nohic.nidcr.nih.gov). Single copies of the search are available free from NOHIC, a service of NIDCR. Contact the Clearinghouse at One NOHIC Way, Bethesda, MD 20892-3500; or call (301) 402-7364, (301) 656-7581 (TTY); or send an e-mail to nohic@nidcr.nih.gov. For more information, write to NIDCR, Building 45, Room 4AS-19, Bethesda, MD 20892. □ 15 National Institute on Drug Abuse (NIDA) http://hiv.drugabuse.gov Clinical Patient Professional General Research Trials Treatment Education Training Prevention Information / / / / Jack and Jill Public Service Announcement Campaign: This series of public service announcements is part of NIDA's "Keep Your Body Healthy" public service campaign. These spots focus on the connec- tion between drug abuse and contracting HIV/AIDS. The spots can be viewed at http://hiv.drugabuse.gov. Collection of NIDA NOTES Articles on Drugs and AIDS: Presents more than 50 articles from 1990 to 2002. Includes titles such as "Drug Use, Unprotected Sex Increase Runaways' Risk for AIDS"; "HIV Infection Increases IV Dmg Abusers' Risk of Developing Tuberculosis"; "Facts Supporting NIDA's Drug Abuse and AIDS Campaign"; and "NIDA Encourages More AIDS-Related Research." Principles of HIV Prevention in Drug-Using Populations: A Research-Based Guide: Over the past 15 years, the National Institute on Drug Abuse (NIDA) has sponsored a comprehensive research pro- gram on drug abuse and HIV/AIDS that has resulted in a set of scien- tifically based principles to prevent HIV in drug-using populations. The guide provides the basic overarching principles that characterize effective HIV/AIDS prevention in drug users. This guide should prove useful to community planners, policymakers, service providers, and medical practitioners as they develop and implement comprehensive HIV/AIDS prevention programs to prevent the spread of HIV and other infections among drug users and their sexual partners. For more information about NIDA's resources and services, visit NIDA's Web site (www.dmgabuse.gov), or write to NIDA at 6001 Executive Boulevard, Room 5213, MSC 9561, Bethesda, MD 20892. m m m 16 National Institute of General Medical Sciences (NIGMS) http://www.nigms.nih.gov Clinical Patient Professional General Research Trials Treatment Education Training Prevention Information / AIDS-Targeted Drug-Design Project: NIGMS sponsors research in the area of targeted dmg design against AIDS. Every June. NIGMS holds a national meeting of groups involved in this research. Abstracts are widely disseminated to interested parties. For more information, contact NIGMS, 45 Center Drive, Room 2AS-19, MSC 6200, Bethesda, MD 20892-6200; or call (301) 594-0828. National Institute of Mental Health (NIMH) http://www.nimh.nih.gov Clinical Patient Professional General Research Trials Treatment Education Training Prevention Information / / / / 1 NIH Consensus Development Statement on Interventions To Prevent HIV Risk Behaviors: On February 11-13, 1997, experts from the fields of psychiatry, psychology, behavioral and social sci- ences, social work, and epidemiology met to examine what is known about behavioral interventions that are effective for the two primary modes of transmission: unsafe sexual behavior and nonsterile injection practices. Behavioral interventions to reduce risk for HIV/AIDS are effective and should be widely disseminated. The full report is available at http://odp.od.nih.gov/consensus/statements/cdc/104/104_stmt. html. tl 17 Conference on the Role of Families in Preventing and Adapting to HIV/AIDS: The NIMH Office on AIDS sponsors this annual confer- ence for researchers to present findings on family processes and HIV disease and to stimulate future collaborative research. A program book is produced before each conference. The last meeting took place in Miami, FL, July 4-5, 2002. Working With Families in the Era of HIV/AIDS: Published in 2000 and edited by Willo Pequegnat and Jose Szapocznik, this publication includes articles on the role families can play in preventing and adapting to HIV/AIDS. Copies may be obtained by contacting Sage Publications, Inc., 2455 Teller Road, Thousand Oaks, CA 91320; or by sending an e-mail to order@sagepub.com. Special Issue: HIV and AIDS Among the Severely Mentally 111: The NIMH Office on AIDS invited leading practitioners, researchers, consumer advocates, and policymakers to a national conference on HIV and AIDS among the severely mentally ill. The proceedings and summary reports from this conference were published in Clinical Psychology Review, 17, 3 (1997). Mini-Series: Preventing and Living With HIV and AIDS: The seven papers that constitute this mini-series explore prevention of HIV infection, include descriptions of psychosocial factors that influence disease course, discuss coping with the psychological distress and physical sequelae of the disease, and cover discussions of stress and coping in caregivers of those infected with HIV. The mini-series was published in the Annals of Behavioral Medicine, 18, 1 (1996). HIV in the Brain: Pathology and Neurobehavioral Consequences: This meeting was sponsored to review current understanding of nerv- ous system complications related to HIV infection and to prioritize research goals. Work-group topics included (1) the clinical syndrome, including recommendations to standardize diagnosis and classification of HIV-induced neuropsychological impairment; (2) the contribution of viral load to neuroAIDS; (3) central nervous system inflammation; and (4) therapeutics. The full report was published in the Journal of NeuroVirology, 3 (1997): 102-109, and may be found at http://www.nimh.nih.gov/oa/hivbrain.htm. 18 m m 0 a h Preparation of Research Grant Proposals for NIMH Support: As an outcome of an NIMH Office on AIDS technical workshop, Plenum Press has published How To Write a Successful Research Grant Application: A Guide for Social and Behavioral Scientists. This book provides technical assistance for researchers applying for biobehav- ioral or psychosocial research funding on all aspects of research, from grantsmanship and completing the Public Health Service 398 applica- tion to understanding the review process. There are separate chapters providing guidance on the development of the research plan, which cover theory development, hypothesis testing, preparing an interven- tion, and writing a data analytic plan, as well as practical considera- tions in presenting a budget. The document (ISBN 0-306-44965-X) may be obtained from Plenum Press, 233 Spring Street, New York, NY 10012-1578. Call (212) 620-8000 for further ordering information. Workgroup Report: Assessment of AIDS-Related Cognitive Changes: Recommendations of the NIMH Workshop on Neuropsychological Assessment: This report presents a brief and extended battery designed to evaluate early cognitive changes associated with seroposi- tive, asymptomatic persons. Although the battery assesses a wide range of psychological functioning, specific emphasis was placed on attention and speed of processing and retrieval from memory. The full report was published in the Journal of Clinical and Experimental Neuropsychology, 6 (1990): 963-978. Special Issue: Serving People With Psychiatric Disability at Risk for HIV/AIDS: The NIMH Office on AIDS, in collaboration with the International Association of Psychosocial Rehabilitation Sen ices, edited this special issue that reviews the major seroprevalence and HIV prevention issues of concern to persons with mental illness. There are also several articles on incentives and barriers to collaboration among researchers, service providers, and persons living with AIDS. Published as a special issue of the Psychosocial Rehabilitation Journal, 17, 14(1994). Fact Sheets: Depression and HIV (http://www.nimh.nih.gov/publicat/ hivdepression.cfm) and Human Immunodeficiency Virus (HIV)/ Acquired Immunodeficiency Syndrome (AIDS) Research At the National Institute of Mental Health (http://www.nimh.nih.gov/ publicat/hivresfact.cfm). Statement on the NIMH AIDS Research Program Responding to the Report: Released on December 6, 1999, by the National Alliance for the Mentally 111 and the Stanley Foundation Research Program, a press release issued December 15, 1999, is available at http://www. nimh.nih.gov/events/aidsnamifinal.cfm. NIMH Office on AIDS Research Grant Announcements: These are available by calling the NIMH Mental Health Fax4U system at (301) 443-5158. To obtain the six-digit code necessary to retrieve specific documents, press 1 when prompted to request the complete list of announcements and other materials. These documents are also avail- able on the NIMH home page (http://www.nimh.nih.gov). For further information concerning NIMH's program on AIDS research, contact the NIMH Office of Communications. For public inquiries, call (301) 443^-513, and for press inquiries, call (301) 443^.536. You may also send e-mail to nimhinfo@nih.gov, or visit the NIMH home page (http://www.nimh.nih.gov). National Institute of Neurological Disorders and Stroke (NINDS) http://www.ninds.nih.gov Clinical Patient Professional General Research Trials Treatment Education Training Prevention Information / / / NINDS is the United States' leading supporter of research on disorders of the brain and nervous system, including the neurological consequences of AIDS. For information about NINDS, contact the Office of Scientific and Health Reports, NINDS, NIH, Building 31, Room 8A07, Bethesda, MD 20892. Neurological Manifestations of AIDS: NINDS produces this fact sheet that provides general information to the public on the neurologi- cal sequelae of AIDS and lists resources to contact for more informa- tion. To receive a copy of the NINDS fact sheet on the neurological manifestations of AIDS, write to NIH Neurological Institute, P.O. Box 5801, Bethesda, MD 20824; call (301) 496-5751 or 1-800-352-9424; m 20 or visit the NINDS Neurological Manifestations of AIDS information page (http://www.ninds.nih.gov/health_and_medical/disorders/aids. htm). National Institute of Nursing Research (NINR) http://www.nih.gov/ninr Clinical Patient Professional General Research Trials Treatment Education Training Prevention Information / / Nursing Research and Training Programs in AIDS: NINR supports HIV/AIDS research and research training in the following areas: interventions to manage symptoms associated with HIV infection, its complications, and its treatment; research on social and interpersonal variables that contribute to risk taking, including interventions to enhance behavior change among high-risk populations; interventions to maintain or improve immunocompetence; interventions to improve end-of-life care and palliative care; interventions to improve the quali- ty of life for caregivers of AIDS patients; and interventions to increase adherence to therapy. NINR also cosponsors international initiatives in AIDS with NIMH and FIC. For more information, visit the NINR Web site (http://www.nih.gov/ninr). National Library of Medicine (NLM) http://www.nlm.nih.gov Clinical Patient Professional General Research Trials Treatment Education Training Prevention Information / / / / / / MEDLINE®/PubMed®: These databases (http://www.pub.med.gov) provide access to more than 12 million MEDLINE citations dating back to the mid-1960s and additional life science journals. PubMed includes links to many sites providing full-text articles and other related 21 m resources. MEDLINE is NLM's premier bibliographic database cover- ing the fields of medicine, nursing, dentistry, veterinary medicine, the health care system, and preclinical sciences. The AIDS subset of this database is available through PubMed and contains references to jour- nal articles published since 1980. Over 50 percent of these references have abstracts. In addition to journal articles, this subset includes cita- tions to HIV/AIDS-related newsletters. This subset contains approxi- mately 186,000 citations, with new citations added continuously. MEDLINEplus: MEDLINEplus is designed to help consumers and medical professionals find appropriate, authoritative health infor- mation, including HIV/AIDS, by providing access to information produced by the National Library of Medicine and the National Institutes of Health. This includes searches of MEDLINE, and ClinicalTrials.gov, the database of research studies from the National Institutes of Health. It also provides a database of full-text drug infor- mation, an illustrated medical encyclopedia, a medical dictionary, interactive health tutorials, and the latest health news. NLM Gateway: This Web site (http://gateway.nlm.nih.gov) enables users to retrieve information from several NLM resources, including MEDLINE, LOCATORplus (the online catalog of books and audiovi- sual), and meeting abstracts. Abstracts are included from the fifth through the thirteenth International Conferences on AIDS, Symposium on Nonhuman Primate Models for AIDS, the Annual Meeting of the American Society for Microbiology, and others. AIDSinfo is a Department of Health and Human Services (DHHS) service for federally approved HIV/AIDS information. It includes cur- rent information on federally and privately funded HIV/AIDS-related clinical trials. It is the result of merging two previous DHHS projects: the AIDS Clinical Trials Information Service (ACTIS) and the HIV/AIDS Treatment Information Service (ATIS). AIDSinfo is available through its Web site address (http:// AIDSinfo.nih.gov) or by e-mail at contactUs@AIDSinfo.nih.gov. AIDSinfo also has Spanish- and English-speaking reference specialists available weekdays 9 a.m. to 7 p.m. eastern time. Call 1-800^148-0440 or 1-888-480-3739. 22 HSTAT (Health Services and Technology Assessment Text): This database (http://text.nlm.nih.gov) provides access to federally approved treatment guidelines and recommendations. Current versions of AIDS-related guidelines, and an archive of earlier versions, are available from AIDSinfo at http://AIDSinfo.nih.gov. AIDS Internet Resource: The NLM Web site (http://aids.nlm.nih.gov) contains text of various AIDS-related documents produced by the Library, including reports and fact sheets; information about the Library's services; access to online databases; and information about the Library's outreach program to fund community-based organiza- tions and libraries for improved access to information. In addition, this Web site provides organized access to selected AIDS-related Internet resources from other government and nongovernment sources, includ- ing those funded in part by NLM. GenBankfo: This database is maintained and operated by the National Center for Biotechnology Information (NCBI). GenBank (http://www.ncbi.nlm.nih.gov/Genbank/GenbankOverview.html) provides an international collection of all public DNA and amino acid sequences and includes more than 89,000 HIV sequences. Integrated retrieval tools have been built to search the sequence data stored in GenBank and link search results to other related sequences, as well as to bibliographic citations. NCBI also supports a collection of resources specifically designed for retroviral research (http://www.ncbi.nlm.nih.gov retrovirus resources), including: ■ A genotyping tool that uses the Basic Local Alignment Search Tool (BLAST) algorithm to identify the genotype of a query sequence. ■ An alignment tool that provides a global alignment of multiple sequences. ■ HIV-1 automatic sequence annotation, which generates a report in GenBank format for one or more query sequences. ■ Graphical representation of 50 retrovims reference sequence complete genomes. These tools are designed to lead to taxa-specific resources. The Retrovirus home page (http://www.ncbi.nlm.nih.gov/retroviruses) 23 0 also provides external links to NIAID's Division of Acquired Immunodeficiency Syndrome, the Los Alamos National Laboratory (LANL) HIV sequence database, and the Stanford HIV reverse tran- scriptase (RT) and protease gene database. DIRLINE": An online annotated directory listing some 9,000 health organizations. It includes information on more than 800 national and international organizations that provide AIDS-related services or infor- mation, including direct support services, counseling, and databases. Clinics and hospitals are not included. DIRLINE may be searched at http://dirline.nlm.nih.gov. AIDS Posters: NLM's History of Medicine Division (HMD) collects public health posters, including posters on AIDS. This international collection includes approximately 2,000 posters dealing with HIV/AIDS and related topics. For information about how the Library acquires and distributes its pictorial materials, call the HMD Reference Desk at (301) 402-8878. To view the posters online, go to Images From the History of Medicine (IHM) at http://wwwihm.nlm.nih.gov and search on "acquired immunodeficiency syndrome." IHM contains nearly 60,000 images in all aspects of health and medicine. Office of AIDS Research (OAR) http://www.nih.gov/od/oar Research Clinical Trials Treatment Patient Education Professional Training Prevention General nformation / / / / / / EH Annual NIH Plan for HIV-Related Research: In response to a con- gressional mandate, OAR annually develops a detailed strategic plan for AIDS-related research activities in all of the NIH Institutes and Centers in the following areas: (1) natural history and epidemiology, (2) etiology and pathogenesis, (3) therapeutics, (4) vaccines, (5) behav- ioral and social science, (6) microbicides, (7) HIV prevention research, (8) racial and ethnic minorities, (9) women and girls, (10) international research, (11) training, infrastmcture, and capacity building, and (12) information dissemination. The plan summarizes the status of NIH- 24 sponsored activities in these areas and presents the goals and strategies for future efforts. This plan serves as the framework for development of the annual NIH AIDS-related research budget. Global AIDS Research Initiative and Strategic Plan: On World AIDS Day, December 1, 2000, OAR announced a new initiative and strategic plan for global research on HIV/AIDS aimed at slowing the disaster and reversing its destmction of communities, economies, and nations worldwide. The document provides an overview of NIH international AIDS activities and includes research goals and strategies for the major international efforts of NIH's research Institutes and Centers. The document is available on the OAR Web site (http://www.nih.gov/od/oar/public/pubs/global.pdf). Reports From OAR-Sponsored Meetings: ■ Consultation on Studies of HIV Disease in Developing Countries, February 2002 ■ AIDS Prevention Science Agenda, February 2001 ■ Consultation on Anti-Retroviral Therapy for HIV Prevention. December 2000 ■ Biology of HIV Transmission Think Tank: Summary Report, April 2000 ■ Gender and HIV Viral Load: Summary Report, January 2000 ■ Focus Group to Review the Centers for AIDS Research (CFAR) Program/NIH Response to the Focus Group to Review the CFAR Program, September 1999 ■ Genetic Typing and Breeding of Genetically Defined Nonhuman Primates for Immunological Studies of AIDS Vaccines, August 1999 ■ Report of the Working Group to Review the NIH Perinatal, Pediatric, and Adolescent HIV Research Priorities, June 1999 ■ Report From the Workshop on Detection of Potential Toxicities Following Perinatal Exposure to Antiretrovirals, January 1999 ■ NIH Fact Sheet on AIDS Research and Minority Populations (http://www.nih.gov/od/oar/public/pubs/minorfct.pdf) These documents are available in hard copy, on diskette, and on the NIH OAR Web site (http://www.nih.gov/od/oar). For more information about resources and services provided by OAR, access the NIH OAR Web site (http://www.nih.gov/od/oar) or contact the NIH Office of AIDS Research, Building 2, Room 4W01, Bethesda, MD 20892. 26 elected Public Health Service HIV/AIDS Information Activities Agency for Healthcare Research and Quality (AHRQ) http://www.ahrq.gov Clinical Patient Professional General Research Trials Treatment Education Training Prevention Information / / / AHRQ supports activities that enhance the quality, appropriateness, and effec- tiveness of health care services and improve access to care through various programs, including outcomes and quality research, as well as research on health care systems cost and access. Ongoing and completed AHRQ-sponsored research projects related to HIV/AIDS pertain to the cost of care and issues important to women, children, minority populations, and others. m AHRQ Reports: AHRQ has produced more than 20 reports related to HIV/AIDS, including Pediatric AIDS-Related Discharges in a Sample of U.S. Hospitals: Demographics, Diagnoses, and Resource Use and Forecasts of the Costs of Medical Care for Persons With HIV: 1992-1995. To obtain copies of the above publications or the AHRQ Publications Catalog, contact the AHRQ Publications Clearinghouse, P.O. Box 8547, Silver Spring, MD 20907-8547; or call 1-800-358-9295. For more information, write to AHRQ, Suite 501, 2101 East Jefferson Street, Rockville, MD 20852. Further information about AHRQ can also be found on its Web site (http://www.ahrq.gov). 27 Centers for Disease Control and Prevention (CDC) http://www.cdc.gov/nchstp/od/nchstp.html Clinical Patient Professional General Research Trials Treatment Education Training Prevention Information / / / / / il CDC assesses the status and characteristics of the AIDS epidemic and —1 the prevalence of HIV infection and supports, via financial and techni- cal assistance, the design, implementation, and evaluation of HIV pre- vention and education activities. Within CDC, prevention efforts are primarily concentrated in two divisions of the National Center for HIV, Sexually Transmitted Diseases (STDs), and Tuberculosis (TB) Prevention—the Division of HIV/AIDS Prevention-Intervention Research and Support (DHAP-IRS) and the Division of HIV/AIDS Prevention-Surveillance and Epidemiology (DHAP-SE). The missions of the two divisions are to support prevention programs through part- nerships with governmental and nongovernmental organizations at the national, State, and local levels and to conduct behavioral and other scientific research for expanding the base of scientific knowledge necessary to prevent and control HIV infection. Prevention strategies include monitoring the epidemic to target prevention and care activi- ties, researching the effectiveness of prevention methods, funding local prevention efforts for high-risk communities, and establishing links with care and treatment programs. CDC also provides financial and technical support for disease surveillance; HIV counseling, test- ing, referral, and partner notification services; street and community outreach; risk-reduction counseling; prevention case management; pre- vention and treatment of other STDs that can increase risk for HIV transmission; public information and education; school-based educa- tion about AIDS; international research studies; technology transfer systems; organizational capacity building; and program-relevant epidemiologic, sociobehavioral, and evaluation research. 28 CDC Divisions of HIV/AIDS Prevention, National Center for HIV, STD, and TB Prevention: The Divisions of HIV/AIDS Prevention (DHAP), in collaboration with international, national, State, and com- munity partners, work to prevent HIV and to reduce the incidence of HIV-related illness and death. The DHAP Web site (http://www.cdc. gov/hiv/dhap.htm) includes information about statistics, funding, media campaigns, publications, software, and training as well as links to related sites. CDC National Prevention Information Network: The CDC National Prevention Information Network (NPIN) is the U.S. national reference, referral, and distribution service for information about HIV/AIDS, STDs, and TB. All of NPIN's services are designed to facilitate the sharing of information and resources among people working in HIV, STD, and TB prevention, treatment, and support serv- ices. NPIN staff serve a diverse network of constituents who work in international, national, State, and local settings. Health information specialists at NPIN answer questions, provide referrals, and offer tech- nical assistance. Using NPIN databases and other CDC resources, staff help callers find up-to-date information about organizations that pro- vide HIV/AIDS-, STD-, and TB-related services, educational materi- als, and funding resources. Spanish- and English-speaking NPIN specialists can be accessed Monday through Friday, 9 a.m. to 6 p.m. eastern time, by calling 1-800-458-5231 or 1-800-243-7012 (TTY). NPIN can also be accessed through NPIN FAX, a 24-hour, fax-on- demand service (1-800^458-5231), and through its Web site (http://www.cdcnpin.org). CDC National HIV/AIDS and STD Hotlines: The CDC National STD and AIDS Hotlines are toll-free STD- and HIV/AIDS-related information services that provide personal and confidential informa- tion, referrals, and educational materials to the public. The hotlines also offer free group calls and classroom calls, which provide an opportunity for groups to speak with trained information specialists and ask questions about serious issues in a relaxed environment. The hotlines operate 24 hours a day, 7 days a week. Call 1-800-342-AIDS (1-800-342-2437) or 1-800-227-8922; 1-800-344-SIDA (l_800-344-7432) (Spanish, 8 a.m. to 2 a.m. eastern time); or 1-800-243-7889 (TTY, Monday through Friday, 10 a.m. to 10 p.m. eastern time). 29 HCDC Automated Telephone Services: Information about more than two dozen HIV-related topics is available around the clock, by fax and by recording, toll free from CDC's Voice Information Service at 1-888-CDC-FACT (1-888-232-3228). Callers can access informa- tion about a wide variety of HIV-related topics, including the latest statistical and epidemiological data from the semiannual HIV/AIDS Surveillance Report, up-to-date information on HIV transmission and prevention, and basic facts about HIV and AIDS. Food and Drug Administration (FDA) http://www.fda.gov Clinical Patient Professional General Research Trials Treatment Education Training Prevention Information / / FDA is responsible for ensuring the safety and effectiveness of drugs, biologies, vaccines, and medical devices used in the diagnosis, treat- ment, and prevention of HIV/AIDS and AIDS-associated opportunistic infections. FDA also works with the blood-banking industry to help ensure the safety of the Nation's blood supply. The agency provides guidance and input on FDA-related matters to the AIDSinfo service. For more information, contact the FDA Office of Special Health Issues (HF-12), Room 9-49, 5600 Fishers Lane, Rockville, MD 20857; or call (301) 827-4460. FDA has a Web site on the World Wide Web (http://www.fda.gov). FDA's Office of Special Health Issues also has a Web site (http://www.fda.gov/oashi/home.html), which contains HIV/AIDS- related information. FDA also maintains an electronic listserv to provide updates on safety and regulatory issues related to HIV/AIDS products as they become available (rather than on a regularly scheduled basis). This e-mail list gives patients, industry, academia, other government agencies, and other interested parties one source for FDA HIV/AIDS-related infor- mation on a variety of topics, including: 30 ■ Product approvals. ■ Significant labeling changes. ■ Safety warnings. ■ Notices of upcoming public meetings. ■ Proposed regulatory guidances and opportunity to comment. You can subscribe to the listserv on the front page of the FDA Web site, or by going directly to http://list.nih.gov/cgi-bin/wa7SUBED 1 = fda-hiv-aids&A=l. Centers for Medicare & Medicaid Services (CMS) http://www.cms.gov Clinical Patient Professional General Research Trials Treatment Education Training Prevention Information / / / CMS is the largest health insurance provider for persons living with AIDS in the United States. The Medicaid program pays for the care of 55 percent of all people living with AIDS in the United States and 90 percent of the country's children living with AIDS. Medicaid is the largest single payer for care for persons living with AIDS, and CMS's Medicare program is the second largest payer. In partnership with State Medicaid agencies, CMS conducts a Maternal HIV Consumer Information Project designed to inform women of childbearing age about the importance of being tested for HIV during pregnancy to prevent perinatal transmission of HIV. Print materials are available in 14 languages, including English, Spanish, and five Asian languages. The materials are free and may be ordered from CMS. To learn more about CMS's Maternal HIV Consumer Information Project or to see if you may be eligible for Medicaid if you are a pregnant woman, visit CMS's Web site (http://www.cms.hhs.gov/hiv) and click on the Maternal HIV Consumer Information Project link. 31 The Ticket to Work and Work Incentives Improvement Act of 1999 gave States the option to extend Medicaid coverage to persons with disabilities who want to work. More information about this Act is also available on the CMS Web site. CMS cosponsors AIDSinfo.nih.gov, a toll-free service funded by the U.S. Department of Health and Human Services. Health Resources and Services Administration (HRSA) http://www.hrsa.dhhs.gov Clinical Patient Professional General Research Trials Treatment Education Training Prevention Information / / / / / / HRSA administers education and training programs for health care providers and community service workers who care for AIDS patients. HRSA also administers programs to demonstrate how communities can organize their health care resources to develop an integrated, comprehensive system of care for those with HIV/AIDS. The agency cosponsors the HIV/AIDS Treatment Information Service (AIDSinfo) (see page 22). The AIDS Education and Training Centers (AETC) Program of the Ryan White CARE Act: AETC supports a network of 14 regional centers (and more than 70 associated sites) that conduct targeted, multidisciplinary education and training programs for health care providers treating persons with HIV/AIDS. AETCs serve all 50 States, the District of Columbia, the Virgin Islands, Puerto Rico, and the 6 U.S. Pacific jurisdictions. The AETC program educates and motivates health care providers in counseling, diagnosing, treating, and medically managing individuals with HIV, and in preventing high- risk behaviors that lead to HIV transmission. For more information, call (301) 443-5354. Several national components of the AETC program support and com- plement the regional training centers. In 1999, the National Minority m 32 AIDS Education and Training Center (http://www.nmaetc.org) was established with funding from the Congressional Black Caucus Minority AIDS Initiative to benefit minorities who are disproportion- ately affected by HIV/AIDS. Working with Historically Black Colleges and Universities' schools of medicine, the Center offers clinical con- sultation and support to minority clinicians, builds networks among minority clinicians, and expands educational resources to increase the number of minority clinicians providing quality care to HIV-positive individuals. Other program components include the National Resource AETC, National Evaluation AETC, and the National HIV/AIDS Clinicians' Consultation Center. The resource center is a Web-based HIV/AIDS training resource (http://www.aids-ed.org) that supports the training needs of the regional AETCs through coordination of HIV/AIDS training materials, rapid dissemination of late-breaking advances in treatment and changes to treatment guidelines, and critical review of available patient education materials. The evaluation center is respon- sible for program evaluation activities, including assessing the effec- tiveness of the AETCs' education, training, and consultation activities. The National HIV/AIDS Clinicians' Consultation Center (http://www. ucsf.edu/hivcntr) provides health care professionals with a national resource to obtain timely and appropriate responses to clinical questions related to treatment of persons with HIV (WARMLINE, l_800-933-3413) and/or possible health care worker exposure to HIV and other blood-borne pathogens (PEPline, 1-888-448-4911). National Pediatric HIV Resource Center: The Bureau of Maternal and Child Health, HRSA, supports the National Pediatric HIV Resource Center, which offers a range of services to professionals caring for children, youth, and families affected by HIV. The resource center pro- vides consultation, technical assistance, policy analysis, and clinical training. The center is accessible from 9 a.m. to 5 p.m. eastern time and can be reached by calling 1-800-362-0071, faxing (201) 485-2752, or writing to the National Pediatric HIV Resource Center, 15 South Ninth Street, Newark, NJ 07107. HRSA AIDS Advisory Committee: The HRSA AIDS Advisory Committee was established to advise the Secretary of the U.S. Department of Health and Human Services on agency policies and strategic issues related to the support of health care services for per- sons living with HIV/AIDS and the education of health care profes- sionals about HIV/AIDS. The Committee supports HRSA's process of identifying and responding to the health service delivery needs of affected communities and the needs of individuals living with this disease. Meetings are open to the general public and are held twice a year. For information, call (301) 443^4588. Office of Minority Health (OMH) www.omhrc.gov Clinical Patient Professional General Research Trials Treatment Education Training Prevention Information / / / The mission of the Office of Minority Health (OMH) is to improve and protect the health of racial and ethnic minority populations through the development of effective health policies and programs that seek to eliminate health disparities. These populations include American Indians and Alaska Natives, Asian Americans, Native Hawaiians and other Pacific Islanders, Blacks/African Americans, and Hispanics/Latinos. OMH participates in and serves as a contact point for the U.S. Department of Health and Human Services (HHS) Minority HIV/ AIDS Initiative. In October 1998, the President declared HIV/AIDS to be a severe and ongoing health crisis in racial and ethnic minority communities. In response, the Administration, HHS, and congressional caucuses announced a special package of initiatives aimed at reducing the effect of HIV/AIDS on racial and ethnic minorities. Federal agencies participating in the initiative include OMH and CDC, the Substance Abuse and Mental Health Services Administration, (SAMHSA), NIH, HRSA, and the Indian Health Service. OMH maintains the HHS Minority HIV/AIDS Initiative Web site. For more information, visit http://www.hiv.omhrc.gov. 34 Grant Programs: OMH administers several demonstration grant pro- grams that focus on improving HIV/AIDS prevention programs and/or services to minorities. These include the Minority Community Health Coalition Demonstration Grant Program, HIV/AIDS; the Technical Assistance and Capacity Development Demonstration Program for HIV-Related Services in Minority Communities; and the State and Territorial HIV/AIDS Demonstration Grant Program. For more infor- mation on the grant programs, please visit http://www.omhrc.gov/ OMH/Programs/index.htm. Cooperative Agreements: OMH administers 21 HIV/AIDS projects through a number of cooperative agreements for fiscal year 2003. The projects support research, demonstrations, and evaluations; test new and innovative models; and increase knowledge and understanding of health risk factors. They also develop mechanisms to support effective information dissemination, education, prevention, and services deliv- ered to individuals from disadvantaged backgrounds. Some of the projects include the Reduction of Perinatal HIV Transmission Project, the HIV/AIDS Project Promoting Healthy Communities through Leadership Development, the Health Promotion and Education for the Underserved Project, and the Galvanizing Leadership and Promoting Capacity for HIV/AIDS Prevention and Health Promotion Among Women of Color Project. For more information, please visit http://www.omhrc.gov/OMH/Programs/2pgprograms/Cooperative.htm OMH Publications: OMH publishes a bimonthly newsletter. Closing the Gap; a quarterly newsletter, HIV Impact; an annual Pocket Guide to Minority Health Resources; and Web pages devoted to HIV/AIDS issues among minority populations, covering news, funding, living with AIDS, prevention, and technical assistance to service providers. OMH also distributes HIV/AIDS and Minorities: A Guide to Federal Programs, a publication developed by HHS's Office of HIV/AIDS Policy. The publication may also be viewed on the OMH Web site. These and other OMH publications are available free of charge. For more information, telephone 1-800-444-6472 or visit http://www.omhrc.gov/OMH/sidebar/publications.htm. OMH Resource Center (OMHRC): Established in 1987, the OMHRC serves as a national resource and referral service on minority health issues. The OMHRC provides a broad array of HIV/AIDS information and technical assistance services. Specialized technical assistance and capacity building services are offered to underserved community-based organizations (CBOs) working on HIV/AIDS issues in minority communities. This includes assistance on resource devel- opment, organizational infrastructure, cultural competency, networking and collaboration, community outreach, program development, evalu- ation, computer use and Internet search skills, and more. Technical assistance is provided through a combination of regional skills-building workshops; one-on-one, onsite consultation with organizations, and telephone, mail, and e-mail consultations. The OMHRC also makes available a Resource Persons Network (RPN), which comprises health professionals from a wide variety of organizations who have volun- teered to provide technical assistance to CBOs and other health professionals. The OMHRC is currently facilitating a Minority Community Based Organizations (MCBOs) Rural Needs Assessment to determine the capacity of rural CBOs to deliver HIV/AIDS services to the diverse communities in their States. The project aims to assist Community Planning Groups (CPGs) in 8 States to coordinate a capacity assessment of more than 400 mral MCBOs. The OMHRC also works with Historically Black Colleges and Universities (HBCUs) to develop and fortify the capacity to adequately address HIV/AIDS and service needs of the student body through peer HIV certification programs. Information regarding HIV/AIDS and minorities, and the availability of technical assistance, can be obtained from the OMH Resource Center by calling toll free 1-800-444-6472 or (301) 230-7199 (TTY), or by sending an e-mail to info@omhrc.gov. English- and Spanish-speaking information specialists are available to assist callers from 9 a.m. to 5 p.m. eastern time on business days. Messages may be left at other hours. Substance Abuse and Mental Health Services Administration (SAMHSA) http://www.samhsa.gov Research Clinical Trials Treatment Patient Education Professional Training Prevention General Information / / / / / SAMHSA works to improve the quality and availability of prevention, treatment, and rehabilitative services for substance abusers and the mentally ill. Funding to States: SAMHSA's Substance Abuse Prevention and Treatment Block Grant (SAPT) provides formula-based support to States for substance abuse prevention and treatment activities. A por- tion of the funding in fiscal year (FY) 2001 was set aside for early HIV/AIDS intervention services offered through substance abuse pro- grams in States and territories where AIDS incidence rates exceed a congressionally mandated level. State Survey of Collaborations: SAMHSA, working with CDC and HRSA, has documented the capacity of the State service system in an effort to coordinate and link services for individuals diagnosed with HIV/AIDS and drug addiction and/or mental illness. The data collect- ed are helping SAMHSA formulate policy to improve health outcomes for these people. The information is expanding current knowledge about what types of integrated services work best and helping States and communities broaden their collaborations in this area. Targeted Capacity Expansion: Since 1999, SAMHSA's Center for Substance Abuse Prevention (CSAP) and its Center for Substance Abuse Treatment (CSAT) have administered grants to help communi- ties provide integrated/cross-trained substance abuse and HIV/AIDS prevention and treatment services that focus primarily on African American, Hispanic/Latino, and other racial/ethnic minority popula- tions. CSAP emphasizes services for minority youth and women. CSAP and CSAT promote the selection, adoption/adaptation, imple- mentation, and evaluation of integrated substance abuse-HIV/AIDS 37 treatment and prevention interventions that are culturally and linguisti- cally appropriate and gender and sexual orientation specific. FY 2001 funding for the prevention component provided grants to community- based organizations, local and national coalitions, civic groups, schools, health facilities, and local governments. CSAT's program in FY 2001 supported approximately 25-35 grantees, including those focusing on high-risk populations. Minority HIV/AIDS Mental Health Services: This 5-year program begun in FY 2001 provides grants to community-based organizations to expand services to meet the mental health treatment needs of minorities living with HIV/AIDS, including African Americans, Hispanics/Latinos, and other racial/ethnic minorities. The program also offers mental health and HIV/AIDS education and training to people who provide mental health care and emotional support in both traditional and nontraditional settings. HIV/AIDS Treatment Adherence Health Outcomes and Cost Study: This first Federal effort to focus on people living with HIV/AIDS who have also been diagnosed with mental and addictive disorders represents a collaboration among SAMHSA, HRSA, and several agencies of NIH. The goal of this multisite study is to deter- mine the effects of integrated mental health, substance abuse, and HIV/AIDS primary care services on treatment, adherence, health out- comes, and costs. Preliminary findings suggest that study participants are more likely to have received HIV/AIDS and substance abuse treat- ment than mental health services. Multiprogram Cross-Training: This cross-agency project, including not only SAMHSA but also CDC and HRSA, provides training to health professionals in various disciplines. A curriculum focused specifically on substance abuse and HIV/AIDS has been developed and tested to reach HIV prevention and treatment specialists and sub- stance abuse treatment staff to enhance their knowledge and skills in both areas. The curriculum explores attitudes and sensitivities that could pose barriers to effective care. The curriculum is being evaluat- ed for broad-based use to spearhead the training of health profession- als at the local level, thereby enhancing community-based capacity in both HIV/AIDS and substance abuse prevention and treatment. Substance Abuse and HIV Prevention Services: Three new programs were proposed for FY 2002 to help nonprofit, community-based organ- izations expand current service delivery systems to include effective, integrated substance abuse and HIV/AIDS prevention and primary health care services. Funds are intended to help develop new services and integrate existing services to create comprehensive systems of care for minority communities. A second new program proposed for FY 2002 was designed to support nonprofit, community-based organi- zations in efforts to create the capacity to provide effective substance abuse and HIV/AIDS prevention services in minority communities. The third program supports efforts by community-based organizations to broaden their service delivery efforts to reach minority youth ages 9 to 17 who are disproportionately affected by the HIV/AIDS epidemic. Substance Abuse and HIV/AIDS Outreach: The Community-Based Substance Abuse and HIV/AIDS Outreach Grant Program, which resulted from a 1999 initiative of the Congressional Black Caucus, serves African American, Hispanic/Latino, and racial/ethnic minority communities with high rates of substance abuse and HIV/AIDS. The community-based programs supported under this grant program pro- vide the following services to persons who are HIV positive or living with HIV/AIDS: HIV counseling and testing; health education and risk-reduction information; and access/referrals to substance abuse treatment, primary care, mental health services, and testing for sexually transmitted diseases and tuberculosis. Index A Access to AIDS Animal Models, 7 Adolescents, 12, 13, 14 AHRQ Reports, 27 AIDS and the Older Adult, 9 AIDS Education and Training Centers Program of the Ryan White Care Act, 32 AIDSinfo, 11, 12, 14, 22, 23, 30, 32 AIDS International Training and Research Program, 2 AIDS Posters, 24 AIDS Research Programs, 8 Alcohol, 9, 10 and sexual behavior, 10 and the immune system, 10 Alcohol and AIDS, 10 Alcohol & AIDS: A Guide to Research Issues and Opportunities, 9 Alcohol Health & Research World, 10 Annual AIDS Research Symposium, 7 Annual NIH Plan for HIV-Related Research, 24 B Bibliographies, 14, 22 Blood supply, 30 c Cancer Information Service, 4 CDC Automated Telephone Services, 30 CDC Divisions of HIV/AIDS Prevention, National Center for HIV, STD, and TB Prevention, 29 CDC National HIV/AIDS and STD Hotlines, 29 CDC National Prevention Information Network, 29 Children, 12, 13, 14.24.27,31,33 see also Pediatric HIV infection Clinical trials, 5, 8, 11, 12,22 Collection of NIDA NOTES Articles on Drugs and AIDS, 16 Conference on the Role of Families in Preventing and Adapting to HIV/AIDS, 18 Counseling, 5, 12,24.28,32,39 D Diagnosis, 12, 18,30 DIRLINE database, 24 Drug abuse, 16 Drugs, therapeutic, 13 development, 11, 17 safety, 30, 31 E Education, public, 6, 9, 12, 15, 16, 20, 21,28,29,31,32,33,34. 35, 37, 38, 39 Epidemiology, 11, 17, 24, 28 41 F Families, 4. 18, 33 G Global AIDS Research Initiative and Strategic Plan, 25 Grants, 2, 3, 19, 20, 29, 35, 37, 38 H Health Services and Technology Assessment Text, 23 Hearing, 14 HIV/AIDS Treatment Adherence Health Outcomes and Cost Study, 38 HIV/AIDS Treatment Information Service, 22, 32 HIV in the Brain: Pathology and Neurobehavioral Consequences, 18 International Clinical, Operational, and Health Services Research Training Award for AIDS and Tuberculosis Program, 3 J Jack and Jill Public Service Announcement Campaign, 16 M Maternal HIV infection, see Perinatal HIV transmission Medical devices, 30 Meeting proceedings, 7, 12, 13, 17, 18, 19, 22, 25 Mental illness and HIV/AIDS, 18, 19, 37, 38 Mini-Series: Preventing and Living With HIV and AIDS, 18 Minority HIV/AIDS Mental Health Services, 38 Minority populations, 24, 25, 27, 33, 34, 35, 36, 37, 38, 39 Multiprogram Cross-Training, 38 N National Oral Health Information Clearinghouse, 15 National Pediatric HIV Resource Center, 33 NCCAM Clearinghouse, 6 Neurological Manifestations of AIDS, 20 NHLBI Specimen Repository, 9 NIH AIDS Research and Reference Reagent Program, 11 NIH Consensus Development Statement on Interventions To Prevent HIV Risk Behaviors, 17 NIH Vaccine Research Center, 11 Nursing Research and Training Programs in AIDS, 21 o Ocular complications of AIDS, 8 OMH Publications, 35 OMH Resource Center, 36 Oral Health Implications of HIV Infection and AIDS, 15 42 p Pediatric AIDS Rehabilitation Research: Report of a Workshop, 13 Pediatric HIV infection, 33 Perinatal HIV transmission, 14, 35 Physician's Data Query, 5 Principles of HIV Prevention in Drug-Using Populations: A Research-Based Guide, 16 Public Health Service Reports, 13 R Report From the Pediatric, Adolescent and Maternal AIDS (PAMA) Branch to the NICHD Council, January 2003, 13 Reports From OAR-Sponsored Meetings, 25 s Sexual behavior, 10, 17 Sexually transmitted diseases, 28, 39 Spanish-language services, 4, 5, 6, 14,22,29,31,36 Special Issue: HIV and AIDS Among the Severely Mentally 111, 18 Special Issue: Serving People With Psychiatric Disability at Risk for HIV/AIDS, 19 State Survey of Collaborations, 37 Statement on the NIMH AIDS Research Program Responding to the Report, 20 Stories of Scientific Discoveries, 7 Studies of the Ocular Complications of AIDS, 8 Substance Abuse and HIV/AIDS Outreach, 39 Substance Abuse and HIV Prevention Services, 39 T Training and technical assistance for foreign scientists, 2, 3 for health care providers, 12, 13, 32, 33, 34. 35, 38 Treatments for HIV/AIDS, 2, 5, 12, 13, 14,21,22,28,29,32,33,37, 38,39 TTY services, 4. 6, 14. 15, 29, 36 Tuberculosis, 3, 16, 28, 29, 39 V Vaccines, 7, 11, 12, 13,24,25,30 w Women, 12, 13, 14. 24. 27, 31, 35, 37 Workgroup Report: Assessment of AIDS-Related Cognitive Changes: Recommendations of the NIMH Workshop on Neuropsychological Assessment, 19 Working With Families in the Era of HIV/AIDS. 18 43 Order Form Please send_________additional copies of the Guide to NIH HIV/AIDS Information Services to: Name____________________________________________ Organization______________________________________ Street Address_____________________________________ City, State, ZIP____________________________________ □ In addition, please send me an application packet for online access to NLM's AIDS databases. Mail to: Office of Communications and Public Liaison, OCPL Guide to NIH HIV/AIDS Information Services National Library of Medicine 8600 Rockville Pike Bethesda, MD 20894 E-mail: publicinfo@nlm.nih.gov NATIONAL LIBRARY OF MEDICINE NLI1 D213MSn M 4 U.S. Department of Health and Human Services Public Health Service National Institutes of Health NIH Publication No. 03-3731 NLM029342194 NATIONAL LIBRARY OF NLn 05^57525 7 NLM026575227